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Rett Syndrome Database

Back to Patient List. Number of patients in archive: 2018.

http://www.rettdatabasenetwork.org/

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Rett Syndrome Database | rettdatabasenetwork.org Reviews
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Back to Patient List. Number of patients in archive: 2018.
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Rett Syndrome Database | rettdatabasenetwork.org Reviews

https://rettdatabasenetwork.org

Back to Patient List. Number of patients in archive: 2018.

INTERNAL PAGES

rettdatabasenetwork.org rettdatabasenetwork.org
1

Rett Syndrome Database

http://www.rettdatabasenetwork.org/Centerslist.asp?Nation=HR

Back to Patient List. Tone and involuntary movements. Total Inserted Patients: 29 Total Updated Patients: 0.

2

Rett Syndrome Database

http://www.rettdatabasenetwork.org/AboutThisProject.asp

Back to Patient List. To connect the already existing databases and to create a unified repository in Europe. Funded by E-rare (EuroRett grant Coordinator L Villard WP#1 2008-2010). Preliminary results to phase 1. Https:/ www.rettdatabasenetwork.org. To extend the connection to other existing databases worldwide and to give the access to other local and national contributors without pre-existing databases. Funded by RettSearch (Microgrant 2010 to A Renieri). To implement and maintain the database.

3

Rett Syndrome Database

http://www.rettdatabasenetwork.org/HowToJoin.asp

Back to Patient List. This DataBase is designed primarily for the use of clinical researchers and others with an interest in Rett syndrome. Data is entered only by clinical research teams from each participating country. To protect the confidentiality of patients and families, we need to restrict access to those who agree to comply with our rules for data handling. Download the Password request Rett database network.doc (571 KB). Download the Password request Scientific Data retrieval.doc (29 KB).

4

Rett Syndrome Database

http://www.rettdatabasenetwork.org/AccessRules.asp

Back to Patient List. Access rules to Rett database network. There are three different levels of access:. Public has access to the general information and to the description of content. Registered users have access to aggregated data only. Registered users have to disclose their identity, affiliation and have to agree to the data protection policy (HBGRD Human Biobanks and Genetics Research Databases guidelines).

5

Rett Syndrome Database

http://www.rettdatabasenetwork.org/Homepage.asp

Back to Patient List. Number of patients in archive: 2047.

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afsr.fr afsr.fr

Essais thérapeutiques

https://afsr.fr/index.php/le-syndrome-de-rett/recherche/essais-therapeutiques

Le syndrome de Rett. Définition du syndrome de Rett. Les prises en charge : médicales, paramédicales et éducatives. Prise en charge médicale. Prise en charge paramédicale. L'AFSR s'implique dans la recherche. Nos missions et nos actions. Le Conseil Médical et Scientifique. Le Conseil Paramédical et Éducatif. Le soutien aux familles. Comment vivre avec la maladie. Guide des démarches administratives. Les journées d'informations annuelles. Les stages financés par l'AFSR. Forum de discussion Facebook. T&eac...

afsr.fr afsr.fr

La recherche

https://afsr.fr/index.php/le-syndrome-de-rett/recherche

Le syndrome de Rett. Définition du syndrome de Rett. Les prises en charge : médicales, paramédicales et éducatives. Prise en charge médicale. Prise en charge paramédicale. L'AFSR s'implique dans la recherche. Nos missions et nos actions. Le Conseil Médical et Scientifique. Le Conseil Paramédical et Éducatif. Le soutien aux familles. Comment vivre avec la maladie. Guide des démarches administratives. Les journées d'informations annuelles. Les stages financés par l'AFSR. Forum de discussion Facebook. Les &...

rettsyndrome.eu rettsyndrome.eu

Please help maintaining the Rett Syndrome Database Network | Rett Syndrome Europe

http://www.rettsyndrome.eu/news/projects/please-help-maintaining-the-rett-syndrome-database-network

Member Associations Activity Reports. Rett Syndrome Database Network. Drugs that prolong QT. Please help maintaining the Rett Syndrome Database Network. Please help maintaining the Rett Syndrome Database Network. As President of Rett Syndrome Europe, I am writing to you today to ask for your Association’s support for the European Rett database located in Italy: the Rett Syndrome Database Network (RSDN). For more information on the project, please visit https:/ www.rettdatabasenetwork.org. 4/ The data-min...

afsr.fr afsr.fr

Génétique et transmission

https://afsr.fr/index.php/le-syndrome-de-rett/genetique

Le syndrome de Rett. Définition du syndrome de Rett. Les prises en charge : médicales, paramédicales et éducatives. Prise en charge médicale. Prise en charge paramédicale. L'AFSR s'implique dans la recherche. Nos missions et nos actions. Le Conseil Médical et Scientifique. Le Conseil Paramédical et Éducatif. Le soutien aux familles. Comment vivre avec la maladie. Guide des démarches administratives. Les journées d'informations annuelles. Les stages financés par l'AFSR. Forum de discussion Facebook. Le di...

wrsc2016.ru wrsc2016.ru

Научный комитет и спикеры

http://www.wrsc2016.ru/speakers

Мировой конгресс 13 17 мая 2016 года Казань. Вместе поднимаясь над мечтой. Научный комитет и спикеры. Научный комитет и спикеры. Доктор биологических наук, профессор кафедры медицинской генетики Российской Медицинской Академии Последипломного Образования (РМАПО). Заведующий лаборатории молекулярной генетики мозга Научного Центра Психического Здоровья Российской Академии Медицинских Наук. Доктор Эрик Э.Дж. Смитс. Профессор д-р. Леопольд М. Г. Керфс. РАЕ, заведующая лабораторией молекулярной цитогенетики н...

worldcongress2016.rettsyndrome.ru worldcongress2016.rettsyndrome.ru

Научный комитет и спикеры

http://www.worldcongress2016.rettsyndrome.ru/speakers

Мировой конгресс 13 17 мая 2016 года Казань. Вместе поднимаясь над мечтой. Научный комитет и спикеры. Научный комитет и спикеры. Доктор биологических наук, профессор кафедры медицинской генетики Российской Медицинской Академии Последипломного Образования (РМАПО). Заведующий лаборатории молекулярной генетики мозга Научного Центра Психического Здоровья Российской Академии Медицинских Наук. Доктор Эрик Э.Дж. Смитс. Профессор д-р. Леопольд М. Г. Керфс. РАЕ, заведующая лабораторией молекулярной цитогенетики н...

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RettSearch International Consortium

http://www.rettsearch.org/index.jsp

Go to slide one. Go to slide two. Go to slide three. Recent media reports have raised concerns about. The impact of the new diagnostic criteria for autism spectrum disorders. Learn more. Highlighted Article: Pathogenesis of lethal cardiac. Arrhythmias in mecp2 mutant mice: implication for therapy in Rett syndrome. Read full abstract. Highlighted Article: What does the nature of the. MECP2 mutation tell us about parental origin and recurrence risk in Rett syndrome? Read the full abstract.

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Rett Syndrome Database

Back to Patient List. Number of patients in archive: 2018.

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