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The PKU Connection

Friday, July 2, 2010. Journal July, 2 2010. I woke up the morning of July 27, 2008 and hefted my huge, pregnant belly over to face my husband. He smiled and said “Happy Birthday honey! 8221; I smiled back and replied “I’m going to have a baby honey! 8221; Well, that lasted about 4 days. I bought cookbook after cookbook after cookbook and I started on the cooking journey of my life. I had a few months before Sadie would start eating solid foods and I was going to be armed and ready! Thursday, July 1, 2010.

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Friday, July 2, 2010. Journal July, 2 2010. I woke up the morning of July 27, 2008 and hefted my huge, pregnant belly over to face my husband. He smiled and said “Happy Birthday honey! 8221; I smiled back and replied “I’m going to have a baby honey! 8221; Well, that lasted about 4 days. I bought cookbook after cookbook after cookbook and I started on the cooking journey of my life. I had a few months before Sadie would start eating solid foods and I was going to be armed and ready! Thursday, July 1, 2010.

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The PKU Connection | pkuconnection.blogspot.com Reviews

https://pkuconnection.blogspot.com

Friday, July 2, 2010. Journal July, 2 2010. I woke up the morning of July 27, 2008 and hefted my huge, pregnant belly over to face my husband. He smiled and said “Happy Birthday honey! 8221; I smiled back and replied “I’m going to have a baby honey! 8221; Well, that lasted about 4 days. I bought cookbook after cookbook after cookbook and I started on the cooking journey of my life. I had a few months before Sadie would start eating solid foods and I was going to be armed and ready! Thursday, July 1, 2010.

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pkuconnection.blogspot.com

1

The PKU Connection: Welcome!

http://pkuconnection.blogspot.com/2010/07/welcome_8166.html

Thursday, July 1, 2010. You have arrived at the PKU Connection, a blog just for those dealing with PKU who use the Albany Med Clinic. This is a place where we can connect with each other. A place to ask advice, share recipe info, new food finds, diet problems, or just to talk to someone who knows what you're going through! I know a lot of times I find new low-pro foods around here or come up with a new recipe and want a way to share with others. And.I always have issues I could use help with! I also have...

2

The PKU Connection: Pepsi Grant

http://pkuconnection.blogspot.com/2010/07/pepsi-grant.html

Friday, July 2, 2010. Vote to help PKU Research win support from a Pepsi Grant. Http:/ www.refresheverything.com/npkuafindacure. Subscribe to: Post Comments (Atom). Journal July, 2 2010. Hi, I am a mother of a sweet little girl with PKU who is almost 2 years old now! I also have a 3 year old daughter who does not have PKU. I believe that connecting with others gives us power. Power to cope with PKU, power to give the best possible diet, and the power to unite and make great changes!

3

The PKU Connection: Advocacy

http://pkuconnection.blogspot.com/2010/07/advocacy.html

Thursday, July 1, 2010. Support the Medical Foods Equity Act. Which is a bill we are currently tring to get through the House of Representatives. This bill would require that ALL insurance companies cover Medical Foods and formulas! Write a letter, make a call, schedule a meeting with your representatives! It's actually easy and don't be intimidated, it is always a pimply faced, college intern that is answering your call! It is their job to help you has much as possible! A Little Bill with Big Benefit.

4

The PKU Connection: Resources

http://pkuconnection.blogspot.com/p/resources.html

National PKU Alliance (Our National Organization- great advocacy info) www.npkua.org/. National PKU News (order your newsletter here-it's wonderful! Http:/ www.pkunews.org/. PKU Listserv ( a great way to connect) - http:/ www.pkunews.org/. The Mid-Atlantic Connection http:/ www.macpad.org/. Canadian PKU and Allied Disorders http:/ www.canpku.org/. Cook for Love ( Amazing Recipes! Http:/ www.cookforlove.org/. European Organisation for Rare Diseases http:/ www.eurordis.org/. Food and Formula Companies:.

5

The PKU Connection: Journal July, 2 2010

http://pkuconnection.blogspot.com/2010/07/journal-july-2-2010.html

Friday, July 2, 2010. Journal July, 2 2010. I woke up the morning of July 27, 2008 and hefted my huge, pregnant belly over to face my husband. He smiled and said “Happy Birthday honey! 8221; I smiled back and replied “I’m going to have a baby honey! 8221; Well, that lasted about 4 days. I bought cookbook after cookbook after cookbook and I started on the cooking journey of my life. I had a few months before Sadie would start eating solid foods and I was going to be armed and ready! Journal July, 2 2010.

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Friday, July 2, 2010. Journal July, 2 2010. I woke up the morning of July 27, 2008 and hefted my huge, pregnant belly over to face my husband. He smiled and said “Happy Birthday honey! 8221; I smiled back and replied “I’m going to have a baby honey! 8221; Well, that lasted about 4 days. I bought cookbook after cookbook after cookbook and I started on the cooking journey of my life. I had a few months before Sadie would start eating solid foods and I was going to be armed and ready! Thursday, July 1, 2010.

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