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What is C.I.P.O. Funding Research To Save Lives. We fund research into Chronic Intestinal Pseudo Obstruction, Severe Dysmotility and resultant Intestinal Failure, as well as supporting patients. Help us continue our work – click below to find out how. What is C.I.P.O? CIPO is a disorder of the digestive system (also known as a motility disorder) that effects the movement of contents through the intestinal tract. Find out more by clicking below. About P.O.R.T. Click below to find out more. August 20, 2015.

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What is C.I.P.O. Funding Research To Save Lives. We fund research into Chronic Intestinal Pseudo Obstruction, Severe Dysmotility and resultant Intestinal Failure, as well as supporting patients. Help us continue our work – click below to find out how. What is C.I.P.O? CIPO is a disorder of the digestive system (also known as a motility disorder) that effects the movement of contents through the intestinal tract. Find out more by clicking below. About P.O.R.T. Click below to find out more. August 20, 2015.
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PORT | | port-charity.org.uk Reviews

https://port-charity.org.uk

What is C.I.P.O. Funding Research To Save Lives. We fund research into Chronic Intestinal Pseudo Obstruction, Severe Dysmotility and resultant Intestinal Failure, as well as supporting patients. Help us continue our work – click below to find out how. What is C.I.P.O? CIPO is a disorder of the digestive system (also known as a motility disorder) that effects the movement of contents through the intestinal tract. Find out more by clicking below. About P.O.R.T. Click below to find out more. August 20, 2015.

INTERNAL PAGES

port-charity.org.uk port-charity.org.uk
1

Ruby Story

http://www.port-charity.org.uk/Ruby_Story.html

Ruby Skye Johnson was born on 6. In her first year of life she had 18 hospital admissions including a 2 month admission which included many tests to try and get to the root of the problem. And her personality really does just shine! Dedicating ourselves to Ruby means she requires 24 hour care. A shining star and we are so amazed that we are her parents! Lucy and Alan Johnson.

2

Emily Story

http://www.port-charity.org.uk/Emily_Story.html

Our beautiful Emily was born on 21st March 2003, the hospital visits. Started pretty much straight away. Emily was a “sicky” baby and wasn’t. Interested in feeding, She always seemed to be underweight, lots of. Coughs and colds and infections. At 5 weeks Emily bled heavily from her. Bowel, we were transferred to The Royal London Hospital, initially it was. Thought that Emily had an intussuseption – where the bowel folds in on. Itself. Eventually it was concluded that it was caused by a milk allergy,.

3

Lucys Story

http://www.port-charity.org.uk/Lucys_Story.html

4

Lukies Story

http://www.port-charity.org.uk/Lukies_Story.html

Luke spent the next 4 months in the hospital and had 2 more bowel surgeries and had a G-tube placed. The first year was spent more time in the hospital than at home. He had several blood infections and became dehydrated easily. Today Lukie has a broviac to receive TPN and antibiotics, G-tube, and an ileostomy. He has had many hospitalizations and countless blood infections. He is a very happy 3 year old and lives life to the fullest!

5

What is CIPS

http://www.port-charity.org.uk/What_is_CIPS.html

What is Chronic Intestinal Pseudo-Obstruction? CIPS is a disorder of the digestive system (also known as a motility disorder) that effects the movement of contents through the intestinal tract. Although it usually affects the small intestine and large bowel, some people experience difficulties linked to their oesophagus and/or stomach. The expression ‘pseudo-obstruction’ is used to describe the disorder because patients have symptoms usually associated with an obstruction somewhere in...

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lucy-watts.co.uk lucy-watts.co.uk

Record of Achievements « Lucy's Light

http://www.lucy-watts.co.uk/p/record-of-achievements.html

An insight into life with a chronic, life limiting illness and the obstacles I have to overcome, as well as posts on health, disability and related topics. History of Charity Work. How You Can Help. Childrens hospice week (1). Dreams Come True (4). End of life (5). Familial adenomatous polyposis (1). Friends for Life (3). Health outcomes forum (2). Life after death (1). My last summer (1). Personal health budget (2). Pros and cons (1). Quality of life (45). Rest in Pixels (2). Share a star (2). To go to ...

daisypalmertrust.co.uk daisypalmertrust.co.uk

Daisy Palmer Trust: Friends of the Trust. Businesses and people who have given their time.

http://daisypalmertrust.co.uk/friends.php

Friends of the Trust. Friends of the Trust. Below are links to various business and individuals who have supported Daisy and the Trust. Beach Cafe and BBQ - Salcombe, Devon. Daisy's favourite place in the whole world! If you ever visit, be sure you tell Mr and Mrs Winking Prawn you are a friend of Daisy. The Party Man Company. The charity that funds research into C.I.P.S. and raise public and professional awareness into this serious and sometimes fatal illness. Lime BDS Garage Doors.

rarecareuk.org rarecareuk.org

Specific Rare Disease Charities - Rare Care UK

http://rarecareuk.org/other-support

General Rare Disease Charities. Specific Rare Disease Charities. General Rare Disease Charities. Specific Rare Disease Charities. Medical and Scientific Advisory Board. Specific Rare Disease Charities. Please see if there is a charity specific to your disease of interest before contacting us. If there is a rare disease that we are missing, or this table needs updating in any way, please contact us. Climb National Information Centre. Addisons Disease Self Help Group. The Eye Care Trust. The leading charit...

lucy-watts.co.uk lucy-watts.co.uk

How You Can Help « Lucy's Light

http://www.lucy-watts.co.uk/p/how-you-can-help.html

An insight into life with a chronic, life limiting illness and the obstacles I have to overcome, as well as posts on health, disability and related topics. History of Charity Work. How You Can Help. Childrens hospice week (1). Dreams Come True (4). End of life (5). Familial adenomatous polyposis (1). Friends for Life (3). Health outcomes forum (2). Life after death (1). My last summer (1). Personal health budget (2). Pros and cons (1). Quality of life (45). Rest in Pixels (2). Share a star (2). They trai...

association-poic.fr association-poic.fr

Association des Poic - Liens utiles

http://www.association-poic.fr/liens.php

Collectif interassociatif sur la santé. Site du service public. Maison départementale des personnes handicapées : Pour trouver l’adresse de votre MDPH. Portail du Centre des maladies rares digestives. Retrouvez sur le site d'Orphanet toutes les informations sur les maladies rares, les médicaments orphelins et les services experts. L'association des POIC en Angleterre. 2es Assises Nationales des POIC à l'hôpital Robert Debré (Paris). Ce site respecte les principes de la charte HONcode.

lucy-watts.co.uk lucy-watts.co.uk

Need Support? « Lucy's Light

http://www.lucy-watts.co.uk/p/need-support.html

An insight into life with a chronic, life limiting illness and the obstacles I have to overcome, as well as posts on health, disability and related topics. History of Charity Work. How You Can Help. Childrens hospice week (1). Dreams Come True (4). End of life (5). Familial adenomatous polyposis (1). Friends for Life (3). Health outcomes forum (2). Life after death (1). My last summer (1). Personal health budget (2). Pros and cons (1). Quality of life (45). Rest in Pixels (2). Share a star (2). I am a me...

gigs4charity.org gigs4charity.org

Charity events in London

http://www.gigs4charity.org/past-events.php

Charity of the month. Benefit Gala for P.O.R.T. - Sean Lock - 15 November 2015. Join Sean Lock and Friends for this be nefit show at Leceister Square Theatre. In aid of P.O.R.T. A charity that funds research and raises awareness of the serious and sometimes fatal disease Chronic Intestinal Psuedo –obstruction. Tickets. Survival International - Parks Need Peoples - 14 June 2015. Present ‘PARKS NEED PEOPLES’, a benefit concert at Bush Hall. Cancer Research - Laugh til it Hurts - 20 May 2015. On Wednesday 2...

gigs4charity.org gigs4charity.org

Charity events in London

http://www.gigs4charity.org/index.php

Charity of the month. Buy and sell spare gig tickets ethically. Follow us on Twitter:. Friday August 26 2016. The events listed below are only highlights of what is available, go to our current events list to see all the events that are listed. Save the Children - Laugh Til it Hurts - 13 April 2015. Presents Laugh Til it Hurts. At the Comedy Store. In aid of Save the Children. With MC Michael Legge, Jarred Christmas, John Moloney, Andrew Bird, Alistair McGowan, Ian Moore, Joe Lycett. Tickets. Englands on...

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What is C.I.P.O. Funding Research To Save Lives. We fund research into Chronic Intestinal Pseudo Obstruction, Severe Dysmotility and resultant Intestinal Failure, as well as supporting patients. Help us continue our work – click below to find out how. What is C.I.P.O? CIPO is a disorder of the digestive system (also known as a motility disorder) that effects the movement of contents through the intestinal tract. Find out more by clicking below. About P.O.R.T. Click below to find out more. August 20, 2015.

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