sickgirlspeaks.blogspot.com
sick girl speaks!: Pure Love and Loss
http://sickgirlspeaks.blogspot.com/2011/06/pure-love-and-loss.html
Thursday, June 23, 2011. Pure Love and Loss. Emily, my dog, had died of a brain tumor one month before I went looking for a new dog. The lack of dog-ness in the house was killing me and I had waited as long as I could stand it. I knew I wanted to rescue a female, adult, small greyhound. The rescue organization said they had one they thought would be good fit. Food or else she would be sick. This was not a concern anymore. Jen ate 4 large cans of dog food that day and was thrilled by every bite...I fel...
sickgirlspeaks.blogspot.com
sick girl speaks!: Ah, the humanity!
http://sickgirlspeaks.blogspot.com/2011/05/ah-humanity.html
Thursday, May 19, 2011. Ah, the humanity! A few months ago, I was walking through the Newark, NJ airport and saw an older woman with bleached white hair, bright red lips and blue eyelids. Her clothes clung to her like a second, sequined skin. My judgmental mind began its work by saying "What is she thinking? And a smile crept onto my face. No matter who we are, we all have someone that knows us and loves us because we are all worthy of love. Even those behind bars after committing horrific crimes hav...
sickgirlspeaks.blogspot.com
sick girl speaks!: Creating Community: The Challenge
http://sickgirlspeaks.blogspot.com/2010/06/creating-community-challenge.html
Monday, June 21, 2010. Creating Community: The Challenge. What is a Community? In the context of healthcare and illness, community can mean different things to different people. For the purposes of this discussion, we will describe community as one of the following:. 1 A disease-specific or healthcare specialty group:. Examples of these might be "the cancer community" or the "hospice community". Before we explore the possible ways to be a community advocate, it is important to first understand the challe...
sickgirlspeaks.blogspot.com
sick girl speaks!: "Loving Daddy"
http://sickgirlspeaks.blogspot.com/2010/08/loving-daddy.html
Monday, August 30, 2010. If this video doesn't work for you, try clicking inside the black box or follow this link:. Loving Daddy" on YouTube. Subscribe to: Post Comments (Atom). After spending over 30 years in and out of hospitals, it dawned on me: I've had a lot of practice being a patient! After getting my first lung transplant for cystic fibrosis, I was surprised to find myself waking up in ICU with another set of donor lungs only 4 years later. 6 lungs in one lifetime? View my complete profile.
sickgirlspeaks.blogspot.com
sick girl speaks!: New Book, Big Discount
http://sickgirlspeaks.blogspot.com/2010/07/new-book-big-discount.html
Monday, July 19, 2010. New Book, Big Discount. We are the Change" is a reflection of the. Shifting healthcare culture and the new,. Savvy patient mindset. Through thoughtful. Exercises, useful information and cutting edge. Tools, this guide leads patients and families. Into strategic patient empowerment. The book is here! Get your discounted copy at. As always, thanks for all of your support! Subscribe to: Post Comments (Atom). View my complete profile. Follow Tiff on Facebook. New Book, Big Discount.
sickgirlspeaks.blogspot.com
sick girl speaks!: The "You Should Virus"
http://sickgirlspeaks.blogspot.com/2010/09/should-virus.html
Tuesday, September 14, 2010. The "You Should Virus". I have been doing some serious thinking lately! My mind is a whir with lots of things I look forward to sharing with you, my blogging buds. Two primary topics have been gallivanting through my little head these days: compassion and judgement. Two great tastes that go great together! Ok, not so much. But these are two fascinating studies in human nature, are they not? Perhaps my approach has been wrong. Perhaps, once a person is infected with the Yo...
tinasriver.blogspot.com
Tina's river: Happy Independence Day !
http://tinasriver.blogspot.com/2010/07/happy-independence-day.html
Saturday, July 3, 2010. So I haven't posted in a couple of months. Let's see Shawn only had 4 photophoresis treatments due to a glitch in insurance and at first this was a maddening turn of events but things have turned out quite nicely. Shawn's FEV1% has continued to improve with only the Azithromycin, he hovered in the 40's for over a year and now BAM, 50 and last checked he was at 55%. He feels great and looks even better. He drives me crazy nearly everyday but that's Shawn and I love him. Happy Lungi...
sickgirlspeaks.blogspot.com
sick girl speaks!: To the Caregivers
http://sickgirlspeaks.blogspot.com/2010/06/to-caregivers.html
Friday, June 25, 2010. This morning I woke up to read about a 7 year old boy who died from CF. His mother's writings about the excruciating journey grabbed me in a place so deep within, there are no words to respond. Her rawness, her honesty, her love and her sorrow were both devastating and beautiful because it all comes from a place of pure love. And how often did I say thank you? Rarely, if ever. How often did I hold their hand and ask what they needed, how they could be supported? Rarely, if ever.
sickgirlspeaks.blogspot.com
sick girl speaks!: weep for us
http://sickgirlspeaks.blogspot.com/2010/09/weep-for-us.html
Thursday, September 16, 2010. In reading this article. And watching the CNN footage today, I cried. What has happened to us and where are we going? What is this world we live in and when does this kind of insanity end? Where is all of this pain, rage, madness and victim-hood coming from? Is there any return or is is only to get worse from here? I am sad for the doctor. I am sad for the patient. I am sad for the man who thought this was an answer. I weep for us and wearily look to our future. Rachel's Wid...
sickgirlspeaks.blogspot.com
sick girl speaks!: Recognizing Culture
http://sickgirlspeaks.blogspot.com/2010/12/recognizing-culture.html
Friday, December 3, 2010. Ironic that my last post was about writer's block! I have been working through some of that with a new book I am co-writing. It's called "Getting Your House in Order" and it addresses some specific needs of African Americans facing end of life and healthcare decisions. Below is my opening thoughts about culture and how it informs us in ways we may not even recognize. I hope you are all having a healthy and happy holiday season! Much love to you and yours! Please excuse the pun&#...
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