Project Alive aims to fund the cure for Hunter Syndrome (MPS II), a rare genetic disease that is progressively debilitating and life-limiting.
http://www.projectalive.org/
TODAY'S RATING
>1,000,000
Date Range
HIGHEST TRAFFIC ON
Monday
LOAD TIME
0.5 seconds
16x16
32x32
64x64
128x128
University of Kansas
Donna Goodwin
1122 We●●●●●●●pus Rd.
Law●●●nce , Kansas, 66045
US
View this contact
University of Kansas
Donna Goodwin
1122 We●●●●●●●pus Rd.
Law●●●nce , Kansas, 66045
US
View this contact
University of Kansas
Donna Goodwin
1122 We●●●●●●●pus Rd.
Law●●●nce , Kansas, 66045
US
View this contact
BUY YOUR DOMAIN
GoDaddy.com, LLC (R91-LROR)
WHOIS : whois.publicinterestregistry.net
REFERRED :
PAGES IN
THIS WEBSITE
20
SSL
EXTERNAL LINKS
12
SITE IP
45.79.219.109
LOAD TIME
0.547 sec
SCORE
6.2
Project Alive | Give kids with Hunter Syndrome the chance to grow up | projectalive.org Reviews
https://projectalive.org
Project Alive aims to fund the cure for Hunter Syndrome (MPS II), a rare genetic disease that is progressively debilitating and life-limiting.
projectalive.org
Press - Project Alive
https://projectalive.org/press
What is Project Alive? What is Hunter Syndrome? The Story behind Project Alive. Read Messages of Hope. Supporters Around the World. Help fund a cure so these boys can grow up. Working on a Project Alive story? If you’ve got questions, we’ve got answers. Restabs alignment=”osc-tabs-left” responsive=”false” tabcolor=”#a8a8a8″ seltabcolor=”#ffffff” seltabheadcolor=”#000000″ tabhovercolor=”#9a0607″]. Restab title=”In the Media” active=”active”]. Prosper Parents Help Launch Project Alive Campaign. Every child...
Meet our Dreamers - Project Alive
https://projectalive.org/meet-our-dreamers
What is Project Alive? What is Hunter Syndrome? The Story behind Project Alive. Read Messages of Hope. Supporters Around the World. Help fund a cure so these boys can grow up. These children face Hunter Syndrome head on every day. They just need your help to reach their dream. Aiden, 3 and AJ, 2. Brothers Jayden, Logan, Bentley. Hunter, 5, Kingston, 4, Nash, 2. Help fund a cure so these boys can grow up.
What Alive Means - Project Alive
https://projectalive.org/what-alive-means
What is Project Alive? What is Hunter Syndrome? The Story behind Project Alive. Read Messages of Hope. Supporters Around the World. Help fund a cure so these boys can grow up. Help fund a cure so these boys can grow up.
The Cure for Hunter Syndrome - Project Alive
https://projectalive.org/the-cure
What is Project Alive? What is Hunter Syndrome? The Story behind Project Alive. Read Messages of Hope. Supporters Around the World. Help fund a cure so these boys can grow up. What Do We See as the Cure for Hunter Syndrome? The Hunter Syndrome community, and the leadership of Saving Case and Friends. What is Gene Therapy? Scientists then show that correcting its information content or replacing it with expression of a normal gene counterpart corrects the defect in cultured cells and improves the disease ...
Donate - Project Alive
https://projectalive.org/donate
What is Project Alive? What is Hunter Syndrome? The Story behind Project Alive. Read Messages of Hope. Supporters Around the World. Help fund a cure so these boys can grow up. Give easily using the online giving form below, or mail your check (made out to “Project Alive” or “Saving Case and Friends, Inc.”) to:. Saving Case and Friends, Inc. Thompson’s Station, TN 37179. Help fund a cure so these boys can grow up.
TOTAL PAGES IN THIS WEBSITE
20
Project Alive is HERE! | Here's Jack!
https://heresjack.com/2015/06/10/project-alive-is-here
Come follow my journey…. Project Alive is HERE! This entry was posted on June 10, 2015, in Uncategorized. And tagged Gene Therapy. Saving Case and Friends. My only wish for Jack Teagan is to be ALIVE! Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. Address never made public). You are commenting using your WordPress.com account. ( Log Out. You are commenting using your Twitter account. ( Log Out. Notify me of new comments via email.
What being ALIVE means – Dancing with Dominic
https://dancingwithdominic.com/2015/06/13/what-being-alive-means-to-us
FAITH, HOPE and LOVE! What being ALIVE means. Parents have dreams about what they want their children to be when they grow up. We dreamed that Dominic would be a DJ (or musician). Or maybe a baseball player. But when Dominic was 22 months old, he was diagnosed with Hunter Syndrome, a rare genetic and progressive disorder. The doctor told us we would be lucky if Dominic lived into his teenage years. Our dreams were shattered. Join the #WhenIGrowUp challenge. Visit www.ProjectAlive.org. June 13, 2015.
My (un)Planned Son - Part 2
http://myunplannedson.com/page/2
For I know the plans I have for you . to give you a future and a hope. Jer. 29:11. For I know the plans I have for you . to give you a future and a hope. Jer. 29:11. That is a word that is heard often in the world of rare disease. It’s a word that is often heard in life. Why did this happen to my child? Why would a loving God allow something this terrible? God spoke to me through […]. What item of yours would make you almost pass out of you lost it? Making it to the Lost and Found. Sometimes it is diffic...
When I Grow Up… #ProjectAlive | Cadence and Asher MPS2
http://ourlittleironmen.com/news-and-updates/when-i-grow-up-projectalive
News & Updates. Fundraising & Events. When I Grow Up… #ProjectAlive. Jun 13, 2015 News and Updates. Don’t live beyond 15 yrs old. Help our babies grow up! Here’s an easy way you can help: use the hashtag #. Tel l us with a photo what you want to be when you grow up! Has launched a very special video with the goal of raising funds for gene therapy. Please visit the site to register… it only takes a few seconds! Https:/ pages.giveforward.com/medical/page-9bnzph/. Pin It on Pinterest.
Hunter Syndrome - ArmaGen | ArmaGen
http://armagen.com/our-focus/hunter-syndrome
Solving the Blood- Brain Barrier Dilemma. Hunter syndrome is a rare, hereditary, lysosomal storage disease that primarily affects males. In people with Hunter syndrome, an enzyme called Iduronate 2-Sulfatase (IDS) is missing or does not work properly. This leads to an abnormal buildup of complex sugars in tissues throughout the body, including the skeleton, joints, brain, spinal cord, heart, spleen and liver. Hunter syndrome is also known as mucopolysaccharidosis type II, or MPS II. Video by Project Alive.
TOTAL LINKS TO THIS WEBSITE
12
Project Alignment Group – Evaluate – Plan – Execute – Achieve
Evaluate – Plan – Execute – Achieve. Scroll down to content. January 1, 2018. January 2, 2018. New year, new website. Happy New Year, 2018. Project Alignment Group is currently updating its website. Please contact Joel at joel@projectalignmentgroup.com. New year, new website. Proudly powered by WordPress.
На кухне у Алика. Alex's Kitchen.
На кухне у Алика. Alex's Kitchen. Вторник, 5 ноября 2013 г. Classic Beef Stew Суп Жаркое из Говядины. The meat should fall apart if you just look at it. And the thicker, more flavorful the sauce, the better. PREP TIME: 20 minutes. TOTAL TIME: 2 hours 50 minutes. 3 Tbsp olive oil. 2 lb cubed beef stew meat (1 1/4"). 1 med onion, diced. 3 cloves garlic, minced. 12 oz beer (pale lager). 3 1/2 c beef broth. 2 Tbsp tomato paste. 1 Tbsp Worcestershire sauce. 1 1/2 tsp sugar. 4 carrots, sliced diagonally. NUTRI...
Project: Alison Gates - Home
Materials culture change history speculation spectacle textiles text context subtext needles threads weaving looms plant animal fiber increments edges. Create a free website. Start your own free website. A surprisingly easy drag and drop site creator. Learn more.
projectalive.com
Project Alive
Project Alive | Give kids with Hunter Syndrome the chance to grow up
What is Hunter Syndrome? The hope for a cure: Gene therapy. What is Hunter Syndrome? The hope for a cure: Gene therapy. Give kids with Hunter Syndrome the chance to grow up. We believe a cure is within reach. Donate to Project Alive. Project Alive’s Path To A Cure. Fundraising for a cure. Learn More About Us. Hunter Syndrome affects real families. Project Alive (formerly Saving Case and Friends. Is a 501(c)(3) Not-for-profit, registered in the State of Tennessee, Tax ID# 46-4617970.
Project Alive & Kicking - My Empowered Pregnancy
Our Friends & Affiliates. Our Board & Teams. A Message from PAK. My Empowered Pregnancy Checklist. Mom & Baby Tracking Chart. Q & A. Favorite Pregnancy Books & More. My Empowered Pregnancy Checklist. Mom & Baby Tracking Chart. Mantener Rastreo de Mamá y Bebé. Donate to Team PAK. Or be a runner on our team for the 41st Annual Cooper River Bridge Run. Please help us Reach Our Goal! My Empowered Pregnancy Checklist. Tracking Chart Mom and Baby. Mantener Rastreo Mamá y Bebé. Introduce our mobile app ME Preg.
Project Aliyah | Making B'nai Brith Accessible for All
Making B'nai Brith Accessible for All. Skip to primary content. Skip to secondary content. Our First 100 Years. Despite the challenge, a few devoted members kept their beloved temple alive. Little by little, new members began to join, intrigued by the beautiful building and drawn by the older members’ warm welcome and combination of traditional prayer and progressive thought. The stately building, however, has not seen an equivalent revitalization…not yet. 2015 - Project Aliyah. Weaver II by WP Weaver.
ProjecTalk
Friday, March 12, 2010. The Next Big Shift In the Collaboration Paradigm. Imagine being able to send out a single message to a large group of people to solicit a yes or no answer, or to pick one option out of list of several options – and have that single message track all the responses for you in one quick view. Imagine being able to hold a debate – and allowing everyone invited to the debate to weigh in with their opinions – within the container of a single message. Not any of those means of collaborat...
projectalk.com
The domain projectalk.com is for sale. To purchase, call Afternic.com at 1 781-373-6847 or 855-201-2286. Click here for more details.
ProjecTalk | A discussion site for all IT professionals, not just code heads
Fred Brill is currently a Systems Engineer for a major health benefits company in Canada. Over the course of his twenty years in the IT industry, Fred has held the positions of customer service, software developer, product manager, development team manager, project manager, technical engineer, and systems architect. The Next Big Shift In the Collaboration Paradigm. March 13, 2010 — Fred Brill. No, I am not talking about a web meetings or video conference calls. This is more permanent. It’s ...And I am no...
SOCIAL ENGAGEMENT