rareshare.org

Rareshare.org - Connecting Those Affected by Rare Disorders

We are changing the way people communicate about rare medical disorders. RareShare is a unique social hub building communities for patients, families, and healthcare professionals affected by rare disorders. Experience the Benefits of RareShare Membership. It's free and easy to join RareShare. Here are just a few of the reasons to sign up for an account:. Communicate with others that are affected by the same disorder. Contribute new information and personal experiences to your disorder community.

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Rareshare.org - Connecting Those Affected by Rare Disorders | rareshare.org Reviews

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We are changing the way people communicate about rare medical disorders. RareShare is a unique social hub building communities for patients, families, and healthcare professionals affected by rare disorders. Experience the Benefits of RareShare Membership. It's free and easy to join RareShare. Here are just a few of the reasons to sign up for an account:. Communicate with others that are affected by the same disorder. Contribute new information and personal experiences to your disorder community.

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1 communities

2 why rare disorders

3 already a member

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6 become a member

7 featured community

8 microcephaly

9 recently updated communities

10 adrenomyeloneuropathy

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Rareshare.org - Connecting Those Affected by Rare Disorders | rareshare.org Reviews

https://rareshare.org

We are changing the way people communicate about rare medical disorders. RareShare is a unique social hub building communities for patients, families, and healthcare professionals affected by rare disorders. Experience the Benefits of RareShare Membership. It's free and easy to join RareShare. Here are just a few of the reasons to sign up for an account:. Communicate with others that are affected by the same disorder. Contribute new information and personal experiences to your disorder community.

INTERNAL PAGES

rareshare.org

1

Lateral Meningocele Syndrome Community - Rareshare.org - Connecting Those Affected by Rare Disorders

http://www.rareshare.org/communities/lateral-meningocele-syndrome

Back to Communities List. Lateral Meningocele Syndrome Community. Lateral Meningocele Syndrome is a rare disorder characterized by multiple lateral meningoceles (meninges protrude from a spinal opening). This community has no expert yet. Learn More About this Disorder. About 1 year ago. You have to join this community to be able to post messages on its forum or update its information. It’s free and easy to join RareShare. Click here. To signup for an account. Large Granular Lymphocytic Leukemia.

2

Acalvaria Community - Rareshare.org - Connecting Those Affected by Rare Disorders

http://www.rareshare.org/communities/acalvaria

Back to Communities List. Acalvaria is a rare malformation characterized by the absence of the calvarial bones, dura mater and associated muscles in the presence of a normal skull base and normal facial bones. This community has no expert yet. Acrania, Congenital Malformation. Learn More About this Disorder. About 1 year ago. You have to join this community to be able to post messages on its forum or update its information. It’s free and easy to join RareShare. Click here. To signup for an account.

3

New User Sign up - Rareshare.org - Connecting Those Affected by Rare Disorders

http://www.rareshare.org/users/new

New User Sign up. This field is required). This field is required). This field is required). Select your home community. I don't want to select a home community. 15q 26.2 Deletion. Absent Pulmonary Valve Syndrome. Acrofacial Dysostosis, Rodriguez Type. Acute Respiratory Distress Syndrome. Acute Zonal Occult Outer Retinopathy. Adult Onset Still's Disease. Amelogenesis Imperfecta, Nephrocalcinosis. Anophthalmia - Microphthalmia, Isolated. Arrhythmogenic right ventricular dysplasia. Congenital Bilateral Per...

4

Adrenomyeloneuropathy Community - Rareshare.org - Connecting Those Affected by Rare Disorders

http://www.rareshare.org/communities/adrenomyeloneuropathy

Back to Communities List. Is a rare inherited metabolic disorder that affects approximately 30,000 people worldwide. This community has no expert yet. X-ALD, Addison Disease with Cerebral Sclerosis, ALD, AMN, Bronze Schilder Disease, Melanodermic Leukodystrophy, Schilder Disease, Siemerling-Creutzfeldt Disease, SCD, Sudanophilic Leukodystrophy, XALD, X ALD, X-linked adrenoleukodystrophy, X linked adrenoleukodystrophy. Learn More About this Disorder. ALD and AMN Patient Learning Academy.

5

Rareshare.org - Connecting Those Affected by Rare Disorders

http://www.rareshare.org/users/BenHasBlounts

We are changing the way people communicate about rare medical disorders. RareShare is a unique social hub building communities for patients, families, and healthcare professionals affected by rare disorders. Experience the Benefits of RareShare Membership. It's free and easy to join RareShare. Here are just a few of the reasons to sign up for an account:. Communicate with others that are affected by the same disorder. Contribute new information and personal experiences to your disorder community.

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bobmcinroy.velcomweb.ca

Bob McInroy's Ataxia MSA

http://bobmcinroy.velcomweb.ca/support.html

Gait and Balance Webinar. Ataxia MSA Message Board. Everyday seems to present a new challenge when you are dealing with a disease like MSA (aka Shy-drager syndrome). As you navigate through this challenging time in your life, it is important to have a support system in place. The Shy-drager yahoo support group is the best online support you will find. This group was our life line. I would have been lost without the support, knowledge and true understanding of its members. To join, follow this link:.

bobmcinroy.velcomweb.ca

Bob McInroy's Ataxia MSA

http://bobmcinroy.velcomweb.ca/diagnosis.html

Gait and Balance Webinar. Ataxia MSA Message Board. Anyway, I prevailed upon my present doctor to get me an appointment with a neurologist, who diagnosed me shortly thereafter. I spent three days there undergoing tests, including an MRI, and a P.S.I. It was determined I had Sporadic Ataxia with Parkinson symptoms and MSA (Multiple System Atrophy).

bobmcinroy.velcomweb.ca

Bob McInroy's Ataxia MSA

http://bobmcinroy.velcomweb.ca/ataxia.html

Gait and Balance Webinar. Ataxia MSA Message Board. Ataxia means imbalanced or unsteady, and it refers to one's gait. One who is intoxicated is said to have temporary ataxia. Ataxia is a symptom of a degenerative cerebellum but it has come to be the name of the disease. The first visible symptom of the disease is ataxia, that is, staggering or unsteady of gait. The cerebellum is that part of the brain located at the base of the skull, at the back at the top of the spinal cord. Information comes into the ...

nicuawareness.org

Disorder Resources - Neonatal Intensive Care Awareness Month

http://www.nicuawareness.org/disorder-resources.html

Neonatal Intensive Care Awareness Month. NICU Info Initiative Days. Locate resources for disorders that can lead to or prolong a NICU stay. Email us at nicuawareness@projectsweetpeas.com if you would like your organizational information included. The only website in the world that connects parents whose children have the same rare disease. Kids Health / Birth Defects. Information about the causes of, and treatment for various birth defects. Birth Defect Research for Children. Reaching for the Stars.

podcast.patientsknowbest.com

Interview | Patients Know Best podcast

https://podcast.patientsknowbest.com/category/interview

Instructions for podcast interviewees. Patients Know Best podcast. 124; Comments RSS. Instructions for podcast interviewees. Interview with Jon Erickson of Parlerai. Posted on March 31, 2010. By Dr Mohammad Al-Ubaydli. Jon Erickson is the co-founder of Parlerai. In Philippi, WV. Of products and services designed to harness the power of the Internet for children with special needs – at any time, at any place, on any device. There are tools for parents, tools for children and tools for caregivers. Rajiv ha...

bobmcinroy.velcomweb.ca

Bob McInroy's Ataxia MSA

http://bobmcinroy.velcomweb.ca/clinics.html

Gait and Balance Webinar. Ataxia MSA Message Board. For the kind of ATAXIA I have, there would be, at least one victim, and with FRIEDREICH'S ATAXIA, there would be around 33 people with that disease. With FRIEDREICH'S ATAXIA, it occurs once in 30,000 people. With SPORADIC ATAXIA, it occurs once in 3,000,000 people. At least, these statistics are the ones quoted in some quarters. There are several universities and hospitals which have Clinics in the U.S.A. University of Michigan at Ann Arbour. I had lear...

bobmcinroy.velcomweb.ca

Bob McInroy's Ataxia MSA

http://bobmcinroy.velcomweb.ca/caregiving.html

Gait and Balance Webinar. Ataxia MSA Message Board.

bobmcinroy.velcomweb.ca

Bob McInroy's Ataxia MSA

http://bobmcinroy.velcomweb.ca/vid.html

Gait and Balance Webinar. Ataxia MSA Message Board. Gait and Balance Webinar. A presentation produced by Heather Cianci, PT, MS, GCS and Cure PSP. To watch this video, you will need to install the g2m3 CODEC. 1 Installing the CODEC. Click HERE to Download. Click on the RUN button when it asks you to either "Run Save or Cancel". 2 Download the Video. Right Click HERE and SAVE TARGET AS.

bobmcinroy.velcomweb.ca

Bob McInroy's Ataxia MSA

http://bobmcinroy.velcomweb.ca/devices.html

Gait and Balance Webinar. Ataxia MSA Message Board.

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raresh-traficdeidei.blogspot.com

trafic de idei

Eu scriu acum din suflet. tot ce simt acum .sau ce am simtit. CIA feat Alex - Zbor la joasa altitudine. Intins pe spate vad mai bine lumea . Inteleg ca tot ce mi se spune era . O minciuna, nu mai pot suporta . Sa fiu tratat ca un sclav in tara mea. Incerc sa uit de durere, incerc sa uit. Nu pot sa stau in tacere, nu pot sa uit . Sunt lipsit de putere dar nu va uit. Coplesit de placere in ochi va scuip. Vreau sa vad speranta in ochii tatalui meu. Vreau sa cred ca acolo sus exista un Dumnezeu. Ca nu mai po...

raresh.blogspot.com

Aye! Cut the crap!

Friday, October 21, 2005. The winter is comming! This week is the first time the winter is sending a clear sign that is arriving. two days with 0-3 degrees. My nose and face got frozen, but I felt also good: soon the snow will come (in 4-6 weeks), covering evering in white. The time of the hot wine and hot tzuica is comming! All of you are invited to get warm and listen some good stories! Posted by Rares @ 10/21/2005 10:27:00 PM 20 comments. Links to this post. Tuesday, October 18, 2005. God took my hand...

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RareShadowStorm (love to hate) - DeviantArt

Window.devicePixelRatio*screen.width 'x' window.devicePixelRatio*screen.height) :(screen.width 'x' screen.height) ; this.removeAttribute('onclick')" class="mi". Window.devicePixelRatio*screen.width 'x' window.devicePixelRatio*screen.height) :(screen.width 'x' screen.height) ; this.removeAttribute('onclick')". Deviant for 7 Years. This deviant's full pageview. Last Visit: 184 weeks ago. This is the place where you can personalize your profile! By moving, adding and personalizing widgets. Why," you ask?

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rareshare.org

Rareshare.org - Connecting Those Affected by Rare Disorders

We are changing the way people communicate about rare medical disorders. RareShare is a unique social hub building communities for patients, families, and healthcare professionals affected by rare disorders. Experience the Benefits of RareShare Membership. It's free and easy to join RareShare. Here are just a few of the reasons to sign up for an account:. Communicate with others that are affected by the same disorder. Contribute new information and personal experiences to your disorder community.

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The domain raresharkteeth.com. May be for sale by its owner! This page provided to the domain owner free. By Sedo's Domain Parking. Disclaimer: Domain owner and Sedo maintain no relationship with third party advertisers. Reference to any specific service or trade mark is not controlled by Sedo or domain owner and does not constitute or imply its association, endorsement or recommendation.

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