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RARECHROMO.ORG

Unique The Rare Chromosome Disorder Support Group

Can do to help. Why we need your information. Disorder Guides - English. Disorder Guides - Translations. Practical Guides for Families. Unique Tales for Siblings. Why we need your support. Companies: Fundraising at Work. Sign up for our News Alerts. Tweets about "#rarechromoweek OR @Unique charity". Read about some of our inspiring member families. Click here to download our free guides. On specific chromosome disorders. Summer 2015 Magazine Now Available. Awareness Week Shining Bright Highlights 2015.

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Unique The Rare Chromosome Disorder Support Group | rarechromo.org Reviews
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Can do to help. Why we need your information. Disorder Guides - English. Disorder Guides - Translations. Practical Guides for Families. Unique Tales for Siblings. Why we need your support. Companies: Fundraising at Work. Sign up for our News Alerts. Tweets about #rarechromoweek OR @Unique charity. Read about some of our inspiring member families. Click here to download our free guides. On specific chromosome disorders. Summer 2015 Magazine Now Available. Awareness Week Shining Bright Highlights 2015.
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6 what unique
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Unique The Rare Chromosome Disorder Support Group | rarechromo.org Reviews

https://rarechromo.org

Can do to help. Why we need your information. Disorder Guides - English. Disorder Guides - Translations. Practical Guides for Families. Unique Tales for Siblings. Why we need your support. Companies: Fundraising at Work. Sign up for our News Alerts. Tweets about "#rarechromoweek OR @Unique charity". Read about some of our inspiring member families. Click here to download our free guides. On specific chromosome disorders. Summer 2015 Magazine Now Available. Awareness Week Shining Bright Highlights 2015.

INTERNAL PAGES

rarechromo.org rarechromo.org
1

Unique The Rare Chromosome Disorder Support Group

http://www.rarechromo.org/html/ChromosomesAndDisorders.asp

Can do to help. Why we need your information. Disorder Guides - English. Disorder Guides - Translations. Single Gene Disorder Guides. Practical Guides for Families. Unique Tales for Siblings. Why we need your support. Companies: Fundraising at Work. Why we need your information. Chromosome Disorder Guides - English. Chromosome Disorder Guides - Translations. Single Gene Disorder Guides. Practical Guides for Families. Unique Tales for Siblings. Sign up for our News Alerts. Click on one of the topics below.

2

Unique The Rare Chromosome Disorder Support Group

http://www.rarechromo.org/html/History.asp

Can do to help. Why we need your information. Disorder Guides - English. Disorder Guides - Translations. Single Gene Disorder Guides. Practical Guides for Families. Unique Tales for Siblings. Why we need your support. Companies: Fundraising at Work. Can do to help. Sign up for our News Alerts. Tweets about "#rarechromoweek OR @Unique charity". In 1996, Unique. In 2003, other short-term grants allowed the group to employ a full-time Information Officer to research and produce family-friendly information g...

3

Unique The Rare Chromosome Disorder Support Group

http://www.rarechromo.org/html/MeetTheTrustees.asp

Can do to help. Why we need your information. Disorder Guides - English. Disorder Guides - Translations. Single Gene Disorder Guides. Practical Guides for Families. Unique Tales for Siblings. Why we need your support. Companies: Fundraising at Work. Can do to help. Sign up for our News Alerts. Tweets about "#rarechromoweek OR @Unique charity". Founder, Life President, Trustee. I have an 11 year old son Max with dup 9p(23-14) and del 9p(23.1-23.3) and a younger daughter. Unique. After one of many long nig...

4

Unique The Rare Chromosome Disorder Support Group

http://www.rarechromo.org/html/bychromo.asp

Can do to help. Why we need your information. Disorder Guides - English. Disorder Guides - Translations. Single Gene Disorder Guides. Practical Guides for Families. Unique Tales for Siblings. Why we need your support. Companies: Fundraising at Work. Why we need your information. Chromosome Disorder Guides - English. Chromosome Disorder Guides - Translations. Single Gene Disorder Guides. Practical Guides for Families. Unique Tales for Siblings. Sign up for our News Alerts. 16p112 dup and XXX. Website last...

5

Unique The Rare Chromosome Disorder Support Group

http://www.rarechromo.org/html/FamilyGuides.asp

Can do to help. Why we need your information. Disorder Guides - English. Disorder Guides - Translations. Single Gene Disorder Guides. Practical Guides for Families. Unique Tales for Siblings. Why we need your support. Companies: Fundraising at Work. Why we need your information. Chromosome Disorder Guides - English. Chromosome Disorder Guides - Translations. Single Gene Disorder Guides. Practical Guides for Families. Unique Tales for Siblings. Sign up for our News Alerts. Practical Guides for Families.

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thetarwaterclan.blogspot.com thetarwaterclan.blogspot.com

The Story of Us: October 2008

http://thetarwaterclan.blogspot.com/2008_10_01_archive.html

The Story of Us. Friday, October 31, 2008. We hope everyone had a very Happy Halloween. Nathan dressed up as Captain Jack Sparrow and Addie was a sock-hop girl. They both looked great! Monday, October 20, 2008. Tuesday, October 14, 2008. Photo and video editing at www.OneTrueMedia.com. Tuesday, October 7, 2008. Make photo slide shows at www.OneTrueMedia.com. The weather in DC has been wonderful! Hope you all enjoy the fall weather. Subscribe to: Posts (Atom). CCAI - Chinese Adoptions. A Family is Forever.

thetarwaterclan.blogspot.com thetarwaterclan.blogspot.com

The Story of Us: May 2011

http://thetarwaterclan.blogspot.com/2011_05_01_archive.html

The Story of Us. Sunday, May 1, 2011. Subscribe to: Posts (Atom). STOMP - Special Need info for military families. CCAI - Chinese Adoptions. Unique - Rare Chromosome Disorders. CDO - Rare Chromosome Disorders. A Family is Forever. Digging A hole to China. Bilbo's Random Thought Collection. I am a stay at home mom with two kids. Our son was born with a rare chromosome disorder and our daughter was adopted from China. My husband is active duty military. This blog is the story of us. View my complete profile.

thetarwaterclan.blogspot.com thetarwaterclan.blogspot.com

The Story of Us: September 2008

http://thetarwaterclan.blogspot.com/2008_09_01_archive.html

The Story of Us. Sunday, September 28, 2008. A couple of weekends ago we took the kids to the zoo. Addison has been there a couple of times since we brought her home, but she never really seemed interested. This time she LOVED it! At first she was a little scared, but we told her it wasn't scary and she was okay with it. She loved seeing the elephants and monkeys! Saturday, September 13, 2008. You would have thought I would have learned to use spellcheck by now! Addison's First Day of School. Addison had...

thetarwaterclan.blogspot.com thetarwaterclan.blogspot.com

The Story of Us: March 2009

http://thetarwaterclan.blogspot.com/2009_03_01_archive.html

The Story of Us. Wednesday, March 4, 2009. Everyone is home from the hospital! We flew my mom out on Saturday to help us out. She has been keeping Addie busy - or more like Addie has been keeping my mom busy:-) They are having a great time together, but Addie's energy level is a little higher than my mom's even though she is keeping up pretty good. Thanks for all your prayers and well wishes. We certainly believe that they helped! Subscribe to: Posts (Atom). STOMP - Special Need info for military families.

thetarwaterclan.blogspot.com thetarwaterclan.blogspot.com

The Story of Us: February 2011

http://thetarwaterclan.blogspot.com/2011_02_01_archive.html

The Story of Us. Saturday, February 26, 2011. Since we accepted Lui Jun Jie's referral, Bob and I couldn't agree on a name. Two weeks ago our agency needed his new name so that we could complete some of the necessary papers in order to get a visa. After much discussion we finally agreed upon a name - Caden Dean Junjie Tarwater. Caden was born 12/10/09 and is currently 14 months old. We received these updated pics of him at the beginning of Jan. Our return to China. Here are his referral pics -. When Jun ...

rarechromo.co.uk rarechromo.co.uk

Unique The Rare Chromosome Disorder Support Group

http://www.rarechromo.co.uk/html/MissionStatement.asp

Can do to help. Why we need your information. Disorder Guides - English. Disorder Guides - Translations. Single Gene Disorder Guides. Practical Guides for Families. Unique Tales for Siblings. Why we need your support. Companies: Fundraising at Work. Can do to help. Sign up for our News Alerts. Tweets about "#rarechromoweek OR @Unique charity". Our mission is to inform, support and alleviate the isolation of anyone affected by a rare chromosome disorder and to raise public awareness. To develop a series o...

familyvoicesco.org familyvoicesco.org

Disability-Specific Organizations | Family Voices CO Home

https://familyvoicesco.org/links/disability-specific-organizations

Family Voices CO Home. Family-to-Family Health Information Center. Connect for Health Colorado Assistance. Medicaid Buy-In for Children with Disabilities. What You Can Do. Transition Guide By Age. Transition Guide By Life Domain. Resources for Health Coverage. NDNRC Population Specific Fact Sheets. The Anchor Center for Blind Children. Autism Society of Colorado. Brain Injury Association of Colorado. Colorado School for the Deaf and Blind. Epilepsy Foundation of Colorado. Leave a Reply Cancel reply.

thetarwaterclan.blogspot.com thetarwaterclan.blogspot.com

The Story of Us: August 2009

http://thetarwaterclan.blogspot.com/2009_08_01_archive.html

The Story of Us. Friday, August 28, 2009. Bob likes his job, he just is busy all the time. Everytime I call he is in some sort of meeting. I think being the DO (or second in command) requires him to do different sort of tasks then he did before. Overall I think he likes it. Subscribe to: Posts (Atom). STOMP - Special Need info for military families. CCAI - Chinese Adoptions. Unique - Rare Chromosome Disorders. CDO - Rare Chromosome Disorders. A Family is Forever. Digging A hole to China.

thetarwaterclan.blogspot.com thetarwaterclan.blogspot.com

The Story of Us: June 2009

http://thetarwaterclan.blogspot.com/2009_06_01_archive.html

The Story of Us. Friday, June 12, 2009. The Last Few Months. The kids are doing well. Right after we got here, Addison said she missed her old house, but now all she says is that she LOVES her new house. I think she is so happy to have more room to run around in. This house is about twice the size of our other one and Addie will stand at one end of the house yelling, "Mama, where are you? Make an on-line slideshow at www.OneTrueMedia.com. I made a short video of the past few months.I hope you enjoy.

inchstones.blogspot.com inchstones.blogspot.com

THE DIVINE MISS EM: Pink and Black Are Very "In" Right Now

http://inchstones.blogspot.com/2009/03/pink-and-black-is-very-in-right-now.html

THE DIVINE MISS EM. THIS IS A BLOG ABOUT ME, MY FAMILY, AND THE CHALLENGES WE FACE. Monday, March 16, 2009. Pink and Black Are Very "In" Right Now. Well, it's a good thing my black eyes are looking better, because I woke up today with pink eye in both eyes! Don't worry, the doctor said I was not contagious yesterday because the redness and eye discharge didn't start until this morning. But I am on strong eye drops that have to be done every two hours. So that means no school for me all week! I am that one.

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Unique The Rare Chromosome Disorder Support Group

Can do to help. Why we need your information. Disorder Guides - English. Disorder Guides - Translations. Practical Guides for Families. Unique Tales for Siblings. Why we need your support. Companies: Fundraising at Work. Sign up for our News Alerts. Tweets about "#rarechromoweek OR @Unique charity". Read about some of our inspiring member families. Click here to download our free guides. On specific chromosome disorders. Summer 2015 Magazine Now Available. Awareness Week Shining Bright Highlights 2015.

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Unique The Rare Chromosome Disorder Support Group

Can do to help. Why we need your information. Disorder Guides - English. Disorder Guides - Translations. Practical Guides for Families. Unique Tales for Siblings. Why we need your support. Companies: Fundraising at Work. Sign up for our News Alerts. Tweets about "#rarechromoweek OR @Unique charity". Read about some of our inspiring member families. Click here to download our free guides. On specific chromosome disorders. Summer 2015 Magazine Now Available. Awareness Week Shining Bright Highlights 2015.

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