rarevoiceawards.org

Rare Voice Awards Gala » A Celebration to Honor Advocates who gave Rare Disease Patients a Voice on Capitol Hill

2014 Nominees & Winners. Save the date for 2015! The 2015 RareVoice Gala will be held on November 4th. RareVoice Award nominations are open to the public. We encourage the community to nominate individuals and organizations who advocate for legislation and policy that benefits the rare disease community. Deadline to submit nominations is Friday, July 31, 2015. Click here to see this 2014's list of impressive and inspirational nominees and Abbey Winners! Rare Voice Awards Gala 2015.

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Rare Voice Awards Gala » A Celebration to Honor Advocates who gave Rare Disease Patients a Voice on Capitol Hill | rarevoiceawards.org Reviews

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2014 Nominees & Winners. Save the date for 2015! The 2015 RareVoice Gala will be held on November 4th. RareVoice Award nominations are open to the public. We encourage the community to nominate individuals and organizations who advocate for legislation and policy that benefits the rare disease community. Deadline to submit nominations is Friday, July 31, 2015. Click here to see this 2014's list of impressive and inspirational nominees and Abbey Winners! Rare Voice Awards Gala 2015.

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Rare Voice Awards Gala » A Celebration to Honor Advocates who gave Rare Disease Patients a Voice on Capitol Hill | rarevoiceawards.org Reviews

https://rarevoiceawards.org

2014 Nominees & Winners. Save the date for 2015! The 2015 RareVoice Gala will be held on November 4th. RareVoice Award nominations are open to the public. We encourage the community to nominate individuals and organizations who advocate for legislation and policy that benefits the rare disease community. Deadline to submit nominations is Friday, July 31, 2015. Click here to see this 2014's list of impressive and inspirational nominees and Abbey Winners! Rare Voice Awards Gala 2015.

LINKS TO THIS WEBSITE

everylifefoundation.org

President's Message | EveryLife Foundation for Rare Diseases

http://everylifefoundation.org/about-us/presidents-message

PROGRAMS, INITIATIVES AND COALITIONS. Faster Track: August 2016. Faster Track: July 2016. Faster Track: June 2016. Rare Disease Scientific Workshop. Rare Disease Week on Capitol Hill. Italian Street Painting Marin. August 16th, 2016. FasterCures Wants Your Rx for Innovation read more. August 9th, 2016. NorthBay Biz Profiles Foundation President and Founder Emil Kakkis as a GameChanger read more. August 4th, 2016. Enter your contact information to receive updates and/or invitations from EveryLife. Our goa...

everylifefoundation.org

Press Release: Senate Introduces the OPEN ACT | EveryLife Foundation for Rare Diseases

http://everylifefoundation.org/press-release-senate-introduces-the-open-act

PROGRAMS, INITIATIVES AND COALITIONS. Faster Track: August 2016. Faster Track: July 2016. Faster Track: June 2016. Rare Disease Scientific Workshop. Rare Disease Week on Capitol Hill. Italian Street Painting Marin. 21st Century Cures Initiative. Foundation Papers, Presentations, Releases and Letters. Kakkis in the news. Rare Diseases in the News. Enter your contact information to receive updates and/or invitations from EveryLife. 21st Century Cures Initiative. Press Release: Senate Introduces the OPEN ACT.

everylifefoundation.org

We Applaud FDA for Two New Draft Guidances on Rare Disease Drug Development | EveryLife Foundation for Rare Diseases

http://everylifefoundation.org/we-applaud-fda-for-two-new-draft-guidances-on-rare-disease-drug-development

PROGRAMS, INITIATIVES AND COALITIONS. Faster Track: August 2016. Faster Track: July 2016. Faster Track: June 2016. Rare Disease Scientific Workshop. Rare Disease Week on Capitol Hill. Italian Street Painting Marin. 21st Century Cures Initiative. Foundation Papers, Presentations, Releases and Letters. Kakkis in the news. Rare Diseases in the News. Enter your contact information to receive updates and/or invitations from EveryLife. We Applaud FDA for Two New Draft Guidances on Rare Disease Drug Development.

everylifefoundation.org

Donate | EveryLife Foundation for Rare Diseases

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PROGRAMS, INITIATIVES AND COALITIONS. Faster Track: August 2016. Faster Track: July 2016. Faster Track: June 2016. Rare Disease Scientific Workshop. Rare Disease Week on Capitol Hill. Italian Street Painting Marin. August 16th, 2016. FasterCures Wants Your Rx for Innovation read more. August 9th, 2016. NorthBay Biz Profiles Foundation President and Founder Emil Kakkis as a GameChanger read more. August 4th, 2016. Enter your contact information to receive updates and/or invitations from EveryLife.

everylifefoundation.org

Faster Track: June 2015 | EveryLife Foundation for Rare Diseases

http://everylifefoundation.org/faster-track-june-2015

PROGRAMS, INITIATIVES AND COALITIONS. Faster Track: August 2016. Faster Track: July 2016. Faster Track: June 2016. Rare Disease Scientific Workshop. Rare Disease Week on Capitol Hill. Italian Street Painting Marin. August 16th, 2016. FasterCures Wants Your Rx for Innovation read more. August 9th, 2016. NorthBay Biz Profiles Foundation President and Founder Emil Kakkis as a GameChanger read more. August 4th, 2016. Enter your contact information to receive updates and/or invitations from EveryLife. In addi...

everylifefoundation.org

News | EveryLife Foundation for Rare Diseases

http://everylifefoundation.org/news

PROGRAMS, INITIATIVES AND COALITIONS. Faster Track: August 2016. Faster Track: July 2016. Faster Track: June 2016. Rare Disease Scientific Workshop. Rare Disease Week on Capitol Hill. Italian Street Painting Marin. 21st Century Cures Initiative. Foundation Papers, Presentations, Releases and Letters. Kakkis in the news. Rare Diseases in the News. Enter your contact information to receive updates and/or invitations from EveryLife. FasterCures Wants Your Rx for Innovation. On August 16th, 2016, posted in:.

everylifefoundation.org

Faster Track Newsletter: May | EveryLife Foundation for Rare Diseases

http://everylifefoundation.org/faster-track-newsletter-may

PROGRAMS, INITIATIVES AND COALITIONS. Faster Track: August 2016. Faster Track: July 2016. Faster Track: June 2016. Rare Disease Scientific Workshop. Rare Disease Week on Capitol Hill. Italian Street Painting Marin. August 16th, 2016. FasterCures Wants Your Rx for Innovation read more. August 9th, 2016. NorthBay Biz Profiles Foundation President and Founder Emil Kakkis as a GameChanger read more. August 4th, 2016. Enter your contact information to receive updates and/or invitations from EveryLife. Is pass...

everylifefoundation.org

Rare Disease Scientific Workshop | EveryLife Foundation for Rare Diseases

http://everylifefoundation.org/events/scientific-workshop

PROGRAMS, INITIATIVES AND COALITIONS. Faster Track: August 2016. Faster Track: July 2016. Faster Track: June 2016. Rare Disease Scientific Workshop. Rare Disease Week on Capitol Hill. Italian Street Painting Marin. August 16th, 2016. FasterCures Wants Your Rx for Innovation read more. August 9th, 2016. NorthBay Biz Profiles Foundation President and Founder Emil Kakkis as a GameChanger read more. August 4th, 2016. Enter your contact information to receive updates and/or invitations from EveryLife. Rationa...

everylifefoundation.org

EveryLife Foundation Community Congress

http://everylifefoundation.org/community-congress

PROGRAMS, INITIATIVES AND COALITIONS. Faster Track: August 2016. Faster Track: July 2016. Faster Track: June 2016. Rare Disease Scientific Workshop. Rare Disease Week on Capitol Hill. Italian Street Painting Marin. August 16th, 2016. FasterCures Wants Your Rx for Innovation read more. August 9th, 2016. NorthBay Biz Profiles Foundation President and Founder Emil Kakkis as a GameChanger read more. August 4th, 2016. Enter your contact information to receive updates and/or invitations from EveryLife. Who can...

everylifefoundation.org

New Community Congress Initiative | EveryLife Foundation for Rare Diseases

http://everylifefoundation.org/join-us-for-the-everylife-foundations-community-congress-breakfast-and-introductory-meeting

PROGRAMS, INITIATIVES AND COALITIONS. Faster Track: August 2016. Faster Track: July 2016. Faster Track: June 2016. Rare Disease Scientific Workshop. Rare Disease Week on Capitol Hill. Italian Street Painting Marin. 21st Century Cures Initiative. Foundation Papers, Presentations, Releases and Letters. Kakkis in the news. Rare Diseases in the News. Enter your contact information to receive updates and/or invitations from EveryLife. New Community Congress Initiative. New Community Congress Initiative. Regul...

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Rare Voice Awards Gala » A Celebration to Honor Advocates who gave Rare Disease Patients a Voice on Capitol Hill

2014 Nominees & Winners. Save the date for 2015! The 2015 RareVoice Gala will be held on November 4th. RareVoice Award nominations are open to the public. We encourage the community to nominate individuals and organizations who advocate for legislation and policy that benefits the rare disease community. Deadline to submit nominations is Friday, July 31, 2015. Click here to see this 2014's list of impressive and inspirational nominees and Abbey Winners! Rare Voice Awards Gala 2015.

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