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Holly's journey

My daughter, Holly, has a condition called Hydranencephaly. This is a journal of us, our lives and her journey. Holly Grace - birth story. Wednesday, February 22. Up and downs of the last few months. What a journey we have been on in the last few months! I'm really not sure if at the time I last posted Holly had her PEG insertion. Anyway, in September 2011 she had her PEG inserted and her hips released. She recovered really well from that. That was until about a month ago. I had sent L home for some slee...

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Holly's journey | prue-hollygrace.blogspot.com Reviews
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My daughter, Holly, has a condition called Hydranencephaly. This is a journal of us, our lives and her journey. Holly Grace - birth story. Wednesday, February 22. Up and downs of the last few months. What a journey we have been on in the last few months! I'm really not sure if at the time I last posted Holly had her PEG insertion. Anyway, in September 2011 she had her PEG inserted and her hips released. She recovered really well from that. That was until about a month ago. I had sent L home for some slee...
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1 holly's journey
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6 since june
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9 new website
10 wwwhollyswheels com
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Holly's journey | prue-hollygrace.blogspot.com Reviews

https://prue-hollygrace.blogspot.com

My daughter, Holly, has a condition called Hydranencephaly. This is a journal of us, our lives and her journey. Holly Grace - birth story. Wednesday, February 22. Up and downs of the last few months. What a journey we have been on in the last few months! I'm really not sure if at the time I last posted Holly had her PEG insertion. Anyway, in September 2011 she had her PEG inserted and her hips released. She recovered really well from that. That was until about a month ago. I had sent L home for some slee...

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prue-hollygrace.blogspot.com prue-hollygrace.blogspot.com
1

Holly's journey: January 2011

http://prue-hollygrace.blogspot.com/2011_01_01_archive.html

My daughter, Holly, has a condition called Hydranencephaly. This is a journal of us, our lives and her journey. Holly Grace - birth story. Friday, January 28. A sneak peak into yesterday. Some days the emotions of everything just take over, so let me run through a sneak peak of yesterday and let you know how it all went. Some days I think I'm more tired because I've had so many emotions that doing anything physical, its very very draining some days. Your life hasn't begun yet - just you wait! About two y...

2

Holly's journey: Hyrdranencephaly

http://prue-hollygrace.blogspot.com/p/hyrdranencephaly.html

My daughter, Holly, has a condition called Hydranencephaly. This is a journal of us, our lives and her journey. Holly Grace - birth story. I have taken this directly from the hydranencephaly website. Hydranencephaly is considered to be an extreme form of porencephaly (a rare disorder characterized by a cyst or cavity in the cerebral hemispheres) and may be caused by vascular infections or traumatic disorders after the 12th week of pregnancy. (NINDS). Hydrocephalus: Hydrocephalus is often one of the first...

3

Holly's journey: February 2012

http://prue-hollygrace.blogspot.com/2012_02_01_archive.html

My daughter, Holly, has a condition called Hydranencephaly. This is a journal of us, our lives and her journey. Holly Grace - birth story. Wednesday, February 22. Up and downs of the last few months. What a journey we have been on in the last few months! I'm really not sure if at the time I last posted Holly had her PEG insertion. Anyway, in September 2011 she had her PEG inserted and her hips released. She recovered really well from that. That was until about a month ago. I had sent L home for some slee...

4

Holly's journey: September 2011

http://prue-hollygrace.blogspot.com/2011_09_01_archive.html

My daughter, Holly, has a condition called Hydranencephaly. This is a journal of us, our lives and her journey. Holly Grace - birth story. Wednesday, September 7. Hard to think its been THAT long! So much has happened! She is doing AWESOME! We've been in and out of hospital a few times, she's had a PEG put in and her hips operated on. The PEG is fantastic! As a general rule, we are ace! Subscribe to: Posts (Atom). Here is the link to hydranencephaly.com. View my complete profile. The halls of insanity.

5

Holly's journey: June 2011

http://prue-hollygrace.blogspot.com/2011_06_01_archive.html

My daughter, Holly, has a condition called Hydranencephaly. This is a journal of us, our lives and her journey. Holly Grace - birth story. Wednesday, June 1. I just had to put this out there - I'm not ready to make it really well known yet - hence not on my facebook yet, but I've done us up a website to help us raise money for the new car I'm dreaming of. You can't google it yet, but if you type. Into address the bar it comes up! I'm a bit excited about it all! Subscribe to: Posts (Atom).

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Journey of the Bees: "Believe in the Impossible!": March 2015

http://braydenalexanderfoundation.blogspot.com/2015_03_01_archive.html

Blog created and maintained by Brayden Alexander Global Foundation for Hydranencephaly, Inc. which does business as Global Hydranencephaly Foundation; a registered 501c3 nonprofit organization supporting families across the globe who have been given a diagnosis of hydranencephaly. Friday, March 27, 2015. Fact-BUZZ Friday: Quality of LIfe is important. at EVERY stage! As a reminder, here is one amazing video. if YOU'RE happy and you know it - clap your hands! Posted by Alicia Harper. Friday, March 20, 2015.

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Journey of the Bees: "Believe in the Impossible!": November 2014

http://braydenalexanderfoundation.blogspot.com/2014_11_01_archive.html

Blog created and maintained by Brayden Alexander Global Foundation for Hydranencephaly, Inc. which does business as Global Hydranencephaly Foundation; a registered 501c3 nonprofit organization supporting families across the globe who have been given a diagnosis of hydranencephaly. Sunday, November 30, 2014. Is everywhere - literally. If you are a big promoter of small businesses - which WE are! Cyber Monday is Black Friday. 160;for those who would rather avoid the crowds. November 25, 2014. 3 You can par...

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Journey of the Bees: "Believe in the Impossible!": BUZZ: Happy 10th Bee-Day

http://braydenalexanderfoundation.blogspot.com/2015/05/buzz-happy-10th-bee-day.html

Blog created and maintained by Brayden Alexander Global Foundation for Hydranencephaly, Inc. which does business as Global Hydranencephaly Foundation; a registered 501c3 nonprofit organization supporting families across the globe who have been given a diagnosis of hydranencephaly. Saturday, May 9, 2015. BUZZ: Happy 10th Bee-Day. Posted by Johnny's Mommy. We love to hear from our audience - share your comments with us here or join us on Facebook! Subscribe to: Post Comments (Atom). Put Us in your Inbox.

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Journey of the Bees: "Believe in the Impossible!": July 2014

http://braydenalexanderfoundation.blogspot.com/2014_07_01_archive.html

Blog created and maintained by Brayden Alexander Global Foundation for Hydranencephaly, Inc. which does business as Global Hydranencephaly Foundation; a registered 501c3 nonprofit organization supporting families across the globe who have been given a diagnosis of hydranencephaly. Wednesday, July 30, 2014. BUZZ: Happy Heavenly Bee-Day! Posted by Johnny's Mommy. BUZZ: Happy Heavenly Bee-Day! Posted by Johnny's Mommy. Monday, July 28, 2014. BUZZ: Happy Heavenly Birthday! Posted by Johnny's Mommy. He’...

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Journey of the Bees: "Believe in the Impossible!": Happy Mother's Day!

http://braydenalexanderfoundation.blogspot.com/2015/05/happy-mothers-day.html

Blog created and maintained by Brayden Alexander Global Foundation for Hydranencephaly, Inc. which does business as Global Hydranencephaly Foundation; a registered 501c3 nonprofit organization supporting families across the globe who have been given a diagnosis of hydranencephaly. Sunday, May 10, 2015. Posted by Alicia Harper. Labels: holiday; special needs parenting. We love to hear from our audience - share your comments with us here or join us on Facebook! Subscribe to: Post Comments (Atom). Turks and...

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Journey of the Bees: "Believe in the Impossible!": BUZZ: Happy 9th Birthday!

http://braydenalexanderfoundation.blogspot.com/2015/05/buzz-happy-9th-birthday.html

Blog created and maintained by Brayden Alexander Global Foundation for Hydranencephaly, Inc. which does business as Global Hydranencephaly Foundation; a registered 501c3 nonprofit organization supporting families across the globe who have been given a diagnosis of hydranencephaly. Saturday, May 2, 2015. BUZZ: Happy 9th Birthday! Posted by Johnny's Mommy. We love to hear from our audience - share your comments with us here or join us on Facebook! Subscribe to: Post Comments (Atom). Put Us in your Inbox.

braydenalexanderfoundation.blogspot.com braydenalexanderfoundation.blogspot.com

Journey of the Bees: "Believe in the Impossible!": BUZZ: Happy Heavenly Birthday

http://braydenalexanderfoundation.blogspot.com/2015/05/buzz-happy-heavenly-birthday.html

Blog created and maintained by Brayden Alexander Global Foundation for Hydranencephaly, Inc. which does business as Global Hydranencephaly Foundation; a registered 501c3 nonprofit organization supporting families across the globe who have been given a diagnosis of hydranencephaly. Monday, May 4, 2015. BUZZ: Happy Heavenly Birthday. Posted by Johnny's Mommy. We love to hear from our audience - share your comments with us here or join us on Facebook! Subscribe to: Post Comments (Atom). Put Us in your Inbox.

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Journey of the Bees: "Believe in the Impossible!": BUZZ: National Donate Life Month

http://braydenalexanderfoundation.blogspot.com/2015/04/buzz-national-donate-life-month.html

Blog created and maintained by Brayden Alexander Global Foundation for Hydranencephaly, Inc. which does business as Global Hydranencephaly Foundation; a registered 501c3 nonprofit organization supporting families across the globe who have been given a diagnosis of hydranencephaly. Tuesday, April 28, 2015. BUZZ: National Donate Life Month. QUESTION TO ASK YOURSELF. What if you or your child could save the lives of up to 8 people? 123,318 people are waiting for an organ. 1 organ donor can save up to 8 lives.

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Journey of the Bees: "Believe in the Impossible!": April 2015

http://braydenalexanderfoundation.blogspot.com/2015_04_01_archive.html

Blog created and maintained by Brayden Alexander Global Foundation for Hydranencephaly, Inc. which does business as Global Hydranencephaly Foundation; a registered 501c3 nonprofit organization supporting families across the globe who have been given a diagnosis of hydranencephaly. Tuesday, April 28, 2015. BUZZ: National Donate Life Month. QUESTION TO ASK YOURSELF. What if you or your child could save the lives of up to 8 people? 123,318 people are waiting for an organ. 1 organ donor can save up to 8 lives.

braydenalexanderfoundation.blogspot.com braydenalexanderfoundation.blogspot.com

Journey of the Bees: "Believe in the Impossible!": BUZZ: Happy 2nd Bee-Day

http://braydenalexanderfoundation.blogspot.com/2015/05/buzz-happy-2nd-bee-day.html

Blog created and maintained by Brayden Alexander Global Foundation for Hydranencephaly, Inc. which does business as Global Hydranencephaly Foundation; a registered 501c3 nonprofit organization supporting families across the globe who have been given a diagnosis of hydranencephaly. Saturday, May 16, 2015. BUZZ: Happy 2nd Bee-Day. Posted by Johnny's Mommy. Holiday; special needs parenting. We love to hear from our audience - share your comments with us here or join us on Facebook! Put Us in your Inbox.

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Holly's journey

My daughter, Holly, has a condition called Hydranencephaly. This is a journal of us, our lives and her journey. Holly Grace - birth story. Wednesday, February 22. Up and downs of the last few months. What a journey we have been on in the last few months! I'm really not sure if at the time I last posted Holly had her PEG insertion. Anyway, in September 2011 she had her PEG inserted and her hips released. She recovered really well from that. That was until about a month ago. I had sent L home for some slee...

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