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Parker's Purple Playa Power..Pounding at Juvenile Rheumatoid Arthritis

Parker's Purple Playa Power.Pounding at Juvenile Rheumatoid Arthritis. There was an error in this gadget. Friday, June 26, 2015. So Close to Death and Life Wins. We have always carried in our hearts the knowledge that systemic JA is very complex and can be dangerous. Sometimes this weight is too much to bare. So, as parents, Michael and I focus hard on the things in our lives that we can celebrate. Our two most joyful celebrations we cherish are our two boys, Logan and Parker. That night was a very long ...

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Parker's Purple Playa Power..Pounding at Juvenile Rheumatoid Arthritis | purpleplayapower.blogspot.com Reviews

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Parker's Purple Playa Power.Pounding at Juvenile Rheumatoid Arthritis. There was an error in this gadget. Friday, June 26, 2015. So Close to Death and Life Wins. We have always carried in our hearts the knowledge that systemic JA is very complex and can be dangerous. Sometimes this weight is too much to bare. So, as parents, Michael and I focus hard on the things in our lives that we can celebrate. Our two most joyful celebrations we cherish are our two boys, Logan and Parker. That night was a very long ...

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Parker's Purple Playa Power..Pounding at Juvenile Rheumatoid Arthritis | purpleplayapower.blogspot.com Reviews

https://purpleplayapower.blogspot.com

Parker's Purple Playa Power.Pounding at Juvenile Rheumatoid Arthritis. There was an error in this gadget. Friday, June 26, 2015. So Close to Death and Life Wins. We have always carried in our hearts the knowledge that systemic JA is very complex and can be dangerous. Sometimes this weight is too much to bare. So, as parents, Michael and I focus hard on the things in our lives that we can celebrate. Our two most joyful celebrations we cherish are our two boys, Logan and Parker. That night was a very long ...

INTERNAL PAGES

purpleplayapower.blogspot.com

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Parker's Purple Playa Power..Pounding at Juvenile Rheumatoid Arthritis: Challenges, By Parker

http://purpleplayapower.blogspot.com/2014/09/challenges-by-parker.html

Parker's Purple Playa Power.Pounding at Juvenile Rheumatoid Arthritis. Sunday, September 28, 2014. Challenges, By Parker. One challenge I think I might face in reaching my life goals is surgery. My goal in life is to “make my arthritis hurt less”. Watches TV with me. Systemic on-set juvenile arthritis. September 28, 2014 at 2:28 PM. My goodness Parker, you are an inspiration to everyone! You are such a strong young man to keep on pushing beyond your pain, or should I say Pounding for a cure! November 2, ...

2

Parker's Purple Playa Power..Pounding at Juvenile Rheumatoid Arthritis: From the Voices of Families….

http://purpleplayapower.blogspot.com/2012/10/from-voices-of-families.html

Parker's Purple Playa Power.Pounding at Juvenile Rheumatoid Arthritis. Friday, October 26, 2012. From the Voices of Families…. Recently I asked families of children with Juvenile Arthritis, if there was anything they wanted the general public to know about JA what would it be…This list below is a paraphrased summary of their very heartfelt responses. Just a window into the lives we live, thoughts we have, and strength our children possess. From the voices of families…. It hurts, even when smiling. We als...

3

Parker's Purple Playa Power..Pounding at Juvenile Rheumatoid Arthritis: Trying Not to Let Fear Take Hold...Trusting All Will Be OK

http://purpleplayapower.blogspot.com/2012/10/trying-not-to-let-fear-take.html

Parker's Purple Playa Power.Pounding at Juvenile Rheumatoid Arthritis. Tuesday, October 9, 2012. Trying Not to Let Fear Take Hold.Trusting All Will Be OK. I broke the news to Parker and he totally withdrew and told me to leave him alone. So I honored his request…as hard as it was, because this was not his typical reaction to bad news…. She said he could just listen today. He said “ok”, muted his mic, and burst into tears. All I could do was hug him…. He is scared of regressing even more. During our last ...

4

Parker's Purple Playa Power..Pounding at Juvenile Rheumatoid Arthritis: Entering Back Into the Real World: A Quick Update on Parker

http://purpleplayapower.blogspot.com/2015/03/entering-back-into-real-world-quick.html

Parker's Purple Playa Power.Pounding at Juvenile Rheumatoid Arthritis. Wednesday, March 18, 2015. Entering Back Into the Real World: A Quick Update on Parker. We will try to update more this weekend. For now, we thank everyone for the out-pour of love and we ask that all of you please either sign-up to walk with us on May 2 (it’s free to register) and/or please consider making a donation in honor of Parker and Logan. Click here to get to the walk page. Kids get arthritis too. April 11, 2015 at 1:44 PM.

5

Parker's Purple Playa Power..Pounding at Juvenile Rheumatoid Arthritis: So Close to Death and Life Wins

http://purpleplayapower.blogspot.com/2015/06/so-close-to-death-and-life-wins.html

Parker's Purple Playa Power.Pounding at Juvenile Rheumatoid Arthritis. Friday, June 26, 2015. So Close to Death and Life Wins. We have always carried in our hearts the knowledge that systemic JA is very complex and can be dangerous. Sometimes this weight is too much to bare. So, as parents, Michael and I focus hard on the things in our lives that we can celebrate. Our two most joyful celebrations we cherish are our two boys, Logan and Parker. We have been so very blessed with all they bring to our lives.

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thesloansiblings-myjraheros.blogspot.com

The Sloan Siblings JRA Journey: November 2012

http://thesloansiblings-myjraheros.blogspot.com/2012_11_01_archive.html

The Sloan Siblings JRA Journey. Many of our close friends and family often ask "how are the kids doing"? Most people do not understand what Juvenile Rheumatoid Arthritis (JRA) really is and how it deeply affects Jake, Hannah, and our entire family! Sometimes all I can do is walk away, hide my tears, and just pretend all is okay! We share this JRA Journey with you and hope you can pray for Jake and Hannah and the other 300,000 children who suffer from JRA. My JRA Heros- Jake and Hannah. We thought Juvenil...

thesloansiblings-myjraheros.blogspot.com

The Sloan Siblings JRA Journey: Don't Stop Believin......

http://thesloansiblings-myjraheros.blogspot.com/2012/03/dont-stop-believin.html

The Sloan Siblings JRA Journey. Many of our close friends and family often ask "how are the kids doing"? Most people do not understand what Juvenile Rheumatoid Arthritis (JRA) really is and how it deeply affects Jake, Hannah, and our entire family! Sometimes all I can do is walk away, hide my tears, and just pretend all is okay! We share this JRA Journey with you and hope you can pray for Jake and Hannah and the other 300,000 children who suffer from JRA. My JRA Heros- Jake and Hannah. For Spring JA Fami...

junebugsbattlewithjra.blogspot.com

Amelia June's battle with JIA: REMISSION!!!!

http://junebugsbattlewithjra.blogspot.com/2013/12/remission.html

Tuesday, December 31, 2013. Friday we had a rheumy appointment and we've officially been classified as being in unmedicated remission! I wasn't expecting this until next month, I thought that the timeline was the same as medicated remission, 6 months after stopping a medication. More good news is she's nearing 30 pounds and is in the 50th percentile for her weight and we don't have to go back to see the rheumy for 6 months! 65279;. It's like a whole new beginning, we can just be. Amelia June survived ...

thesloansiblings-myjraheros.blogspot.com

The Sloan Siblings JRA Journey: August 2011

http://thesloansiblings-myjraheros.blogspot.com/2011_08_01_archive.html

The Sloan Siblings JRA Journey. Many of our close friends and family often ask "how are the kids doing"? Most people do not understand what Juvenile Rheumatoid Arthritis (JRA) really is and how it deeply affects Jake, Hannah, and our entire family! Sometimes all I can do is walk away, hide my tears, and just pretend all is okay! We share this JRA Journey with you and hope you can pray for Jake and Hannah and the other 300,000 children who suffer from JRA. My JRA Heros- Jake and Hannah. We can't possibly ...

juvenilearthritis.wordpress.com

Don’t mess with mama bear | Our Life With Juvenile Arthritis

https://juvenilearthritis.wordpress.com/2012/08/23/dont-mess-with-mama-bear

Our Life With Juvenile Arthritis. Life with a chronically ill son…. Why not use our real names? I’m not Wonder Woman after all. Don’t mess with mama bear. August 23, 2012. A friend posted recently about an email she received. Apparently the sender was questioning whether my friend’s child was truly sick, while at the same time offering advice on how to treat this “imagined” illness. I will leave this up so you can read it, apologize to me, then I will delete you. Shame on you! June 9, 2013 at 2:25 pm.

juvenilearthritis.wordpress.com

Why not use our real names? | Our Life With Juvenile Arthritis

https://juvenilearthritis.wordpress.com/why-not-use-our-real-names

Our Life With Juvenile Arthritis. Life with a chronically ill son…. Why not use our real names? Why not use our real names? So you may have been wondering why I don’t use our real names (or if not you are now). After all, it’s not like we’re doing anything illegal or immoral. It’s not even mildly scandalous. Certainly nothing to gossip about. Some days that’s all you have. Why not use our real names? June 6, 2012 at 10:19 pm. I so wish you would come back to blog! June 8, 2012 at 6:51 pm. You are comment...

scorpi07.blogspot.com

I Stand All Amazed: May 2013

http://scorpi07.blogspot.com/2013_05_01_archive.html

I Stand All Amazed. Watching time fly has never been so miraculous. Thursday, May 2, 2013. The Tri-Valley Arthritis Walk. Is a few days away and I decided that Team Emma should show some unity by dressing alike. Em's favorite color is pink, so I asked everyone to wear a pink shirt if they have one. Then it occurred to me that neither Barry nor Liam have pink shirts. What to do? I did a little online research, watched this video. And tested my luck. Please ignore my backyard.). I'm so proud of this one!

yehfamilyhappenings.blogspot.com

Yeh Family Happenings: May 2011

http://yehfamilyhappenings.blogspot.com/2011_05_01_archive.html

Tuesday, May 31, 2011. Coffee in the morning. The sound of raindrops on the roof. The smell of fresh lilies. Catching up with friends. Waking up with my babies. Evenings at the park with my girl. Today I have been thinking a a lot about sweet Peyton and her family. The doctors confirmed yesterday that her cancer is not treatable. How important is.having fine china? How old your kid is when he/she sleeps through the night? In the big scheme of things? Posted by Yeh Family. Monday, May 30, 2011. Because we...

bevinsadventureswithjra.blogspot.com

Bevin’s Adventures with Juvenile Rheumatoid Arthritis: May 2011

http://bevinsadventureswithjra.blogspot.com/2011_05_01_archive.html

Monday, May 16, 2011. The walk is over.this year's anyway. This past Saturday, May 14. Was the Arthritis Walk; 27 people/kids showed up to support Bevin on the morning of! I couldn’t believe that many people showed up! Even our neighbors that lived behind us in our previous house came out! It meant so much to me to have so many people give up a few hours (and get up really early) on their Saturday to support our daughter. Place for awhile, but the tutus, water bottles, T-shirts, etc pulled us into 7.

bevinsadventureswithjra.blogspot.com

Bevin’s Adventures with Juvenile Rheumatoid Arthritis: January 2012

http://bevinsadventureswithjra.blogspot.com/2012_01_01_archive.html

Wednesday, January 25, 2012. Yesterday Bevin went in for her quarterly Ophthalmology appointment with Dr. Ruben (who is great) and she was fully cooperative (the first few appointments she would not let him exam her eyes! Everything looks good, eyes are clear and we go back in 3-4 months to do it all over again! Monday, January 16, 2012. Jumping into the New Year. We had our first Arthritis Walk meeting on the 3. And I am so excited to be getting into the full swing of this year’s walk. More updates to c...

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Parker's Purple Playa Power..Pounding at Juvenile Rheumatoid Arthritis

Parker's Purple Playa Power.Pounding at Juvenile Rheumatoid Arthritis. There was an error in this gadget. Friday, June 26, 2015. So Close to Death and Life Wins. We have always carried in our hearts the knowledge that systemic JA is very complex and can be dangerous. Sometimes this weight is too much to bare. So, as parents, Michael and I focus hard on the things in our lives that we can celebrate. Our two most joyful celebrations we cherish are our two boys, Logan and Parker. That night was a very long ...

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