heavensdeclaretheglory.blogspot.com
The Heavens Declare: May 2009
http://heavensdeclaretheglory.blogspot.com/2009_05_01_archive.html
The heavens declare the glory of God; the skies proclaim the work of his hands. Day after day they pour forth speech; night after night they display knowledge. There is no speech or language where their voice is not heard. Their voice goes out into all the earth, their words to the ends of the world. Psalm 19: 1-4. Thursday, May 21, 2009. They were frightened at first, thinking He was some sort of ghost. Then He spoke to them, identifying Himself, "It is I; be not afraid.". Links to this post. While at w...
rhombencephalosynapsis.blogspot.com
Life with Rhombencephalosynapsis: A Unique Guest Post
http://rhombencephalosynapsis.blogspot.com/2015/03/a-unique-guest-post.html
Friday, March 27, 2015. A Unique Guest Post. I Am hoping to incorporate a new "series" on this blog which will include blog posts from individuals living with RS. If you or someone you know would like to contribute please let me know via the contact information in the right column. The first blog post in the "Life With Rhombencephalosynapsis" Series comes from my girl, Abby. Written By Abigail Fescoe:. Posted by Kristen Fescoe, March 2015. That which does not kill us makes us stronger. Abby was born with...
rhombencephalosynapsis.blogspot.com
Life with Rhombencephalosynapsis: Alopecia?
http://rhombencephalosynapsis.blogspot.com/2013/10/alopecia.html
Sunday, October 13, 2013. One of the more odd hallmarks of Rhombencephalosynapsis is alopecia. Whether male of female, most people with RS have some degree of baldness, typically patches. I was asked by researchers conducting a study on RS to send pictures of her patches and her ears (kids with RS typically have low set forward slanted ears also) and I thought I would share. When she was first diagnosed I remember thinking "how awful. on top of everything else my kid is going to have bald patches". I mar...
rhombencephalosynapsis.blogspot.com
Life with Rhombencephalosynapsis: Slowly But Surely
http://rhombencephalosynapsis.blogspot.com/2015/07/slowly-but-surely.html
Saturday, July 25, 2015. The girls had their 8 year well check this past week. Both girls are the picture of health and both girls grew very nicely. Miss Abigail is now a whopping 42 pounds and 47 inches. That puts her in the 3rd percentile for weight and the 5th for height. It doesn't sound like much but it's on the chart! Subscribe to: Post Comments (Atom). She also has structural malformations in her. Follow us on Instagram. Our words to live by. I married my high school sweetheart and our life has be...
lymetwistontherocks.blogspot.com
Life...with a Twist of Lyme: You know you have Lyme when....
http://lymetwistontherocks.blogspot.com/2011/07/you-know-you-have-lyme-when.html
Lifewith a Twist of Lyme. My Life with Multiple Chronic Illnesses, Including Lyme Disease. Saturday, July 9, 2011. You know you have Lyme when. Retrieved from the "Truth About Lyme Disease Forums" on 5/6/2011. YOU KNOW YOU HAVE LYME WHEN:. 1) You don't care where your spouse goes, just as long as you don't have to go along. 2) You are cautioned to slow down by the doctor instead of by the police. 3) "Getting lucky" means finding your car in the parking lot. 7) You get exhausted from just waking up. 17) Y...
lymetwistontherocks.blogspot.com
Life...with a Twist of Lyme: August 2011
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Lifewith a Twist of Lyme. My Life with Multiple Chronic Illnesses, Including Lyme Disease. Sunday, August 21, 2011. You can now watch the entire documentary film about Lyme disease, Under Our Skin. This film is a MUST-SEE for anyone who has (or suspects they have) Lyme disease! PS Yes, there are commercials, just be patient! Tuesday, August 16, 2011. Lots and lots of important info! I want to catch you up on miscellaneous exciting news in the world of Lyme research, so this is a bit of a hodgepodge post.
lymetwistontherocks.blogspot.com
Life...with a Twist of Lyme: January 2011
http://lymetwistontherocks.blogspot.com/2011_01_01_archive.html
Lifewith a Twist of Lyme. My Life with Multiple Chronic Illnesses, Including Lyme Disease. Monday, January 17, 2011. Go Directly to Jail, Do Not Pass "Go". It's so hard to explain this to people who are not chronically ill.but it's just like being in prison. I can't go out, I have Lyme and lupus and twenty other diagnoses, and I'm extremely. He doesn't feel like going anywhere, so even if I wanted. To go somewhere (which doesn't happen very often), I can't because he won't take me. I suppose this is comi...
lymetwistontherocks.blogspot.com
Life...with a Twist of Lyme: February 2011
http://lymetwistontherocks.blogspot.com/2011_02_01_archive.html
Lifewith a Twist of Lyme. My Life with Multiple Chronic Illnesses, Including Lyme Disease. Thursday, February 24, 2011. A Lyme Obituary - and a Message to the Living. I received this obituary in email and felt I had to share it with you. No, I didn't know the gentleman in question. Unfortunately, this is what can happen if you have Lyme disease and you're forced to rely on conventional medicine and doctors who follow the IDSA guidelines. Vernon Dale Kyle, 55, Kansas. Vernon’s illness was bacterial ...
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