RAFFA.INFO
RAFFAHelp Us Help Others RAFFA is dedicated to raising awareness of Friedreich's Ataxia, a neuro-muscular disease affecting 1 in every 50,000 people.
http://www.raffa.info/
Help Us Help Others RAFFA is dedicated to raising awareness of Friedreich's Ataxia, a neuro-muscular disease affecting 1 in every 50,000 people.
http://www.raffa.info/
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RAFFA | raffa.info Reviews
https://raffa.info
Help Us Help Others RAFFA is dedicated to raising awareness of Friedreich's Ataxia, a neuro-muscular disease affecting 1 in every 50,000 people.
raffa.info
Mission — RAFFA
http://www.raffa.info/mission
Join our mailing list! Join our mailing list! Our Goal Is To Raise Awareness of Friedreich's Ataxia. The organization exists to raise awareness for Friedreich's ataxia (FA), and to provide assistance to the disabled community and to improve the quality of life for those with disabilities, including FA. Your generous Support is always Appreciated. Join Our mailing list. Project Powered by Squarespace.
Our Story — RAFFA
http://www.raffa.info/our-story
Join our mailing list! Join our mailing list! We Are Committed to Helping Others. RAFFA was formed after 9 year old Katie Lynn Snead was diagnosed with FA. Following two and a half years of different doctors, various blood tests, brain MRI, and misdiagnosis Katie was finally given the life changing news when she tested positive for Friedreich’s Ataxia. Your generous Support is always Appreciated. Join Our mailing list. Project Powered by Squarespace.
What is FA? — RAFFA
http://www.raffa.info/what-is-fa
Join our mailing list! Join our mailing list! WHAT IS FRIEDREICH'S ATAXIA? Friedreich's Ataxia is a Rare Neuro-Muscular Disease Affecting 1 in 50,000 People. Friedreich’s ataxia is caused by a defect (mutation) in a gene labeled FXN. The disorder is recessive, meaning it occurs only in someone who inherits two defective copies of the gene, one from each parent. Although rare, Friedreich’s ataxia is the most common form of hereditary ataxia, affecting about 1 in every 50,000 people in the United S...Dysar...
Board — RAFFA
http://www.raffa.info/new-page
Join our mailing list! Join our mailing list! Our Board Members Actively Educate About FA. Our board is made up of a dedicated mix of talented individuals. Each member has come into contact with Friedreich's ataxia in their personal lives and have committed themselves to furthering the awareness of the disease and supporting individuals with disabilities. The RAFFA leadership team positions are all non-compensated. All proceeds go directly back into the programs RAFFA sponsors. Heather Snead, Board Member.
Events — RAFFA
http://www.raffa.info/events
Join our mailing list! Join our mailing list! RAFFA Produces Regular Events Designed to Provide Support for Those With Disabilities. RAFFA will be actively participating and fundraising in the local community partnering with other organizatons to ensure that people with disabilities are given opportunities to succeed. We hope that you join us at one of our fun, inspirational, and meaningful events that will truly make a difference in people’s lives. Come join us and Help Us Help Others. September 12, 2015.
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Raffa Accounting | Consulting | Technology
Forensic and Litigation Support. What Our Clients Say. What Our Staff Say. Raffa is a B Corp. B Corps are certified to meet rigorous, independent, and transparent social and environmental performance standards. Our nonprofit specialists provide the financial and management expertise to help our clients advance their organizational missions. Complimentary and fee-based seminars offered each month. And, make a difference! Read our annual report to learn how Raffa puts CSR into action. What Our Clients Say.
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Join our mailing list! Join our mailing list! Help Us Help Others. RAFFA is dedicated to raising awareness of Friedreich's Ataxia, a neuro-muscular disease affecting 1 in every 50,000 people. The Color Run 2017. RAFFA has had the opportunity to help people with FA. Read stories and find out more here! Read more of Our Story here. A 501(c)3 Organization Dedicated to Advancing the Awareness of Friedreich's Ataxia. What is Friedreich's Ataxia? Your generous Support is always Appreciated. RAFFA is a 501(c)3 ...
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