poorlypaddy.blogspot.com

Patrick's News Blog

Wednesday, 17 November 2010. I know, I know. I'm getting really bad at updating Paddy's blog! We had a fab summer with family and friends though, hopefully the piccies say it all ***. Bean bag seat which will give him some comfort at home rather than being plonked on the floor all the time! With all that said I have to say a massive thanks to all those who sponsored us and gave there time and energy on the day, I am humbled and honoured that we have so many great friends and family. Friday, 16 July 2010.

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Patrick's News Blog | poorlypaddy.blogspot.com Reviews

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Wednesday, 17 November 2010. I know, I know. I'm getting really bad at updating Paddy's blog! We had a fab summer with family and friends though, hopefully the piccies say it all ***. Bean bag seat which will give him some comfort at home rather than being plonked on the floor all the time! With all that said I have to say a massive thanks to all those who sponsored us and gave there time and energy on the day, I am humbled and honoured that we have so many great friends and family. Friday, 16 July 2010.

<META> KEYWORDS

1 patrick's news blog

2 summer holidays

3 no comments

4 sponsored walk update

5 loving life

6 pennies for patrick

7 4 epilepsy

8 1 comment

9 he's my son

10 older posts

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patrick's news blog,summer holidays,no comments,sponsored walk update,loving life,pennies for patrick,4 epilepsy,1 comment,he's my son,older posts,about me,links,coping with chaos,contact a family,julia's house hospice,blog archive,october

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Patrick's News Blog | poorlypaddy.blogspot.com Reviews

https://poorlypaddy.blogspot.com

Wednesday, 17 November 2010. I know, I know. I'm getting really bad at updating Paddy's blog! We had a fab summer with family and friends though, hopefully the piccies say it all ***. Bean bag seat which will give him some comfort at home rather than being plonked on the floor all the time! With all that said I have to say a massive thanks to all those who sponsored us and gave there time and energy on the day, I am humbled and honoured that we have so many great friends and family. Friday, 16 July 2010.

INTERNAL PAGES

poorlypaddy.blogspot.com

1

Patrick's News Blog: November 2010

http://poorlypaddy.blogspot.com/2010_11_01_archive.html

Wednesday, 17 November 2010. I know, I know. I'm getting really bad at updating Paddy's blog! We had a fab summer with family and friends though, hopefully the piccies say it all xxx. Bean bag seat which will give him some comfort at home rather than being plonked on the floor all the time! With all that said I have to say a massive thanks to all those who sponsored us and gave there time and energy on the day, I am humbled and honoured that we have so many great friends and family. Xx Thank You xx.

2

Patrick's News Blog: November 2009

http://poorlypaddy.blogspot.com/2009_11_01_archive.html

Sunday, 15 November 2009. Found this beautiful song by Mark Schultz, just click on the title and it will take you to the you tube video. A NOTE TO NEW FOLLOWERS. I know that other Mums and Dads out there have come accross Patrick's blog as they desperately search for answers and hope for their own children (you know who you are). I know it is really important to find other people who understand that you can talk to, please feel free to e-mail me directly at gemconyard@yahoo.co.uk. Friday, 13 November 2009.

3

Patrick's News Blog: HO HO HO Merry Christmas!!

http://poorlypaddy.blogspot.com/2009/12/ho-ho-ho-merry-christmas.html

Friday, 18 December 2009. HO HO HO Merry Christmas! Just wanted to wish everyone a very Merry Christmas and a fab new year, hope 2010 is a good one! Patrick has gone 21 weeks without any seizures now which is amazing, he's loving the xmas. Season with all the lights and tinsel, it's a sensory overload! We're all really looking forward to a hectic week ahead with Isaac's 7 th. Birthday on 22 nd. And new year just to relax and recover which will be well needed by then. Subscribe to: Post Comments (Atom).

4

Patrick's News Blog: Summer Holidays

http://poorlypaddy.blogspot.com/2010/11/summer-holidays.html

Wednesday, 17 November 2010. I know, I know. I'm getting really bad at updating Paddy's blog! We had a fab summer with family and friends though, hopefully the piccies say it all xxx. Subscribe to: Post Comments (Atom). We are currently fund raising to buy Patrick a companion cycle. Our target is £7000. If you would like to help by making a donation you can use the link below. Xx Thank You xx. Patrick John Dennis Conyard. Christchurch, Dorset, United Kingdom. View my complete profile. Rompa - Sensory Toys.

5

Patrick's News Blog: March 2009

http://poorlypaddy.blogspot.com/2009_03_01_archive.html

Saturday, 28 March 2009. How cute is that? Hiya, as you can see from the picture Patrick has his new Mr Bump glasses, he's coping really well with them surprisingly and doesn't seem to bothered by them. He tends to knock them off as he's rolling around on the floor but that's all. His mouth action is a little disorganised, his co-ordination is all over the place but that doesn't matter, he's getting his fluids and food in properly so no need to fit him with tubes, great! It was a bit chaotic last week ha...

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judemarrey.wordpress.com

From Great Oak Trees Come Little Acorns… – Jude Marrey's Blog

https://judemarrey.wordpress.com/2014/09/05/from-great-oak-trees-come-little-acorns

Jude Marrey's Blog. September 5, 2014. From Great Oak Trees Come Little Acorns…. 12 months ago I looked at lot like the left picture, 15 stone and truly unfit. Apart from some vague ambition to “get fit” I didn’t really have any aspirations. Now I am a few weeks out from my first half marathon at the age of 44 (and a bit). This entry was posted in Uncategorized. Acorns Children’s Hospice. One in the bank…. →. Leave a Reply Cancel reply. Enter your comment here. Address never made public). Notify me of ne...

judemarrey.wordpress.com

Pre-Xmas Hospitals…. – Jude Marrey's Blog

https://judemarrey.wordpress.com/2014/12/15/pre-xmas-hospitals

Jude Marrey's Blog. December 15, 2014. We have spent more time than we would choose in hospitals around Christmas – it’s not fun. Jude makes his debut in a new hospital this week with Thursday’s admission to Queen’s Medical Centre in Nottingham. Is a treatment that has shown good results in reducing spasticity and for Jude this primarily relates to his positioning and to help us with manual handling. Hope they serve decent coffee…. This entry was posted in Jude's Story. Happy Birthday and a potted history.

judemarrey.wordpress.com

Happy Birthday and a potted history – Jude Marrey's Blog

https://judemarrey.wordpress.com/2014/11/17/happy-birthday-and-a-potted-history

Jude Marrey's Blog. November 17, 2014. Happy Birthday and a potted history. From May 2008 when Jude was experiencing some of the effects of the ACTH; the so-called moon face. This smile was a welcome respite from what was mostly screams and distress. Around this time we were persuaded that Jude needed to be tube fed – I became quite proficient at reinserting the tube when he sneezed it out! 2009 started much like a lot of 2008 had been – in hospital with a chest infection. Jude – November 17th 2009...

judemarrey.wordpress.com

November 2014 – Jude Marrey's Blog

https://judemarrey.wordpress.com/2014/11

Jude Marrey's Blog. November 17, 2014. Happy Birthday and a potted history. From May 2008 when Jude was experiencing some of the effects of the ACTH; the so-called moon face. This smile was a welcome respite from what was mostly screams and distress. Around this time we were persuaded that Jude needed to be tube fed – I became quite proficient at reinserting the tube when he sneezed it out! 2009 started much like a lot of 2008 had been – in hospital with a chest infection. Jude – November 17th 2009...

judemarrey.wordpress.com

Acorns Children’s Hospice – Jude Marrey's Blog

https://judemarrey.wordpress.com/2014/08/09/acorns-childrens-hospice-2

Jude Marrey's Blog. August 9, 2014. Acorns Children’s Hospice. To be honest, I don’t really know how we came to be involved with Acorns Children’s Hospice. It was one of many things that were happening to us in the darker days of Jude’s early years. I had actually visited their Selly Oak. Acorns also provide a couple of evenings respite at home each week – 3 hours an evening where Jude is cared for and often spoilt but people who love what they do. Acorns keeps giving to us and families like us but 2/3rd...

judemarrey.wordpress.com

Black Country Day – Jude Marrey's Blog

https://judemarrey.wordpress.com/2014/07/13/black-country-day

Jude Marrey's Blog. July 13, 2014. Over the last 7 months dad has been busy helping to set up the very first Black Country Festival and here I am flying the flag for July 14th’s Black Country Day. There’s a picture of dad doing what he does best here. This entry was posted in Jude's Story. All for a good cause…. Acorns Children’s Hospice →. Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. Address never made public). An Introduction to Jude.

judemarrey.wordpress.com

ianmarrey – Jude Marrey's Blog

https://judemarrey.wordpress.com/author/ianmarrey

Jude Marrey's Blog. November 19, 2015. A flood to a trickle…. When Jude was first diagnosed and throughout those first few years this blog was my place to come and dump our story, his story. It was really meant for friends and family so I didn’t have to say the same things over and over – when Jude was going through something this was the place to find out what was going on and how he was. Sang, laughed, ran, walked, swam, ate, joked, gave, cooked, made, worked, played, bought, came, danced, helped, smil...

judemarrey.wordpress.com

August 2014 – Jude Marrey's Blog

https://judemarrey.wordpress.com/2014/08

Jude Marrey's Blog. August 9, 2014. Acorns Children’s Hospice. To be honest, I don’t really know how we came to be involved with Acorns Children’s Hospice. It was one of many things that were happening to us in the darker days of Jude’s early years. I had actually visited their Selly Oak. Acorns also provide a couple of evenings respite at home each week – 3 hours an evening where Jude is cared for and often spoilt but people who love what they do. Acorns keeps giving to us and families like us but 2/3rd...

judemarrey.wordpress.com

September 2014 – Jude Marrey's Blog

https://judemarrey.wordpress.com/2014/09

Jude Marrey's Blog. September 21, 2014. One in the bank…. Today I put a half marathon in the bank for three reasons. To set a PB as it is the furthest I have ever run so by default a personal best, it gives me something to aim for. As insurance in case anything happens in the next few weeks to prevent me running the Birmingham half marathon. And finally, because I could. Posted in Jude's Story. September 5, 2014. From Great Oak Trees Come Little Acorns…. Over the years we have moved from having one day r...

judemarrey.wordpress.com

One in the bank…. – Jude Marrey's Blog

https://judemarrey.wordpress.com/2014/09/21/one-in-the-bank

Jude Marrey's Blog. September 21, 2014. One in the bank…. Today I put a half marathon in the bank for three reasons. To set a PB as it is the furthest I have ever run so by default a personal best, it gives me something to aim for. As insurance in case anything happens in the next few weeks to prevent me running the Birmingham half marathon. And finally, because I could. This entry was posted in Jude's Story. From Great Oak Trees Come Little Acorns…. Happy Birthday and a potted history →. Get every new p...

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Patrick's News Blog

Wednesday, 17 November 2010. I know, I know. I'm getting really bad at updating Paddy's blog! We had a fab summer with family and friends though, hopefully the piccies say it all xxx. Bean bag seat which will give him some comfort at home rather than being plonked on the floor all the time! With all that said I have to say a massive thanks to all those who sponsored us and gave there time and energy on the day, I am humbled and honoured that we have so many great friends and family. Friday, 16 July 2010.

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