rarediseasedayaustralia.com.au

Rare Disease Day Australia

Rare Disease Day Australia. ABOUT RARE DISEASE DAY. WHAT IS A RARE DISEASE? GET INVOLVED ON THE DAY. Thank you to all supporters for raising and joining hands for Rare Disease Day 2015! Rare Disease Day, celebrated each year on 28 February (a rare day), raises awareness about rare diseases and the impacts they have on those affected personally and their families. The 2015 Rare Disease Day theme is Day-by-day, hand-in-hand . Support the campaign by liking the Facebook page. And sharing your stories. A swo...

http://rarediseasedayaustralia.com.au/

OVERVIEW OF rarediseasedayaustralia.com.au

TRAFFIC RANK

>1,000,000

REVIEWS

0

PAGES IN THIS WEBSITE

10

LINKS TO THIS WEBSITE

CONTACTS

ADDRESSES

SOCIAL LINKS

ONLINE SINCE

WEBSITE DETAILS

SEO

PAGES

SIMILAR SITES

TRAFFIC RANK FOR RAREDISEASEDAYAUSTRALIA.COM.AU

TODAY'S RATING

>1,000,000

TRAFFIC RANK - AVERAGE PER MONTH

BEST MONTH

October

AVERAGE PER DAY Of THE WEEK

HIGHEST TRAFFIC ON

Saturday

TRAFFIC BY CITY

Sign up

CUSTOMER REVIEWS

Average Rating: 2.8 out of 5 with 8 reviews

5 star

0

4 star

2

3 star

4

2 star

0

1 star

2

Hey there! Start your review of rarediseasedayaustralia.com.au

AVERAGE USER RATING

Write a Review

WEBSITE PREVIEW

LOAD TIME

1.5 seconds

FAVICON PREVIEW

16x16
32x32

CONTACTS AT RAREDISEASEDAYAUSTRALIA.COM.AU

ADD CONTACT

Login

TO VIEW CONTACTS

Remove Contacts

FOR PRIVACY ISSUES

CONTENT

PAGES IN
THIS WEBSITE

10

SSL

EXTERNAL LINKS

17

SITE IP

50.87.195.245

LOAD TIME

1.478 sec

SCORE

6.2

PAGE TITLE

Rare Disease Day Australia | rarediseasedayaustralia.com.au Reviews

<META> DESCRIPTION

Rare Disease Day Australia. ABOUT RARE DISEASE DAY. WHAT IS A RARE DISEASE? GET INVOLVED ON THE DAY. Thank you to all supporters for raising and joining hands for Rare Disease Day 2015! Rare Disease Day, celebrated each year on 28 February (a rare day), raises awareness about rare diseases and the impacts they have on those affected personally and their families. The 2015 Rare Disease Day theme is Day-by-day, hand-in-hand . Support the campaign by liking the Facebook page. And sharing your stories. A swo...

<META> KEYWORDS

1 australia

2 internationally

3 get involved

4 sign the pledge

5 who is involved

6 events

7 stories

8 1 comment

9 back to top

10 latest facebook postings

CONTENT

Page content here

KEYWORDS ON PAGE

australia,internationally,get involved,sign the pledge,who is involved,events,stories,1 comment,back to top,latest facebook postings,see more,see less,globalgenes org,view on facebook,middot;,share,a must watch,60 minutes australia

SERVER

Apache

CONTENT-TYPE

utf-8

GOOGLE PREVIEW

Rare Disease Day Australia | rarediseasedayaustralia.com.au Reviews

https://rarediseasedayaustralia.com.au

Rare Disease Day Australia. ABOUT RARE DISEASE DAY. WHAT IS A RARE DISEASE? GET INVOLVED ON THE DAY. Thank you to all supporters for raising and joining hands for Rare Disease Day 2015! Rare Disease Day, celebrated each year on 28 February (a rare day), raises awareness about rare diseases and the impacts they have on those affected personally and their families. The 2015 Rare Disease Day theme is Day-by-day, hand-in-hand . Support the campaign by liking the Facebook page. And sharing your stories. A swo...

INTERNAL PAGES

rarediseasedayaustralia.com.au

1

‘All We Ask’ Rare Disease Day video « Rare Disease Day Australia

http://www.rarediseasedayaustralia.com.au/2010/02/27/all-we-ask-rare-disease-day-video

Rare Disease Day Australia. ABOUT RARE DISEASE DAY. WHAT IS A RARE DISEASE? GET INVOLVED ON THE DAY. 8216;All We Ask’ Rare Disease Day video. The Steve Waugh Foundation made this video for Rare Disease Day to give those with rare diseases a voice. Children and young adults with rare diseases aren’t asking for much – Only that you know about them. On February 27, 2010. Rare Disease Day Australia. On February 28, 2014. Love my sister….she has a rare disease and is the coolest person i know. 2014 This site ...

2

Rare Disease Day Australia « Rare Disease Day Australia

http://www.rarediseasedayaustralia.com.au/category/rare-disease-day-australia

Rare Disease Day Australia. ABOUT RARE DISEASE DAY. WHAT IS A RARE DISEASE? GET INVOLVED ON THE DAY. Rare Disease Day Australia. 8216;All We Ask’ Rare Disease Day video. On February 27, 2010. Rare Disease Day Australia. The Steve Waugh Foundation made this video for Rare Disease Day to give those with rare diseases a voice. Children and young adults with rare diseases aren’t asking for much – Only that you know about them. Join the Rare Disease Day Community. Rare Disease Day Australia. 2014 This site is...

3

Upcoming Events « Events « Rare Disease Day Australia

http://www.rarediseasedayaustralia.com.au/events

Rare Disease Day Australia. ABOUT RARE DISEASE DAY. WHAT IS A RARE DISEASE? GET INVOLVED ON THE DAY. Rare Disease Day 2016 Australia events. One of our 2016 Rare Disease Day goals is to feature Rare Disease Day specific events around Australia. They can be big and small. Be aware that we cannot guarantee that all information is accurate and complete. Always check with the organisers for up to date information. Best of luck with your event! There were no results found. Join the Rare Disease Day Community.

4

WHAT IS A RARE DISEASE? « Rare Disease Day Australia

http://www.rarediseasedayaustralia.com.au/what-is-a-rare-disease

Rare Disease Day Australia. ABOUT RARE DISEASE DAY. WHAT IS A RARE DISEASE? GET INVOLVED ON THE DAY. WHAT IS A RARE DISEASE? Rare Diseases are defined as a condition, syndrome or disorder that affects 1 in 10 000 people or less (The Australian Therapeutic Goods Authority). Some prevalent statistics about Rare Disease include:. There are more than 8000 known rare diseases. 80% rare diseases affect children and most begin in childhood and continue throughout life. Did you already share this? Our next Grant...

5

WHO IS INVOLVED « Rare Disease Day Australia

http://www.rarediseasedayaustralia.com.au/who-is-involved

Rare Disease Day Australia. ABOUT RARE DISEASE DAY. WHAT IS A RARE DISEASE? GET INVOLVED ON THE DAY. Australian organisations participating in Rare Disease Day include:. Click on the organisation you are interested in to link through to further information on them and their Rare Disease Day activity. Association for the Wellbeing of Children in Healthcare (AWCH). Australian Paediatric Surveillance Unit. Bladder, Exstrophy, Epispadias, CloacalExstrophy, Hypospadias Australian Community (BEECHAC). GAA have...

UPGRADE TO PREMIUM TO VIEW 5 MORE

TOTAL PAGES IN THIS WEBSITE

10

LINKS TO THIS WEBSITE

liveitwhileyoucan.com

Rare Disease Day 2015 | Live It While You Can

http://liveitwhileyoucan.com/rare-disease-day-2015

Live It While You Can. Life – The good, The Bad, The Beautiful and The Ugly. Rare Disease Day 2015. February 28, 2015. Today February 28 is Rare Disease Day, a day raising awareness of the many rare diseases that affect thousands of people thought Australia and the world…. I had never thought too much about rare diseases until they impacted my family…. Duplication 15q 13-11 is a rare condition with less than 1000 known cases worldwide. Rare Disease Day Australia – Facebook page. Australian / 20 Years / D...

rarediseaseday.org.nz

Rare Disease Day - About the day

http://www.rarediseaseday.org.nz/about_the_day

Explore the Rare Disease Day website. How to get involved. Rare Disease Day takes place on the last day of February around the world and is an annual celebration and fundraiser for those Rare Gems in our community. Here in New Zealand we are lucky to be the first to kick off the celebrations worldwide. For details of events that you can contribute to. Or you can organise you own event. And don’t forget to share your event. Find out how other countries are celebrating their Rare Gems:. Rare Disease Day USA.

awch.org.au

AWCH

http://www.awch.org.au/rare-diseases.php

Association for the Wellbeing of Children in Healthcare. Helping You Help Kids. Parent Line (Toll Free):. Advocacy and Committee Work. Online or by Mail. AWCH is a supporter of World Rare Disease Day, a global event held annually on the last day of February. Its main objective is to raise awareness of rare diseases and their impact on not only the kids living with them and their families, but also on the wider community as a whole. World Rare Disease Day 2014 - Join Together for Better Care. The conferen...

pkunsw.org.au

Annual Events - PKUNSW

http://www.pkunsw.org.au/get-involved/annual-events

Your shopping cart is empty. Learn more about PKU. IEM Inborn Errors of Metabolism Grant. Below are some annual Events and Fundraisers. We urge you where possible to become involved in these events or support these fundraisers where possible. Visit http:/ www.rarediseasedayaustralia.com.au/. PKU Association Annual General Meeting (AGM). Plan the year ahead to increase Awareness of PKU and fundraising initiatives for Research. This is an important event as new committee members are nominated to run th...

pkunsw.org.au

Australian Links - PKUNSW

http://www.pkunsw.org.au/resources/useful-links

Your shopping cart is empty. Learn more about PKU. IEM Inborn Errors of Metabolism Grant. MDDA Metabolic Dietary Disorders Association. Http:/ www.mdda.org.au/. The MDDA is a self-help, not-for-profit, support group that was set up in 1996 to assist members and their families with the complex issues in dealing with metabolic dietary disorders. Http:/ www.pkuconnect.com.au/. Http:/ www.vitaflo.com.au/. Vitaflo Australia Pty Ltd has been distributing products throughout Australia since 2002. Vitaflo Au...

alittlebitofkaos.blogspot.com

A little bit of Kaos: Reflecting on Rare Diseases Day 2015 #22q13 @MCRI_for_kids

http://alittlebitofkaos.blogspot.com/2015/03/reflecting-on-rare-diseases-day-2015.html

Sunday, 1 March 2015. Reflecting on Rare Diseases Day 2015 #22q13 @MCRI for kids. This weekend we pause to reflect on Rare Diseases Day. Which aims to raise awareness of rare diseases and conditions which effect members of our community. There isn't much that we can do as a society to "fix" people affected, except support those doctors and researchers that are finding ways to lessen the impact or cure rare diseases. And his issue with memory means that he basically just can't remember. He has low mus...

stargardtsdisease.blogspot.com

See Through My Eyes - Stargardt's Disease: February 2015

http://stargardtsdisease.blogspot.com/2015_02_01_archive.html

See Through My Eyes - Stargardt's Disease. Saturday, February 28, 2015. Happy Rare Disease Day! Today is Rare Disease Day. To raise awareness about rare diseases and the impact these diseases have on people's lives. It is an international day held annually. Stargardt's Disease is considered a rare disease, with the incidence widely debated. Here are some statistics I can dig up about SD:. SD affects about 1 in 10 000,. There should be appropriately 31 800 in the United States and 6 400 in the UK. Http:/ ...

UPGRADE TO PREMIUM TO VIEW 10 MORE

TOTAL LINKS TO THIS WEBSITE

17

SOCIAL ENGAGEMENT

sharer/sharer.php

RareDiseaseAus

OTHER SITES

rarediseaseday.org.nz

Rare Disease Day - Home

Explore the Rare Disease Day website. How to get involved. New Zealand Rare Disease Day. And help raise awareness and funds for support groups and research throughout the country. People with rare diseases in New Zealand are few and far between, so we like to think of them as. By working together, we know we have a greater chance of our. Being seen and heard. LAM Trust Movie Event. Bridgeway Theatre, North Shore. Rare Disease Dress Up Day. Bayfield Early Education Centre. Katie’s brother, Caleb, and sist...

rarediseaseday.ru

Международный день редких болезней

Международный день редких болезней. До дня редких болезней осталось. Открытое заседание общественных организаций по защите прав пациентов при Министерстве здравоохранения Российской Федерации, посвященное Международному Дню редких заболеваний. 25 февраля, Москва. О дне редких заболеваний. Представителей Законодательного собрания России, Минздрава России, Департамента здравоохранения г. Москвы, Минздрава Московской области, общественныых деятелей. Разработка сайта: DriveLab.ru.

rarediseaseday.us

Rare Disease Day USA | Alone we are Rare. Together we are Strong.

OFFICIAL U.S. SPONSOR. February 29, 2016. About Rare Disease Day. 2015 Recap & Press Coverage. Goals and Plans for 2015. Successes from Past Years. History of Rare Disease Day. What is a State House Event? Press Kit and Resources. Partners & Supporters. Handprints Across America 2015. Handprints Across America 2014. Handprints Across America 2013. Countdown to Rare Disease Day! Tell your story or follow ours in our active online community. What's Happening in Your State? From State House events.

rarediseaseday2012fr.weebly.com

Rare Disease Day_FR - Home

Rare Disease Day FR. A propos de RaDiOrg.be. Témoignages de patients atteints de maladies rares et de leurs proches. Avec l'aimable autorisation de la Fondation Roi Baudouin). Pour soumettre vos témoignages, utilisez le formulaire en bas de page. Soumettez vos témoignages. Create a free website. Start your own free website. A surprisingly easy drag and drop site creator. Learn more.

rarediseaseday2012nl.weebly.com

Rare Disease Day_NL - Home

Rare Disease Day NL. Getuigenissen van patiënten en hun familie (met dank aan de Koning Boudewijnstichting). Deel uw getuigenis met het formulier onderaan deze pagina. Create a free website. Start your own free website. A surprisingly easy drag and drop site creator. Learn more.

rarediseasedayaustralia.com.au

Rare Disease Day Australia

Rare Disease Day Australia. ABOUT RARE DISEASE DAY. WHAT IS A RARE DISEASE? GET INVOLVED ON THE DAY. Thank you to all supporters for raising and joining hands for Rare Disease Day 2015! Rare Disease Day, celebrated each year on 28 February (a rare day), raises awareness about rare diseases and the impacts they have on those affected personally and their families. The 2015 Rare Disease Day theme is Day-by-day, hand-in-hand . Support the campaign by liking the Facebook page. And sharing your stories. A swo...

rarediseasediagnostics.com

www.rarediseasediagnostics.com

This Web page parked FREE courtesy of iCorps Technologies, Inc. Search for domains similar to. Is this your domain? Let's turn it into a website! Would you like to buy this. Find Your Own Domain Name. See our full line of products. Easily Build Your Professional Website. As low as $4.99/mo. Call us any time day or night .

rarediseasedx.com

www.rarediseasedx.com

This Web page parked FREE courtesy of iCorps Technologies, Inc. Search for domains similar to. Is this your domain? Let's turn it into a website! Would you like to buy this. Find Your Own Domain Name. See our full line of products. Easily Build Your Professional Website. As low as $4.99/mo. Call us any time day or night .

rarediseasefoundation.ch

Stiftung für Menschen mit seltenen Krankheiten l Foundation for people with rare diseases - Startseite

Uuml;ber seltene Krankheiten ». Seltene Krankheiten können lebensbedrohlich sein und erfordern oft eine aufwendige diagnostische Abklärung. 80 Prozent der seltenen Krankheiten sind genetisch bedingt. Unsere Stiftung ». Die Stiftung fördert die Erweiterung und Ver-. Tiefung des Wissensstandes bei seltenen Krankheiten und strebt medizinisch-genetische Spitzenleistungen an. » Mehr. Helfen Sie mit ». Menschen mit seltenen Krankheiten brauchen auch Ihr Engagement! Raquo; Konzept für Seltene Krankheiten. Raquo...

rarediseasefoundation.org

Home - Rare Disease Foundation

Skip to main content. Guest ( Sign In. Family and Patient Support. The Health Ministers of Québec, Ontario, Alberta and BC: Put Kids Before Bureaucracy - Turn Heartbreak to Hope. Medical research is offering new hope to more than half a million kids who suffer from rare genetic diseases. Our provincial governments need to step up to the plate and make. Rare Disease Foundation - Genetic Testing Petition. From Rare Disease Foundation. Dear Caring Canadians,. The Face of Rare Diseases. July 21, 2015. Washin...

rarediseaseguides.com

Rarediseaseguides.com