rare-bg.com

srazmah.blogspot.com

SOS Мucoviscidose (Cystic Fibrosis): ДЕН НА РЕДКИТЕ БОЛЕСТИ - 28.02.2015г.

http://srazmah.blogspot.com/2015/02/28022015.html

SOS Мucoviscidose (Cystic Fibrosis). Снегът продължава да вали в моята душа :-( Направихме семинар за муковисцидоза. Много лекари не дойдоха, много пациенти над 18години дойдоха. До сега познавах няколко от тях, вече познавам още толкова, но всички имат спешна нужда от качествена терапия. Тъжно е и боли! Всички имат право на достоен живот! 27 февруари, 2015. ДЕН НА РЕДКИТЕ БОЛЕСТИ - 28.02.2015г. НАЦИОНАЛЕН АЛИАНС НА ХОРАТА С РЕДКИ БОЛЕСТИ:. Абонамент за: Коментари за публикацията (Atom). Направихме семин...

rarediseaseday.org

Rare Disease Day ® 2016 - Article

http://www.rarediseaseday.org/article/rare-disease-day-2012

What is Rare Disease Day? What is a Rare Disease? Raise and join hands! What is Rare Disease Day? What is a Rare Disease? Overview of past Rare Disease Days. Raise and join hands! Sign up for updates. Fill in the form below. To sign up to the latest Rare Disease Day news! Tick to receive news from EURORDIS, organiser of Rare Disease Day. Thank you for signing up! You are almost finished. To complete the subscription process,. Please click the link in the email we just sent you! Rare Disease Day 2012.

rarediseaseday.org

Rare Disease Day ® 2016 - Article

http://www.rarediseaseday.org/article/rare-disease-day-2009

What is Rare Disease Day? What is a Rare Disease? Raise and join hands! What is Rare Disease Day? What is a Rare Disease? Overview of past Rare Disease Days. Raise and join hands! Sign up for updates. Fill in the form below. To sign up to the latest Rare Disease Day news! Tick to receive news from EURORDIS, organiser of Rare Disease Day. Thank you for signing up! You are almost finished. To complete the subscription process,. Please click the link in the email we just sent you! Rare Disease Day 2009.

rarediseaseday.org

Rare Disease Day ® 2016 - Article

http://www.rarediseaseday.org/article/rare-disease-day-2013

What is Rare Disease Day? What is a Rare Disease? Raise and join hands! What is Rare Disease Day? What is a Rare Disease? Overview of past Rare Disease Days. Raise and join hands! Sign up for updates. Fill in the form below. To sign up to the latest Rare Disease Day news! Tick to receive news from EURORDIS, organiser of Rare Disease Day. Thank you for signing up! You are almost finished. To complete the subscription process,. Please click the link in the email we just sent you! Rare Disease Day 2013.

rarediseaseday.org

Rare Disease Day ® 2016 - Article

http://www.rarediseaseday.org/article/rare-disease-day-2015

What is Rare Disease Day? What is a Rare Disease? Raise and join hands! What is Rare Disease Day? What is a Rare Disease? Overview of past Rare Disease Days. Raise and join hands! Sign up for updates. Fill in the form below. To sign up to the latest Rare Disease Day news! Tick to receive news from EURORDIS, organiser of Rare Disease Day. Thank you for signing up! You are almost finished. To complete the subscription process,. Please click the link in the email we just sent you! Rare Disease Day 2015.

rarediseaseday.org

Rare Disease Day ® 2016 - News

http://www.rarediseaseday.org/page/news/raise-and-join-your-hands-for-rare-disease-day-2015

What is Rare Disease Day? What is a Rare Disease? Raise and join hands! What is Rare Disease Day? What is a Rare Disease? Overview of past Rare Disease Days. Raise and join hands! Sign up for updates. Fill in the form below. To sign up to the latest Rare Disease Day news! Tick to receive news from EURORDIS, organiser of Rare Disease Day. Thank you for signing up! You are almost finished. To complete the subscription process,. Please click the link in the email we just sent you! Thu 05 February, 2015.

rarediseaseday.org

Rare Disease Day ® 2016 - Article

http://www.rarediseaseday.org/article/rare-disease-day-2010

What is Rare Disease Day? What is a Rare Disease? Raise and join hands! What is Rare Disease Day? What is a Rare Disease? Overview of past Rare Disease Days. Raise and join hands! Sign up for updates. Fill in the form below. To sign up to the latest Rare Disease Day news! Tick to receive news from EURORDIS, organiser of Rare Disease Day. Thank you for signing up! You are almost finished. To complete the subscription process,. Please click the link in the email we just sent you! Rare Disease Day 2010.

rarediseaseday.org

Rare Disease Day ® 2016 - United Kingdom

http://www.rarediseaseday.org/country/gb/united-kingdom

What is Rare Disease Day? What is a Rare Disease? Raise and join hands! What is Rare Disease Day? What is a Rare Disease? Overview of past Rare Disease Days. Raise and join hands! Sign up for updates. Fill in the form below. To sign up to the latest Rare Disease Day news! Tick to receive news from EURORDIS, organiser of Rare Disease Day. Thank you for signing up! You are almost finished. To complete the subscription process,. Please click the link in the email we just sent you! I will be climbing the.

burqol-rd.com

BURQOL RD

http://www.burqol-rd.com/bg.html

Добре дошли в анкетното проучване на проект BURQOL-RD, насочено към събиране на данни за социално-икономическите разходи и свързаното със здравето качество на живот на пациентите с редки болести и хората, които се грижат за тях. Тези данни ще бъдат използвани за подобряване на положението на засегнатите от редки болести чрез по-добро разбиране на техните нужди, тревоги и качество на живот. Първата част на въпросника се отнася за пациента и трябва да бъде попълнена от самия него или с помощта на друго лице.

babkuk.org

Партньори

http://www.babkuk.org/partners.html

БЪЛГАРСКА АСОЦИАЦИЯ БОЛЕСТ НА КРОН И УЛЦЕРОЗЕН КОЛИТ. Да направим живота на хората с болест на Крон и улцерозен колит в България по-добър! Участвай в клинично проучване. Стани наш корпоративен партньор. Да живееш с вчз. Ако вашата организация се интересува от сътрудничество, ще се радваме да се свържете. С нас още днес. Към момента, наши партньори са:. Национален алианс на хора с редки болести. Конфедерацията Защита на здравето. European Federation of Crohn's and Ulcerative Colitis Association (EFCCA).