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::REFAIN::Registry for Fanconi Anaemia in India::

Registry for Fanconi Anaemia in India is a welfare group working towards diagnosis of Fanconi anaemia, treatment and improving the standard of care for affected families

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REFAIN

Sadhana Chellappa

J-205 R●●●●●●●asantha

Ban●●●ore , Karnataka, 560037

IN

91.09●●●●●14138
sa●●●●●●●@yahoo.com

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REFAIN

Sadhana Chellappa

J-205 R●●●●●●●asantha

Ban●●●ore , Karnataka, 560037

IN

91.09●●●●●14138
sa●●●●●●●@yahoo.com

View this contact

REFAIN

Sadhana Chellappa

J-205 R●●●●●●●asantha

Ban●●●ore , Karnataka, 560037

IN

91.09●●●●●14138
sa●●●●●●●@yahoo.com

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::REFAIN::Registry for Fanconi Anaemia in India:: | refain.org Reviews
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Registry for Fanconi Anaemia in India is a welfare group working towards diagnosis of Fanconi anaemia, treatment and improving the standard of care for affected families
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2 fanconi
3 anaemia
4 india
5 registry
6 aplastic
7 fa
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9 malignancy
10 India
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::REFAIN::Registry for Fanconi Anaemia in India:: | refain.org Reviews

https://refain.org

Registry for Fanconi Anaemia in India is a welfare group working towards diagnosis of Fanconi anaemia, treatment and improving the standard of care for affected families

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refain.org refain.org
1

::REFAIN::Registry for Fanconi Anaemia in India::

http://www.refain.org/htms/aims.htm

Registry for Fanconi Anaemia in India. Aims and Plans of REFAIN. Aim of the Registry. To disseminate information regarding FA. To study the spectrum of the disease in Indian children. To provide access to information on current treatment and follow-up guidelines. To serve as a foundation for collaborative studies. To provide family support. To provide antenatal diagnosis. Best viewed in 1024x768 resolution.

2

::REFAIN::Registry for Fanconi Anaemia in India::

http://www.refain.org/htms/aboutfanconi.htm

Registry for Fanconi Anaemia in India. Aims and Plans of REFAIN. What is Fanconi Anaemia? Purpose of early diagnosis. The need for early diagnosis. To identify the onset of complications (aplasia and malignancy). To take preventive measures to delay the onset of aplasia, if possible. To plan elective surgery when haematologically stable. To identify unaffected siblings. To counsel the family. To help in planning future pregnancies. When should FA be suspected? Children with birth defects.

3

::REFAIN::Registry for Fanconi Anaemia in India::

http://www.refain.org/htms/physicianproforma.htm

Registry for Fanconi Anaemia in India. Aims and Plans of REFAIN. What should a physician do when FA is suspected? Click on the following to download and save the Proforma:. Physician's Proforma - Printable PDF. Once downloaded, open it and take a print out of the proforma. Kindly fill the proforma as accurately as possible and send it to the registry by post. Do confirmatory test for FA, if possible. Management of the patient will be in the hands of the treating physician.

4

::REFAIN::Registry for Fanconi Anaemia in India::

http://www.refain.org/htms/joinrefain.htm

Registry for Fanconi Anaemia in India. Aims and Plans of REFAIN. We welcome you to join REFAIN. Just send us an email with your objectives and contact details and we will contact. You at the earliest. Send an email to: refain@vsnl.net. Best viewed in 1024x768 resolution.

5

::REFAIN::Registry for Fanconi Anaemia in India::

http://www.refain.org/htms/aboutrefain.htm

Registry for Fanconi Anaemia in India. Aims and Plans of REFAIN. The registry for Fanconi Anaemia is based at the Apollo Speciality Hospitals, Chennai. We aim to liaise with other existing registries of FA and help raise awareness among medical fraternity in India about FA and its management and link with centres abroad. Chairman, Apollo Hospitals Enterprise Ltd. Committee members of the Registry. Apollo Specialty Hospital, Chennai. Apollo Specialty Hospital, Chennai. Southern Railway Hospital, Chennai.

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::REFAIN::Registry for Fanconi Anaemia in India::

Registry for Fanconi Anaemia in India. Aims and Plans of REFAIN. The diagnosis of Fanconi anaemia brings a lot of challenges to both the families and treating physicians. We at REFAIN hope to work with you to help improve the standard of care for affected families. First unrerlated BMT in India was done successfully by Dr.Revathi Raj. Best viewed in 1024x768 resolution.

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