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Life as a Rett Momma

Life as a Rett Momma. 8220;I thought I would have to teach my daughter about the world. It turns out I have to teach the world about my daughter." - Unknown. Wednesday, July 22, 2015. Let me tell you how I feel about puberty. Like it's a swear word! A nasty condition. A dreaded.incurable something. Aghhh! I nearly hyperventilated on the spot. I mean, we've been warned that girls with Rett often experience early puberty (which just makes it all that much more of a nasty syndrome! Sometimes I'm guilty of l...

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Life as a Rett Momma | rettmomma.blogspot.com Reviews
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Life as a Rett Momma. 8220;I thought I would have to teach my daughter about the world. It turns out I have to teach the world about my daughter. - Unknown. Wednesday, July 22, 2015. Let me tell you how I feel about puberty. Like it's a swear word! A nasty condition. A dreaded.incurable something. Aghhh! I nearly hyperventilated on the spot. I mean, we've been warned that girls with Rett often experience early puberty (which just makes it all that much more of a nasty syndrome! Sometimes I'm guilty of l...
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Life as a Rett Momma | rettmomma.blogspot.com Reviews

https://rettmomma.blogspot.com

Life as a Rett Momma. 8220;I thought I would have to teach my daughter about the world. It turns out I have to teach the world about my daughter." - Unknown. Wednesday, July 22, 2015. Let me tell you how I feel about puberty. Like it's a swear word! A nasty condition. A dreaded.incurable something. Aghhh! I nearly hyperventilated on the spot. I mean, we've been warned that girls with Rett often experience early puberty (which just makes it all that much more of a nasty syndrome! Sometimes I'm guilty of l...

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Life as a Rett Momma: June 2015

http://rettmomma.blogspot.com/2015_06_01_archive.html

Life as a Rett Momma. 8220;I thought I would have to teach my daughter about the world. It turns out I have to teach the world about my daughter." - Unknown. Tuesday, June 9, 2015. When I read all the Rett data initially, I didn't expect Ellie to get big. I expected her to stay small and dainty and frail. Well, she's not! She's all of 70lbs right now and I think the girl has grown a foot this school year! I'm so so very thankful for a few key pieces of equipment.first her carseat! We asked for the Caroli...

2

Life as a Rett Momma: October 2013

http://rettmomma.blogspot.com/2013_10_01_archive.html

Life as a Rett Momma. 8220;I thought I would have to teach my daughter about the world. It turns out I have to teach the world about my daughter." - Unknown. Tuesday, October 29, 2013. Overcoming.Take that Rett! Ellie has learned to use the toilet all the time, which is nothing short of a miracle. A blessing straight from God, really. We are overcomers! Yes, I say that with a fisted arm-pump! She's not known for her gentleness. I pray your fall is equally "full.". Subscribe to: Posts (Atom).

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Life as a Rett Momma: Fall 2014

http://rettmomma.blogspot.com/2014/10/the-last-time-i-posted-here-was-just.html

Life as a Rett Momma. 8220;I thought I would have to teach my daughter about the world. It turns out I have to teach the world about my daughter." - Unknown. Monday, October 27, 2014. The last time I posted here was just prior to the Step Up Event. Seems like so long ago and yet I'm just finally wrapping up all the details from the event. We raised about $4300 for Rett Research (Girls Power 2 Cure)! It's been so much work but it's so rewarding to see each piece come together! He loves to have something t...

4

Life as a Rett Momma: March 2012

http://rettmomma.blogspot.com/2012_03_01_archive.html

Life as a Rett Momma. 8220;I thought I would have to teach my daughter about the world. It turns out I have to teach the world about my daughter." - Unknown. Wednesday, March 28, 2012. Thursday, March 22, 2012. Time goes way too quickly. Ellie's speech device, a Echo2 with a Tobii Eye Gaze, arrived about 8 weeks ago now, it's already in for the repair of a broken screen. Ooops! I feel like I'm telling her "no" more than I ever have had to before. (Simply because she couldn't ASK before!

5

Life as a Rett Momma: April 2013

http://rettmomma.blogspot.com/2013_04_01_archive.html

Life as a Rett Momma. 8220;I thought I would have to teach my daughter about the world. It turns out I have to teach the world about my daughter." - Unknown. Thursday, April 18, 2013. Today's a special anniversary for our family, which means I should blog right? I mean it's only been like 6 months! For example, telling her PT (as she entered the room) that she was "Done.Ready to go home. Frustrated." Gotta love that kind of hear-felt message! After half a dozen sessions practicing riding in the hospital ...

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Life as a Rett Momma

Life as a Rett Momma. 8220;I thought I would have to teach my daughter about the world. It turns out I have to teach the world about my daughter." - Unknown. Wednesday, July 22, 2015. Let me tell you how I feel about puberty. Like it's a swear word! A nasty condition. A dreaded.incurable something. Aghhh! I nearly hyperventilated on the spot. I mean, we've been warned that girls with Rett often experience early puberty (which just makes it all that much more of a nasty syndrome! Sometimes I'm guilty of l...

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