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Help! MND is overpowering me!

Plotting my downward spiral into obscurity!

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Help! MND is overpowering me! | pollyanna32mnd.blogspot.com Reviews
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Plotting my downward spiral into obscurity!
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1 terrible thursday
2 posted by
3 pollyanna
4 5 comments
5 my grandson
6 1 comment
7 fingers lose dexterity
8 no comments
9 and computer agility
10 and occasionally groan
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terrible thursday,posted by,pollyanna,5 comments,my grandson,1 comment,fingers lose dexterity,no comments,and computer agility,and occasionally groan,the 'crying' game,to think positively,that their,and roundabouts here,my lovely grandchild,older posts
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Help! MND is overpowering me! | pollyanna32mnd.blogspot.com Reviews

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Plotting my downward spiral into obscurity!

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Help! MND is overpowering me! : October 2012

http://pollyanna32mnd.blogspot.com/2012_10_01_archive.html

MND is overpowering me! Plotting my downward spiral into obscurity! Monday, 1 October 2012. The North Wind doth blow . It’s cold. I hate it when autumn arrives. With its whistling winds and cloudy wet skies. My scrawny body with shivers is wracked. And upon it layers of clothes are stacked. If I have the temerity. To try to complete the smallest of tasks. Surely it’s not too much to ask? That I be allowed some comforting heat. While languishing in my wheelchair seat. Praying for summer sun.

2

Help! MND is overpowering me! : December 2012

http://pollyanna32mnd.blogspot.com/2012_12_01_archive.html

MND is overpowering me! Plotting my downward spiral into obscurity! Sunday, 2 December 2012. Welcome to the world, young, Master Rubin -. A telephone call in the early morn. Told us a baby boy was born. A grandson, for us, a third generation. After nine long months of gestation. Looking just like his dad, a beautiful boy. To stay inside mummy was his ploy. But I’m sure he’ll love the world out here. With a mummy and daddy who’ll hold him dear. What a lucky lad this boy will be. Subscribe to: Posts (Atom).

3

Help! MND is overpowering me! : TERRIBLE THURSDAY!

http://pollyanna32mnd.blogspot.com/2013/02/terrible-thursday.html

MND is overpowering me! Plotting my downward spiral into obscurity! Saturday, 2 February 2013. Terrible day - Thursday. Hospital visit to Kings armed with an overnight oximeter. First, reprimanded by bossy chest consultant for being late for an appointment I didn't know I had, then given the bombshell that my CO2 had gone from 5% to 8% and I was at risk of imminent ventilatory failure! Talk about lack of bedside manner. No compassion at all. To say I was terrified is an understatement. The ventilator see...

4

Help! MND is overpowering me! : February 2013

http://pollyanna32mnd.blogspot.com/2013_02_01_archive.html

MND is overpowering me! Plotting my downward spiral into obscurity! Saturday, 2 February 2013. Terrible day - Thursday. Hospital visit to Kings armed with an overnight oximeter. First, reprimanded by bossy chest consultant for being late for an appointment I didn't know I had, then given the bombshell that my CO2 had gone from 5% to 8% and I was at risk of imminent ventilatory failure! Talk about lack of bedside manner. No compassion at all. To say I was terrified is an understatement. The ventilator see...

5

Help! MND is overpowering me! : March 2012

http://pollyanna32mnd.blogspot.com/2012_03_01_archive.html

MND is overpowering me! Plotting my downward spiral into obscurity! Saturday, 10 March 2012. Isn’t it amazing how ridiculous life can be? One minute life is over, the next we’re jumping with glee. Well, not quite, but, hey; just solved an annoying problem). This week I’ve been down in the dumps and quite sad. Writing whining poetry and now I feel bad. Though I know it’s all relative and I’m allowed to complain. I’m not as badly off as some. but, then again. Another day dawns, my MND still exists. A life ...

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steveevans35.blogspot.com steveevans35.blogspot.com

Steve Evans Blog: Regaining a little independence

http://steveevans35.blogspot.com/2015/06/regaining-little-independence.html

Tuesday, 2 June 2015. Regaining a little independence. The system comprises a mechanical hand which is moved by tiny servos. This was manufactured by Patrick using his 3D printer. Then there's a processing unit, again constructed and programmed by Patrick. The system connects to the eyegaze computer by USB. Finally a screen grid was made to allow eye selection. The system is still in its early stages of development but early tests are promising. The next video was made in the seafront carpark at my flat.

steveevans35.blogspot.com steveevans35.blogspot.com

Steve Evans Blog: We Are Not Alone

http://steveevans35.blogspot.com/2015/04/we-are-not-alone.html

Monday, 6 April 2015. We Are Not Alone. Filming My Father In Life And Death. Click to watch on demand until March 2016. I know from other MND sufferers, the Isaac's and our experience isn't universal but I suspect it's representative of many families dealing with this disease. I am so grateful for your honesty - thank you does not begin to cover it but I dont know what else to say. Thank you. 12 April 2015 at 00:18. Subscribe to: Post Comments (Atom). For those of you who really want to, you can check ou...

steveevans35.blogspot.com steveevans35.blogspot.com

Steve Evans Blog: November 2014

http://steveevans35.blogspot.com/2014_11_01_archive.html

Sunday, 16 November 2014. Perseverance, patience and acceptance” – PatientsLikeMe member Steve shares what it’s like to live with MND. Posted November 14th, 2014. Looking back over the last 7 years since your diagnosis with ALS/MND, is there anything you’d like to have known sooner that has helped you along your journey? You’ve documented your experiences in your film “My Motor Neuron Disease Made Easier” – can you share a little about your inspiration for the project? Eyegaze is undeniably an incredible...

steveevans35.blogspot.com steveevans35.blogspot.com

Steve Evans Blog: August 2014

http://steveevans35.blogspot.com/2014_08_01_archive.html

Tuesday, 26 August 2014. Enduring Motor Neurone Disease. Monday, 25 August 2014. Daniel's and Tracy's ice bucket challenge. Thursday, 21 August 2014. Finally I was determined to make a 60 second version, with the view to getting it on TV as an ad campaign to raise awareness and funds. BUT the minimum cost of airtime for a realistic ad campaign is £25k. So if anyone knows of any organisations who could contribute a few grand, let me know. Wednesday, 6 August 2014. Jake Nailing Muse Again.

steveevans35.blogspot.com steveevans35.blogspot.com

Steve Evans Blog: April 2014

http://steveevans35.blogspot.com/2014_04_01_archive.html

Thursday, 3 April 2014. Just like old times. Almost. So yesterday I decided to return. We drove to Hampton Court station where there are very conveniently placed disabled parking spaces, hopped on a train with the help of the train's guard and was at Waterloo 35 minutes later. We only spent about an hour looking around, not wanting to push our luck. It was nice having made it there again albeit not under my own steam anymore. As always I can't help feeling many of the exhibits fall into "The Empo...After...

steveevans35.blogspot.com steveevans35.blogspot.com

Steve Evans Blog: Enduring Motor Neurone Disease

http://steveevans35.blogspot.com/2014/08/enduring-motor-neurone-disease.html

Tuesday, 26 August 2014. Enduring Motor Neurone Disease. Wow, thats stunned us. Good luck with the campaign. Anna P. 4 September 2014 at 23:55. A very moving video indeed. very moving. I hope youre doing OK at the moment. All the best, Adrian. Ember Gdns. 6 September 2014 at 08:09. Subscribe to: Post Comments (Atom). For those of you who really want to, you can check out my "status" on my web link. Finally, PLEASE leave comments, even if brief as its the only way I know its being read!

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Blogs - Disabled 4 Disabled

http://www.disabled4disabled.co.uk/blogs.html

Changing Places / toilets. National Trust Home Page. Where to go in the East of England, Groups Guide 2013. Organisations, Charities, Associations. Parking For Blue Badge Holders. Policies For Carers and Help. Gatwick Airport list of airlines wheelchair weight restrictions. Sure Parking Meet and Greet. Southend Airport Official list of airlines wheelchair weight restrictions. UK Airport Car Parks. Travel By Rail and London Underground. Vehicle tax for disabled people. VAT reliefs for disabled people.

steveevans35.blogspot.com steveevans35.blogspot.com

Steve Evans Blog: Quick update

http://steveevans35.blogspot.com/2015/03/quick-update.html

Sunday, 29 March 2015. Subscribe to: Post Comments (Atom). For those of you who really want to, you can check out my "status" on my web link. Finally, PLEASE leave comments, even if brief as its the only way I know its being read! View my complete profile. Pauline's life with MND.

steveevans35.blogspot.com steveevans35.blogspot.com

Steve Evans Blog: December 2014

http://steveevans35.blogspot.com/2014_12_01_archive.html

Wednesday, 10 December 2014. Subscribe to: Posts (Atom). For those of you who really want to, you can check out my "status" on my web link. Finally, PLEASE leave comments, even if brief as its the only way I know its being read! View my complete profile. Pauline's life with MND.

steveevans35.blogspot.com steveevans35.blogspot.com

Steve Evans Blog: June 2015

http://steveevans35.blogspot.com/2015_06_01_archive.html

Tuesday, 2 June 2015. Regaining a little independence. The system comprises a mechanical hand which is moved by tiny servos. This was manufactured by Patrick using his 3D printer. Then there's a processing unit, again constructed and programmed by Patrick. The system connects to the eyegaze computer by USB. Finally a screen grid was made to allow eye selection. The system is still in its early stages of development but early tests are promising. The next video was made in the seafront carpark at my flat.

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Mot de passe :. J'ai oublié mon mot de passe. Plus d'actions ▼. S'abonner à mon blog. Création : 07/12/2008 à 10:10. Mise à jour : 13/01/2014 à 10:15. 3667;ค๔є๓๏เรєllє ק๏llאคภภค. 9679;¸.•*¨Ƹ̵̡Ӝ̵̨̄Ʒ¨*•.¸●●¸.•*¨Ƹ̵̡Ӝ̵̨̄Ʒ¨*•.¸●. Dans la vie on ma appri a surmonter les moment les plus dur grace a certaine personne qui on etai la. On fai tous des erreurs mai toi tu etai une tro grosse erreurs sale c *. Ou poster avec :. Posté le lundi 13 janvier 2014 10:15. Ou poster avec :. Mer 01 février 2012.

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Help! MND is overpowering me!

MND is overpowering me! Plotting my downward spiral into obscurity! Saturday, 2 February 2013. Terrible day - Thursday. Hospital visit to Kings armed with an overnight oximeter. First, reprimanded by bossy chest consultant for being late for an appointment I didn't know I had, then given the bombshell that my CO2 had gone from 5% to 8% and I was at risk of imminent ventilatory failure! Talk about lack of bedside manner. No compassion at all. To say I was terrified is an understatement. The ventilator see...

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Quarta-feira, 25 de novembro de 2009. Tudo na vida é um aprendizado. Eu acho que tudo na vida é um aprendizado por mais pouco que seja, mais quem luta consegue vencer. Acho que é muito bom todos terem a oportunidade de aprender, pois é um mundo muito tecnológico e cada vez mais abrangindo. Por isso eu acho muito bom essa chance dentro das escolas e em tudo que tiver direito de oportunidade. Eu quero o melhor pra minha vida! Tudo na vida é um aprendizado. Eu quero o melhor pra minha vida!

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