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Princess Olivia's Journal

Saturday, October 16, 2010. Back to School with a 504 plan. CCMC Dr. Jonathan Martin and Olivia. We went for the results on Thursday. The MRI did not show anymore degeneration and she has grown about 1 1/2" since this all began! Dr Martin, the neurosurgeon who did her open biopsy, said she could wear the brace now between 4-8 hours a day, rather than all day, all the time (except for sleep). THIS means she can return to school 1/2 time,. Posted by J.C. Labels: chronic recurrent multifocal osteomylitis.

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Princess Olivia's Journal | princessoliviasjournal.blogspot.com Reviews

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Saturday, October 16, 2010. Back to School with a 504 plan. CCMC Dr. Jonathan Martin and Olivia. We went for the results on Thursday. The MRI did not show anymore degeneration and she has grown about 1 1/2 since this all began! Dr Martin, the neurosurgeon who did her open biopsy, said she could wear the brace now between 4-8 hours a day, rather than all day, all the time (except for sleep). THIS means she can return to school 1/2 time,. Posted by J.C. Labels: chronic recurrent multifocal osteomylitis.

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Princess Olivia's Journal | princessoliviasjournal.blogspot.com Reviews

https://princessoliviasjournal.blogspot.com

Saturday, October 16, 2010. Back to School with a 504 plan. CCMC Dr. Jonathan Martin and Olivia. We went for the results on Thursday. The MRI did not show anymore degeneration and she has grown about 1 1/2" since this all began! Dr Martin, the neurosurgeon who did her open biopsy, said she could wear the brace now between 4-8 hours a day, rather than all day, all the time (except for sleep). THIS means she can return to school 1/2 time,. Posted by J.C. Labels: chronic recurrent multifocal osteomylitis.

INTERNAL PAGES

princessoliviasjournal.blogspot.com

1

Princess Olivia's Journal: Hopeful: Vertebra Plana and Bone Regrowth, Back Braces

http://princessoliviasjournal.blogspot.com/2010/07/hopeful-vertebra-plana-and-bone.html

Saturday, July 24, 2010. Hopeful: Vertebra Plana and Bone Regrowth, Back Braces. People keep asking why Olivia has to wear a back brace. The short answer is to stabilize her spine. Here's the long answer:. During her open biopsy, the nerve that was causing all the pain was snipped. Between that and the initial round of steroids that pain is gone. The image below was included in the study. The boys in the study were diagnosed at the ages of 4,5,7,10 and 12. Follow up ages were 19, 25, 19, 40 and 3...Poste...

2

Princess Olivia's Journal: September 2010

http://princessoliviasjournal.blogspot.com/2010_09_01_archive.html

Tuesday, September 14, 2010. Here's a list of things we feared it could have been: bacterial osteomyelitis, Ewing sarcoma, leukemia, lymphoma, neuroblastoma metastasis, eosinophilic granuloma, Langerhans cell histiocytosis or non Langerhans cell histiocytosis. Read more about Chronic Recurrent Multifocal Osteomylitis at Bonetumor.org. Posted by J.C. Labels: chronic recurrent multifocal osteomylitis. Wednesday, September 1, 2010. The neurosurgeon would not do another open. Huge thanks to Christine from Ch...

3

Princess Olivia's Journal: Finally a diagnosis! C.R.M.O.

http://princessoliviasjournal.blogspot.com/2010/09/finally-diagnosis-crmo.html

Tuesday, September 14, 2010. Here's a list of things we feared it could have been: bacterial osteomyelitis, Ewing sarcoma, leukemia, lymphoma, neuroblastoma metastasis, eosinophilic granuloma, Langerhans cell histiocytosis or non Langerhans cell histiocytosis. Read more about Chronic Recurrent Multifocal Osteomylitis at Bonetumor.org. Posted by J.C. Labels: chronic recurrent multifocal osteomylitis. June 23, 2011 at 8:29 PM. This comment has been removed by the author. Subscribe to: Post Comments (Atom).

4

Princess Olivia's Journal: August 2010

http://princessoliviasjournal.blogspot.com/2010_08_01_archive.html

Saturday, August 14, 2010. First Infusion and Jonas Brothers Charity Softball. Road Dogs" Jonas Brothers Charity Softball. Jonas Brother's Road Dogs Tour Bus. Brighter Hope Campaign and The Jonas Brothers. The Children's Hospital has a Brighter Hope Campaign, with plans to expand the hemo/onc clinic to include private infusion rooms and 8000 feet of space (much needed). The day after her treatment, we went to New Britain to see THE JONAS BROTHERS play a charity softball game. Aredia is a bisphosphonate.

5

Princess Olivia's Journal: October 2010

http://princessoliviasjournal.blogspot.com/2010_10_01_archive.html

Saturday, October 16, 2010. Back to School with a 504 plan. CCMC Dr. Jonathan Martin and Olivia. We went for the results on Thursday. The MRI did not show anymore degeneration and she has grown about 1 1/2" since this all began! Dr Martin, the neurosurgeon who did her open biopsy, said she could wear the brace now between 4-8 hours a day, rather than all day, all the time (except for sleep). THIS means she can return to school 1/2 time,. Posted by J.C. Labels: chronic recurrent multifocal osteomylitis.

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Princess Olivia's Journal

Saturday, October 16, 2010. Back to School with a 504 plan. CCMC Dr. Jonathan Martin and Olivia. We went for the results on Thursday. The MRI did not show anymore degeneration and she has grown about 1 1/2" since this all began! Dr Martin, the neurosurgeon who did her open biopsy, said she could wear the brace now between 4-8 hours a day, rather than all day, all the time (except for sleep). THIS means she can return to school 1/2 time,. Posted by J.C. Labels: chronic recurrent multifocal osteomylitis.

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