projectcuresma.org

smaoutcomes.org

cmap

http://smaoutcomes.org/hammersmith_manual/MHFMS_manual.php

Gross motor and fine motor module directions. Item 1: Floor/chair sitting. Lift up your hands while I count to three". Lift your hands up to the sky while I count to three". Lift your arms up as high as you can". Can you reach this high? Can you take your elbows away from your belly (if their arms are resting on their trunk)? NOTE: If there is no space between the arms and trunk, make sure the arms are only resting lightly and not fixing for stability against the trunk. If requires 2 hand support to sit.

csma.org.ua

Children with Spinal Muscular Atrophy

http://csma.org.ua//index.html

Дети со спинальной мышечной атрофией. Впервые на нашем рынке стали доступны вакуумные подушки и изделия для коррекции положения. В выставочном зале вы можете ознакомится с каталогом, попробовать готовое изделие, получить консультацию и сделать заказ. Фонд обращается ко всем членам Фонда, участникам Реестра пациентов со СМА, неравнодушным оказать финансовую помощь. Мы делаем все, но без вашей помощи не обойтись. Можно воспользоваться он-лайн формой платежа в любой валюте. We sincerely thank all recognized...

smaoutcomes.org

mune

http://smaoutcomes.org/hammersmith_manual/mune.php

Preparation of skin and electrode placement. Criteria for determing ASA status. Content currently being updated. Check back soon. All funding and support for this project was provided by FSMA. Web development and production by Kathryn Swoboda and Benjamin Chisum of the University of Utah Pediatric Motor Disorders Research Program. To foster collaboration within the SMA community.

smaoutcomes.org

Outcomes modules

http://smaoutcomes.org/hammersmith_manual/mhfms_extend.html

Gross motor and fine motor module directions. Gross motor test module. All funding and support for this project was provided by FSMA. Web development and production by Kathryn Swoboda and Benjamin Chisum of the University of Utah Pediatric Motor Disorders Research Program. To foster collaboration within the SMA community.

smaoutcomes.org

cmap

http://smaoutcomes.org/hammersmith_manual/equipment_needed.html

Gross motor and fine motor module directions. Items are the only items needed for the MHFMS; all other items are needed for the Extend modules. A blue mat works best if you plan on taping your assessments. 1 4' X 6' high density mat (or a plinth with a medium to high density mat covering). 3 Athletic Arm band - 2 (not required, but will help to easily distinguish left from right during testing). 5 Child and adolescent adjustable sized benches or chairs of various heights to fit individual being tested.

smaoutcomes.org

cmap

http://smaoutcomes.org/hammersmith_manual/general_directions.html

Gross motor and fine motor module directions. Gross motor and fine motor module directions. 1 All tests should be performed in an area that has good lighting and is free of distractions. Tests may be video taped. 2 Subject should wear bathing suit (preferred) or shorts and short sleeve or sleeveless T-shirt. 3 Place athletic armband on right wrist and right ankle. These should stay on for the duration of testing and will assist the evaluator in distinguishing right from left sides for several tasks.

smaoutcomes.org

cmap

http://smaoutcomes.org/hammersmith_manual/links.html

Gross motor and fine motor module directions. Links to groups directly involved in this project:. Links to SMA Research Registry and Outcome Related Research:. SMA Summit on Drug Development, Session 9: Endpoints for SMA Clinical Trials. Links to Patient Advocacy Groups. All funding and support for this project was provided by FSMA. Web development and production by Kathryn Swoboda and Benjamin Chisum of the University of Utah Pediatric Motor Disorders Research Program.

smaoutcomes.org

cmap

http://smaoutcomes.org/hammersmith_manual/cmap.php

Documentation of normal limb temperature. Preparation of skin and electrode placement. Electrode placement and recording. Troubleshooting for electrical interferences. Maximum CMAP Protocol For Use In Multicenter Clinical Studies and Trials. Documentation of normal limb temperature. Preparation of skin and electrode and stimulator placement. Panel 1: Modified figure from Anatomic Guide for the Electromyographer Charles C. Thomas, Publisher, 1980, p4. Electrode placement and recording techniques:. You can...

smaoutcomes.org

Outcomes modules

http://smaoutcomes.org/hammersmith_manual/modules.html

Gross motor and fine motor module directions. MHFMS-Extend Fine motor test module. MHFMS-Extend Gross motor test module. MHFMS-Extend Timed tests of function module. All funding and support for this project was provided by FSMA. Web development and production by Kathryn Swoboda and Benjamin Chisum of the University of Utah Pediatric Motor Disorders Research Program. To foster collaboration within the SMA community.