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Wordless Wednesday 8/5/15 | hopeforheather
https://hopeforheather.wordpress.com/2015/08/05/wordless-wednesday-72915
Cowden Syndrome and Lhermitte-duclos Disease are words, not sentences. I’m a Mormon. Links on Cowden Syndrome and Lhermitte-duclos Disease. Steps on how to participate in a #PTEN tweet chat. Click to share on Twitter (Opens in new window). Share on Facebook (Opens in new window). Click to email (Opens in new window). Click to share on Pinterest (Opens in new window). Click to share on Google (Opens in new window). Click to share on Tumblr (Opens in new window). Wordless Wednesday 8/12/15 ». Random acts o...
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Diagnosis | hopeforheather
https://hopeforheather.wordpress.com/diagnosis
Cowden Syndrome and Lhermitte-duclos Disease are words, not sentences. I’m a Mormon. Links on Cowden Syndrome and Lhermitte-duclos Disease. Steps on how to participate in a #PTEN tweet chat. On July 18, 2011, Dr. F. told me I had a 5 centimeter tumor in my cerebellum. And I began this blog the next day. I was then 39 years old and this blog chronicles my experiences on a road NEVER. July 18, 2011 – diagnosis of tumor. July 27, 2011 – craniotomy. Of resection of tumor. Crossed my mind brain tumor. I talke...
beatingcowdens.com
AVM | beatingcowdens
https://beatingcowdens.com/tag/avm
Punched in the Stomach…. June 14, 2016. 8230;over and over and over again. Sometimes that’s the best way I can think to describe it. There are days, so many days, when it’s like a sucker punch that takes your breath away. It’s not going to knock you to the floor. You’re stronger than that. But, man, it knocks the wind out of you. First, it’s the drive. The traffic. The hours spent headed to the appointment. THEN after all that GOOD fun, is the drive home. About the only GOOD thing that comes from all the...
beatingcowdens.com
Genetic disorder | beatingcowdens
https://beatingcowdens.com/tag/genetic-disorder
Tag Archives: Genetic disorder. On Your 13th Birthday…. August 8, 2016. August 9, 2016. As I sit to write this some time in the middle of the night, I am reminded of the early years, when so many of the middle of the night hours belonged to the two of us. Yes, Meg, I said YEARS. You struggled my girl, but your determination was evident early, like the day the NICU nurse called you feisty. She was right. And it has proven to be one of your finest and most valuable attributes. You and your tired Mommy!
hopeforheather.wordpress.com
Cowden Syndrome/LDD Contacts | hopeforheather
https://hopeforheather.wordpress.com/check-here-for-others-with-cowdens-syndrome
Cowden Syndrome and Lhermitte-duclos Disease are words, not sentences. I’m a Mormon. Links on Cowden Syndrome and Lhermitte-duclos Disease. Steps on how to participate in a #PTEN tweet chat. Beatingcowdens – Our Struggle Against Cowden’s Syndrome. Chronicles of a Lumpy Person. From The Heart Autism and PTEN. If Kids Were Fruits Then Mine Would Be Exotic. Kaitlyn’s Life 101. The Life and Times of Baby P The Sequel. What’s up Cowden. Click to share on Twitter (Opens in new window). 01/18/2013 at 5:04 am.
beatingcowdens.com
health | beatingcowdens
https://beatingcowdens.com/tag/health
July 26, 2016. About an hour ago I got off the phone with Meghan’s gynecologist. It seems we dodged another bullet. Once again we got to spend about 45 seconds in a deep breath as we were told there was no evidence of malignancy in the uterine biopsy from last Friday. There is always a “BUT…”. I’ve come to expect it now. After she spoke, she paused. I asked her why she sounded happy and hesitant at the same time. 8220;Well I just got off the phone with the pathologist…”. And her voice trailed off. And as...
hopeforheather.wordpress.com
Links on Cowden Syndrome and Lhermitte-duclos Disease | hopeforheather
https://hopeforheather.wordpress.com/what-is-lhermitte-duclos-disease
Cowden Syndrome and Lhermitte-duclos Disease are words, not sentences. I’m a Mormon. Links on Cowden Syndrome and Lhermitte-duclos Disease. Steps on how to participate in a #PTEN tweet chat. Links on Cowden Syndrome and Lhermitte-duclos Disease. Atlas of Genetics and Cytogenetics in Oncology and Haematology Lhermitte-Duclos Disease. Genetic and Rare Diseases Information Center (GARD) – Lhermitte-Duclos Disease. Neurological Society of India. Neurowiki – Gangliocytoma. Orphanet: Lhermitte Duclos Disease.
hopeforheather.wordpress.com
Sigh | hopeforheather
https://hopeforheather.wordpress.com/2015/08/04/sigh
Cowden Syndrome and Lhermitte-duclos Disease are words, not sentences. I’m a Mormon. Links on Cowden Syndrome and Lhermitte-duclos Disease. Steps on how to participate in a #PTEN tweet chat. 4 years ago today I had to have a 2nd craniotomy. To fix the CSF. Leak coming out of my incision in the back of my head. I still can’t believe I had one brain surgery let alone two. In about a week’s time. It’s unbelievable to me how much my life has changed since then. And not in a good way. 08/04/2015 at 1:29 pm.
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hopeforheather | hopeforheather
https://hopeforheather.wordpress.com/author/hopeforheather
Cowden Syndrome and Lhermitte-duclos Disease are words, not sentences. I’m a Mormon. Links on Cowden Syndrome and Lhermitte-duclos Disease. Steps on how to participate in a #PTEN tweet chat. Please check out my new storefront. I have added more shirts with a variety of colors and sayings. Each one helps me financially plus helps to bring awareness for both rare diseases I have. Thank you for your help! Click to share on Twitter (Opens in new window). Share on Facebook (Opens in new window). Click to shar...
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