genesthatdontfit.blogspot.com
Genes That Don't Fit!: July 2012
http://genesthatdontfit.blogspot.com/2012_07_01_archive.html
Monday, July 23, 2012. My Great Great Grandmother who had Vascular Ehlers-Danlos Syndrome. This is my Great Great Grandmother. It is her blood line that Ehlers-Danlos came from. I have not been able to trace it further than her at this point. It was said of her that she had may problems of what they said back then was blood problems, or blood disease. I also believe that she had Mast Cell Disease as well from hearing reports about how she would get red spots all over her legs. Me about age 41. My Great G...
oreds.org
About Ehlers-Danlos Syndrome - Oregon Area Ehlers-Danlos Syndrome Support
http://www.oreds.org/about-eds.html
Oregon Area Ehlers-Danlos Syndrome Support. Ehlers-Danlos Syndrome is a group of genetic. Defects that affect a wide array of body systems, but most notably our joints in the form of subluxations (partial dislocations) and full dislocations and secondary arthritis. It is one of the Heritable Disorders of Connective Tissue, or HDTCs that some experts now think may run in as high as 2% of the general population ( Castori et al 2012. The word "syndrome" represents the myriad of seemingly unrelated symptoms.
hypermobilityhope.blogspot.com
Hypermobility Hope: Resources
http://hypermobilityhope.blogspot.com/p/resources.html
Below you will find links to resources that can help you, your doctors, family and friends to better understand HMS so that you can better treat it. I hope these resources will help you as much as they have helped me and will serve as a stepping-stone to a more healthy, pain-free, and fulfilling life. Enjoy! Joint Hypermobility Handbook - A Guide for the Issues and Management of Ehlers-Danlos Syndrome Hypermobility Type and the Joint Hypermobility Syndrome. By Dr Brad Tinkle. Link: http:/ www.amazon&...
balentine4.blogspot.com
UNBROKEN........: God's Umbrella Of Protection
http://balentine4.blogspot.com/2012/03/gods-umbrella-of-protection.html
Choosing Faith while living with Chronic Illness. That is why, for Christ's sake, I delight in weaknesses, in insults, in hardships, in persecutions, in difficulties. For when I am weak, then I am strong". Wednesday, March 28, 2012. God's Umbrella Of Protection. I took this picture as the sun was setting from my front yard. The colors of the sky are so beautiful. God makes all things wonderful! I will tell you what kind of Christian I am.a human Christian who sins and falls short of the glory of God.
balentine4.blogspot.com
UNBROKEN........: July 2012
http://balentine4.blogspot.com/2012_07_01_archive.html
Choosing Faith while living with Chronic Illness. That is why, for Christ's sake, I delight in weaknesses, in insults, in hardships, in persecutions, in difficulties. For when I am weak, then I am strong". Thursday, July 12, 2012. I know that might sound a bit strange but the church did the things Jesus and his disciples did on the night of the last supper. As I have gotten older I have stopped praying on my knees. We pray sitting, standing and with our heads bowed. Is that how you pray? A path to nowhere.
balentine4.blogspot.com
UNBROKEN........: November 2011
http://balentine4.blogspot.com/2011_11_01_archive.html
Choosing Faith while living with Chronic Illness. That is why, for Christ's sake, I delight in weaknesses, in insults, in hardships, in persecutions, in difficulties. For when I am weak, then I am strong". Wednesday, November 2, 2011. So Many Bad Seasons. I pray so hard for God to heal me. I know he can if he wants to. This bad season in my life will end eventually, right? Let us hold unswervingly to the hope we profess, for he who promised is faithful.". Links to this post. Subscribe to: Posts (Atom).
balentine4.blogspot.com
UNBROKEN........: Day 1 of Mayo Clinic
http://balentine4.blogspot.com/2012/08/day-1-of-mayo-clinic.html
Choosing Faith while living with Chronic Illness. That is why, for Christ's sake, I delight in weaknesses, in insults, in hardships, in persecutions, in difficulties. For when I am weak, then I am strong". Wednesday, August 8, 2012. Day 1 of Mayo Clinic. If you look really close you will see that the walls are marble. The floors are also. I will stick a few more photo's up so you can see some of the pretty buildings here. Thank you all for the prayers. Subscribe to: Post Comments (Atom). A path to nowhere.
genesthatdontfit.blogspot.com
Genes That Don't Fit!: October 2012
http://genesthatdontfit.blogspot.com/2012_10_01_archive.html
Sunday, October 14, 2012. My thoughts about my life now. Having Ehlers Danlos Syndrome means that many things change. Just because you can’t see the changes doesn’t mean they aren’t real. Most people don’t understand much about this disability/disease and its effects, and of those that think they know many are actually misinformed. In the spirit of informing those who wish to understand…. These are the things that I would like you to understand about me …. I still worry about school, will I get to finish...
ohtwist.com
About EDS | Oh TWIST
http://ohtwist.com/about-eds
Shining Light on a Twisted Condition. Meet Peanut, CNO. When to Suspect EDS. When Else to Suspect Ehlers-Danlos Syndrome. The BRIGHTON Diagnostic Criteria. When to Suspect MCAD. Common bendy signs of EDS. May 13, 2016: Please read my Heads Up Change Is Coming May 2016 caveat post. First before reading the following original text now – which may all be subject to great change soon, accordingly, thanks! Original post text (pre-May 2016):. Ehlers-Danlos Syndrome or EDS is the name given to a. There are seve...
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