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Please Tape Me Back TogetherMy life with Ehlers-Danlos Syndrome
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My life with Ehlers-Danlos Syndrome
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My life with Ehlers-Danlos Syndrome
pleasetapemebacktogether.blogspot.com
Please Tape Me Back Together: EDS Awareness Month: Ehlers-Danlos Syndrome, Depression, and Anxiety
http://pleasetapemebacktogether.blogspot.com/2014/05/eds-awareness-month-ehlers-danlos_25.html
Please Tape Me Back Together. My life with Ehlers-Danlos Syndrome. POTS and Mitral Valve Prolapse. Chiari and Tethered Cord. Cranial Instability and Cranial Settling. Sunday, May 25, 2014. EDS Awareness Month: Ehlers-Danlos Syndrome, Depression, and Anxiety. How do you get through it? Have any other zebras found a method of decreasing depression and anxiety? Please show class and respect in your comments. All comments are previewed, but anyone can comment. I welcome your comments! Welcome to my blog!
Please Tape Me Back Together: The last post ever
http://pleasetapemebacktogether.blogspot.com/2014/06/the-last-post-ever.html
Please Tape Me Back Together. My life with Ehlers-Danlos Syndrome. POTS and Mitral Valve Prolapse. Chiari and Tethered Cord. Cranial Instability and Cranial Settling. Monday, June 16, 2014. The last post ever. This is the last post for Please Tape Me Back Together: My life with Ehlers-Danlos Syndrome. And would love to have you visit me there. Please show class and respect in your comments. All comments are previewed, but anyone can comment. I welcome your comments! Subscribe to: Post Comments (Atom).
Please Tape Me Back Together: V-EDS
http://pleasetapemebacktogether.blogspot.com/p/v-eds_05.html
Please Tape Me Back Together. My life with Ehlers-Danlos Syndrome. POTS and Mitral Valve Prolapse. Chiari and Tethered Cord. Cranial Instability and Cranial Settling. Ehlers-Danlos Syndrome, Vascular Type (formerly type IV). This type affects approximately 1 in 250,000 people. Signs and symptoms include:. Loose, unstable joints. Small joints with dislocations. Some people with the Vascular type also are hypermobile in large joints and dislocate in large joints as well. Or organ rupture in 70% of adults.
Please Tape Me Back Together: EDS Awareness Month: Ehlers-Danlos Syndrome and POTS
http://pleasetapemebacktogether.blogspot.com/2014/05/eds-awareness-month-ehlers-danlos_24.html
Please Tape Me Back Together. My life with Ehlers-Danlos Syndrome. POTS and Mitral Valve Prolapse. Chiari and Tethered Cord. Cranial Instability and Cranial Settling. Saturday, May 24, 2014. EDS Awareness Month: Ehlers-Danlos Syndrome and POTS. Like so many others with EDS, I have POTS, a type of Dysautonomia. The best source I've been able to find on dysautonomia has been The Dysautonomia Information Network. Though there are many different types of Dysautonomia, the type most often associated with EDS ...
Please Tape Me Back Together: May 2014
http://pleasetapemebacktogether.blogspot.com/2014_05_01_archive.html
Please Tape Me Back Together. My life with Ehlers-Danlos Syndrome. POTS and Mitral Valve Prolapse. Chiari and Tethered Cord. Cranial Instability and Cranial Settling. Saturday, May 31, 2014. EDS Awareness Month: Ehlers-Danlos Syndrome Resources. The following are excellent sources to learn more about Ehlers-Danlos Syndrome. Ehlers-Danlos National Foundation (EDNF) - one of my favorite EDS charity and website. Http:/ www.ednf.org/. Http:/ www.ehlersdanlosnetwork.org/. Http:/ www.hypermobility.org/. Medlin...
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Rebecca's Brain: Decompression (surgery) information
http://beckschiari.blogspot.com/p/decompression-surgery-information.html
A List of Chiari Specialists. If you're scheduled for surgery, or think it might be a possibility, then you might be wondering what goes on during the procedure. I took this off of my surgeon's website at: http:/ www.mayfieldchiaricenter.com/chiari surgery.php. Step 1: prepare the patient. Step 2: make a skin incision. Step 3: remove bone. Step 4: open the dura. Next, the surgeon opens the dura to view the tonsils and cisterna magna. Some surgeons perform a Doppler ultrasound study during surgery to ...
Rebecca's Brain: A more unified entry
http://beckschiari.blogspot.com/2012/06/more-unified-entry.html
A List of Chiari Specialists. Friday, June 8, 2012. A more unified entry. I have created a page at the top called "My Surgery Story". You can find it here http:/ beckschiari.blogspot.com/p/my-surgery-story 08.html. This should help you follow along better instead of having to jump around to all my entries. The timeline goes something like this, though:. Day 1 (29th): Day of the surgery. 12:00PM- moved to recovery. 12-2:00PM- vomiting, walking around. 2:00PM- moved to room. No catheter after surgery.
Rebecca's Brain: About Chiari
http://beckschiari.blogspot.com/p/about-chiari.html
A List of Chiari Specialists. Welcome to the world of Chiari Malformation! More than likely, you are here because you or someone close to you has been diagnosed with it. If you are like the rest of us, you had probably never heard of it until you received the news. In a nutshell, a Chiari malformation happens when your skull is just too small to hold your brain in adeqautely. As a result, your tonsils extend down into your spinal column and fluid flow is reduced and sometimes cut off altogether. Probably...
Rebecca's Brain: Another setback
http://beckschiari.blogspot.com/2012/06/another-setback.html
A List of Chiari Specialists. Friday, June 22, 2012. Subscribe to: Post Comments (Atom). View my complete profile. Chiari and EDS Blogs. My Vault of Shame. Living with Ehlers Danlos Syndrome. Hockey is the Best Medicine. Responsibility in end-life times, domestic violence, forgiveness. Please Tape Me Back Together. The last post ever. Windwood Farm is out! Zipperheads: Living with Arnold Chiari Malformation. It's a New Year. Blessings in a Storm. Confessions of a Ninja Mom Week 1. It's All in my Head.
Smart Fibro Chick: May Photo a Day #27
http://smartfibrochick.blogspot.com/2013/05/may-photo-day-27.html
Kicking Fibromyalgia's Butt.One Day at a Time. Monday, May 27, 2013. May Photo a Day #27. 1 I bought this! 3 This is really good! 4 In my cup. 7 Something beginning with F. 19 My favorite view. 21 I care about this. 26 Fave things to do on a Sunday. 27 Can't live without. 28 What you're doing now. The love of my life, my soul mate. Labels: May Photo a Day. Please show class and respect in your comments. All comments are previewed, but anyone can comment. I welcome your comments! View my complete profile.
Rebecca's Brain: Various Chiari Tests
http://beckschiari.blogspot.com/p/related-conditionsvarious-chiari-tests.html
A List of Chiari Specialists. There are many related disorders that can go hand-in-hand with Chiari. There are also questions that you will undoubtedly have when you visit the neurosurgeon. When you are diagnosed, these are things that you should expect to be discussed if you are seeing a true expert. You will want to discuss these to be sure they are confirmed or ruled out. 3 Spinal MRIs- The spinal MRI should be a full spinal one and include the cervical, thoracic, and lumbar spine. 7 Gag reflexes- In ...
adayinthelifeofafreg.blogspot.com
A Day In the Life of a Freg: December 2012
http://adayinthelifeofafreg.blogspot.com/2012_12_01_archive.html
A Day In the Life of a Freg. This blog chronicles my life, my hobbies, and my obsessions. Tuesday, December 18, 2012. And then you grow up. All siblings squabble from time to time. Some more than others, and some a bit less than others. Compared to my own childhood, my children hardly ever have issues with each other except Charlie and David. They are too rough and too close in age and this causes conflict, but I still have hope they'll become friends as they age. Will it end up with constant verbal spar...
adayinthelifeofafreg.blogspot.com
A Day In the Life of a Freg: June 2012
http://adayinthelifeofafreg.blogspot.com/2012_06_01_archive.html
A Day In the Life of a Freg. This blog chronicles my life, my hobbies, and my obsessions. Thursday, June 14, 2012. The life of a military child. During that time we had 3 more kids, my health began to fade as my EDS became more painful and apparent, and my friends PCSed or separated from the military. I was no longer a young, nor new military spouse and I found it harder to find people who were in the same stage of life as I was. Being a military SPOUSE is much different than being a military BRAT. I...
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pleasetapemebacktogether.blogspot.com
Please Tape Me Back Together
Please Tape Me Back Together. My life with Ehlers-Danlos Syndrome. POTS and Mitral Valve Prolapse. Chiari and Tethered Cord. Cranial Instability and Cranial Settling. Hypermobile Ehlers-Danlos syndrome (hEDS) Postural Orthostatic Tachycardia Syndrome (POTS) Focal Impaired Awareness (Complex Partial) Seizures Fibromyalgia Chronic Myofascial Pain (CMP) Polycystic Ovarian Syndrome (PCOS) TMJ Dysfunction Bipolar Disorder Type I Rapid Cycling Migraines Obsessive Compulsive Disorder Keratosis Pilaris (KP) Comp...
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