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Living with Relapsing Polychondritis | A daily adventure

A daily adventure

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Checking In after my Check Up | Living with Relapsing Polychondritis

https://relapsingpolychondritis.wordpress.com/2017/01/07/checking-in-after-my-check-up

Living with Relapsing Polychondritis. Checking In after my Check Up. January 7, 2017. I had a check up with my specialist today. I thought we’d cover three main topics:. Changing, adding, altering my exiting medication for Relapsing Polychondritis. Add a medication for Fibromyalgia. Talking about my terrible, horrible, no good, very bad knee. That’s pretty much what happened. Here are the results:. I’m in my hotel room tonight processing all of this information. I’m trying really hard to ...If you want t...

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Relapsing Polychondritis Resources | Living with Relapsing Polychondritis

https://relapsingpolychondritis.wordpress.com/relapsing-polychondritis-resources

Living with Relapsing Polychondritis. Relapsing Polychondritis Awareness and Support Foundation Inc. RPASF’s Facebook page:. Https:/ www.facebook.com/RPASFInc/. Relapsing Polychondritis Support Groups. Http:/ www.polychondritis.org/support/. Adding Insult to Injury. Two Firsts in One Day. First Time for Everything. Sometimes It’s the Other Guy. Why My Hearing Aids are Magical. Blog at WordPress.com.

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Living with Relapsing Polychondritis | A daily adventure | Page 2

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Living with Relapsing Polychondritis. February 14, 2017. Yesterday, our area was hit with high winds causing major power outages. I live in an outlying, heavily wooded area so I pay close attention to anything that can knock trees down and interrupt electricity. We’ve been hit with power outages that have lasted up to 8 days and that’s not fun for anyone. I’m happy to report that though my power flickered, my house retained electricity. Hurrah! February 13, 2017. I’m trying to get as organized with...

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November | 2016 | Living with Relapsing Polychondritis

https://relapsingpolychondritis.wordpress.com/2016/11

Living with Relapsing Polychondritis. Archive for November, 2016. At the speed of light on. November 27, 2016. Much to be Thankful For on. November 24, 2016. Not my best day ever on. November 20, 2016. I’m Not Sure How I Feel About This on. November 17, 2016. Might As Well Be On The Moon on. November 15, 2016. Being Right Feels Oh So Wrong on. November 12, 2016. If I weren’t sick, I’d feel great on. November 8, 2016. Laquo; Older Entries. Adding Insult to Injury. Two Firsts in One Day.

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A Snowstorm by any other name… | Living with Relapsing Polychondritis

https://relapsingpolychondritis.wordpress.com/2016/12/30/a-snowstorm-by-any-other-name

Living with Relapsing Polychondritis. A Snowstorm by any other name…. December 30, 2016. My area was supposed to get hit with a 6″ snowstorm today. I hunkered down, preparing to be snowed in for the day. Well, that snowstorm looked a heck of a lot like rain. All. Day. Long. We ended up on the south end of the rain/snow line and no pretty white snow fell on us today. A rainy day hurts just as bad as a snowy day. From → Uncategorized. Leave a Reply Cancel reply. Enter your comment here.

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How do you organize your quilting ideas? - mandalei quilts

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0 items - $. Quilts and Longarm Services. Techniques & Tutorials. Teaching & Speaking. July 26, 2015. How do you organize your quilting ideas? Clearly, I need a better system of organizing these. People have suggested I use Pinterest, and I do for inspirational things. What do you mean, “peel off the sticker”? Right now, I’m trying this index card filing system. It is far from perfect, but at the least, it is a singe place where I can write things down and maybe possibly find them again, right? I keep &#...

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Relapsing polychondritis (RP) is a very rare autoimmune disease characterized by the deterioration of cartilage. The disease is also known as chronic atrophic polychondritis, Meyenburg-Altherr-Uehlinger syndrome, von Meyenburg’s disease, generalized chondromalacia, and systemic chondromalacia. Relapsing polychondritis belongs to the class of rheumatic diseases. Read more…. To spread information concerning relapsing polychondritis;. To collect and share new developments concerning the disease;.

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Living with Relapsing Polychondritis | A daily adventure

Living with Relapsing Polychondritis. January 9, 2017. More Hearing Aid Details. I write this blog for me, to help me process what is happening to my body. I also write this blog to share what I’ve learned in hopes that it will help someone else. I don’t know that this post will help others adjusting to hearing aids, but it might give them something to think about. I told my husband all of this and he was concerned (not my intent). What I mean to say is “These hearing aids are fantastic! This is already ...

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