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PHILIPBONVINOFOUNDATION.ORG

Welcome to the Philip Bonvino Foundation! :)

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CONTACTS AT PHILIPBONVINOFOUNDATION.ORG

Philip Bonvino Foundation

Joy Bonvino

117 Ne●●●●●●Street

Lind●●●●urst , N.Y., 11757

US

1.63●●●●4516
go●●●●●●●@aol.com

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Philip Bonvino Foundation

Joy Bonvino

117 Ne●●●●●●Street

Lind●●●●urst , N.Y., 11757

US

1.63●●●●4516
go●●●●●●●@aol.com

View this contact

WebRisings

Web Risings

PO ●●●204

Brig●●●●ters , NY, 11718

US

1.51●●●●0317
in●●@webrisings.com

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Welcome to the Philip Bonvino Foundation! :) | philipbonvinofoundation.org Reviews
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2 nemaline myopathy
3 philip bonvino foundation
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Welcome to the Philip Bonvino Foundation! :) | philipbonvinofoundation.org Reviews

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Philip Bonvino Foundation :) Donate

http://www.philipbonvinofoundation.org/donate.html

Thank you to all who donate! In the meantime donations are still greatly appreciated, please donate to the Philip V. Bonvino Medical Fund or. His home is not even accessible, but it is what he knows. I even applied for the ABC Extreme Home Makeover. My home is not accessible. I am desperate. Any help would be greatly appreciated in my plight to provide for my son and keep him in his home. Lindenhurst, N.Y.

2

Philip Bonvino Foundation :) Nemaline Myopathy

http://www.philipbonvinofoundation.org/nm.html

What is Nemaline Myopathy? NM is a rare genetic neuromuscular disorder which was first described in 1963. A Finnish study in 1997 gave an estimated incidence of NM at just. 1 : 50,000. This figure is based on a small population and may not be applicable worldwide. The severity of this disease varies greatly. Research suggests five subgroups;. 1) Severe form in newborns. 3) Benign congenital form. 5) Childhood or juvenile onset. Thank you to David of www.nemaline.org. Please visit www.nemaline.org.

3

Philip Bonvino Foundation :) About Philip

http://www.philipbonvinofoundation.org/about.html

I was dreaming; not prepared for what came next. There were tubes all over him. I was desperate to hold my baby, but fearful of harming anything that had been in place. He was put in my arms and since then we've been inseparable. Philip was sent home with 24 hour nursing and a mini ICU was disguised as his room. Somehow, I can't remember when, it all became very normal. This was my motherhood, my parenting. Everything was in place. He had OT, PT and an early education program at home. An RN, who had been...

4

Philip Bonvino Foundation :) Photo Gallery

http://www.philipbonvinofoundation.org/photogallery.html

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Philip Bonvino Foundation :) Links

http://www.philipbonvinofoundation.org/links.html

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