rechildrens.org

internationalencephalitisconsortium.org

Patients & Families - INTERNATIONALENCEPHALITISCONSORTIUM

http://www.internationalencephalitisconsortium.org/patients--families.html

Diagnostic Algorithm for Initial Evaluation of Encephalitis in Adults. Diagnostic Algorithm for Initial Evaluation of Encephalitis in Children. A diagnosis of encephalitis is a daunting challenge! Those affected by encephalitis – whether patient, family or friend – know and experience its isolating nature. Although each year encephalitis impacts 20,000 people in the United States and 500,000 people globally, it tends to be a hidden, and often overlooked, illness. Encephalitis Global. Encephalitis affects...

internationalencephalitisconsortium.org

Advocacy and Recovery - INTERNATIONALENCEPHALITISCONSORTIUM

http://www.internationalencephalitisconsortium.org/advocacy-and-recovery.html

Diagnostic Algorithm for Initial Evaluation of Encephalitis in Adults. Diagnostic Algorithm for Initial Evaluation of Encephalitis in Children. Back to Resources for Patients and Families. After the acute phase of encephalitis has passed, many survivors wonder, “Is this as good as it gets? Several organizations focus on raising awareness. They seek to increase the profile of encephalitis so as to improve treatment, fund research and create a greater sense of community. These organizations include:. Due t...

internationalencephalitisconsortium.org

About Encephalitis - INTERNATIONALENCEPHALITISCONSORTIUM

http://www.internationalencephalitisconsortium.org/about-encephalitis.html

Diagnostic Algorithm for Initial Evaluation of Encephalitis in Adults. Diagnostic Algorithm for Initial Evaluation of Encephalitis in Children. Back to Resources for Patients and Families. Is an organization that offers support and information on various types of encephalitis, including research, books and publications, newsletters, and stories from survivors, among others. Their work is supported by leading doctors and professionals in the field. The Centers for Disease Control. Several organizations fo...

epilepsyhero.org

HERO: Vision 20/20 – Epilepsy Community Partner Organizations

http://www.epilepsyhero.org/partners

Find an Epilepsy Study. Vision 20/20 Epilepsy Partner Organizations. This consortium of epilepsy organizations has partnered to create the HERO website. American Clinical Neurophysiology Society (ACNS). The American Epilepsy Society promotes research and education for professionals dedicated to the prevention, treatment and cure of epilepsy. CURE (Citizens United for Research in Epilepsy). To prevent deaths caused by seizures. We work toward this mission with these main goals in mind: advancing aware...

myepilepsystory.org

Resources | My Epilepsy Story

http://www.myepilepsystory.org/resources

Give A Recurring Monthly Donation. Brandy’s Personal Posts. Real Life Epilepsy Stories. American Academy of Neurology. CURE Citizens United for Research in Epilepsy. Doose Syndrome Epilepsy Alliance. Epilepsy Across the Spectrum Report. Doose Syndrome Epilepsy Alliance. ILAE (International League Against Epilepsy). LGS Foundation (Lennox-Gastaut Syndrome). RE Children’s Project (Rasmussen’s Encephalitis). SUDEP Aware (Sudden Death in Epilepsy). Candlelight Concert for Epilepsy Awareness.

jessiekelley.blogspot.com

Jessie's Blog: December 2010

http://jessiekelley.blogspot.com/2010_12_01_archive.html

Wednesday, December 22, 2010. After a nice Christmas Concert at Cook Children's Medical Center with Randy Travis, Charlie Pride, and some other Country stars, Jessie was released and is now home. Pictures below, including one with Jessie and Randy Travis. Http:/ www.star-telegram.com/2010/12/22/2723369/country-singers-entertain-patients.html. No need to speculate until then. One Day at a time and Thanks to God! Blessings to all for a Merry Christmas. Cris. Labels: Hemispherectomy Foundation Jessie Hall.

ninds.nih.gov

Epilepsy Information Page: National Institute of Neurological Disorders and Stroke (NINDS)

http://www.ninds.nih.gov/health_and_medical/disorders/epilepsy.htm

Disorders A - Z:. You Are Here: Home. Disorders A - Z. Disorders A - Z. Training and Career Awards. NINDS Epilepsy Information Page. This study increases the understanding of uncontrolled epilepsy and trains neurologists and neurosurgeons to manage the disorder. PRX-00023 Therapy in Localization-Related Epilepsy. This trial will discover if the experimental drug PRX-00023 reduces the frequency of seizures in people with epilepsy. Condensed from The Epilepsies and Seizures: Hope Through Research. Tel: 415...

cotsapaslab.info

Projects | Cotsapas Lab

http://www.cotsapaslab.info/projects

Immune-mediated genetics and genomics at Yale and the Broad Institute. Our long-term goal is to understand the mechanisms perturbed by disease risk variants and how these may be targeted for therapy tailored to individual patients’ pathogenic profile. We are particularly interested in diseases of the immune system with special emphasis on the role of immune function in the brain. To achieve this goal we pursue analytical projects grouped into three thematic categories:. We have previously reported that m...

intheinterestofannie.blogspot.com

In the Interest of Annie: May 2012

http://intheinterestofannie.blogspot.com/2012_05_01_archive.html

Monday, May 28, 2012. Well, I am actually only moving my office from upstairs to downstairs. Despite how anticlimactic that sounds, this is not only an exciting move for me, but for my oldest daughter and my entire family as well. About five years ago, my now teenage daughter was rendered wheelchair bound by a devastating and degenerative disease called Rasmussen's Encelphalitis. Lucky for me Em finds it a bit creepy downstairs by herself at night. ;). A girl can dream! Links to this post. This summer, I...