RETTUK.ORG

cdkl5amberandus.blogspot.com

CDKL5, Amber and Us: December 2011

http://cdkl5amberandus.blogspot.com/2011_12_01_archive.html

CDKL5, Amber and Us. There is nothing that can prepare you for having a child with a disability and there is nothing that can prepare you for having a child with CDKL5. Friday, 16 December 2011. I haven’t posted in a couple of weeks! Amber had her 7 day heart monitoring and we haven’t heard anything as yet, although we had the clinic letter which I would say has sent the shivers through me to say the least. She is up and down health wise, and it really is a mystery. I mean I blame Disney! Amber and I wil...

cdkl5amberandus.blogspot.com

CDKL5, Amber and Us: Making "Strides"

http://cdkl5amberandus.blogspot.com/2012/02/making-strides.html

CDKL5, Amber and Us. There is nothing that can prepare you for having a child with a disability and there is nothing that can prepare you for having a child with CDKL5. Sunday, 26 February 2012. A lot has happened since my last post. Time I thought I would write one, something else cropped up and I thought I would wait! He also conducts a lot of research, and I hope he will find the features of CDKL5 interesting, it is very likely that he will not have met a child with CDKL5. The stress of trying to get ...

cdkl5amberandus.blogspot.com

CDKL5, Amber and Us: CDKL5 UK Launch!

http://cdkl5amberandus.blogspot.com/2011/11/cdkl5-uk-launch.html

CDKL5, Amber and Us. There is nothing that can prepare you for having a child with a disability and there is nothing that can prepare you for having a child with CDKL5. Friday, 18 November 2011. Last Saturday I had the honour and privilege to launch CDKL5 UK at the Rett UK Family Weekend in Northampton. Also I was able to launch CDKL5 UK along with Sarah, my co-parent in this endeavour. CDKL5 UK is so lucky to have such a special band of parents that are dedicated in uniting together for a common cause, ...

cdkl5amberandus.blogspot.com

CDKL5, Amber and Us: February 2012

http://cdkl5amberandus.blogspot.com/2012_02_01_archive.html

CDKL5, Amber and Us. There is nothing that can prepare you for having a child with a disability and there is nothing that can prepare you for having a child with CDKL5. Sunday, 26 February 2012. A lot has happened since my last post. Time I thought I would write one, something else cropped up and I thought I would wait! He also conducts a lot of research, and I hope he will find the features of CDKL5 interesting, it is very likely that he will not have met a child with CDKL5. The stress of trying to get ...

cam-productions.co.uk

Susanne Crosby

http://cam-productions.co.uk/sus.htm

The Spark That Lights the Fire and Visiting Hours. Dick Whittington Meets Puss in Boots Panto. Susanne is a national award winning playwright and cofounder of CAM Productions. She started writing and performing in school, and has regularly written and performed in East Sussex since 1998. In addition to CAM, she has performed with Synergy Theatre. In Seaford, Seaford Little Theatre. In Crawley and East Grinstead, Underground Productions in Eastbourne, and regularly performs with the Southwick Players.

cam-productions.co.uk

Andy Crosby

http://cam-productions.co.uk/andy.htm

The Spark That Lights the Fire and Visiting Hours. Dick Whittington Meets Puss in Boots Panto. Set design and set building. Mark in " The Spark. By Susanne Crosby, CAM Productions, in Eastbourne, 2013. Daniel Mason in " Kiss of Doubt. By Susanne Crosby, CAM Productions, in Hailsham, 2011. Mark in "The Spark That Lights the Fire" by Susanne Crosby, CAM Productions, part of " Fire and Ice. Production in Brighton, 2004. Nick in " Midnight Rain. By Susanne Crosby, CAM Productions, in Brighton, 2003. Which is...

accessiblecountryside.org.uk

Disability & Carer Organisations N-Z

http://accessiblecountryside.org.uk/organisations2

Accessible Countryside for Everyone ACE Promoting accessibility to leisure and sport, signposting family, carer and disability support. Jump to main navigation and login. Accessible Sport and Leisure Links. Disability and Carer Organisations A-M. Disability and Carer Organisations N-Z. Accessible Holidays - National and International. Wheelchair and Mobility Scooter Hire - 1 of 2. Wheelchair and Mobility Scooter Hire - 2 of 2. Wheelchair Accessible Vehicle Hire. Request for a sponsored 6 line listing.

derbyshirementalhealthservices.nhs.uk

Learning disabilities

http://derbyshirementalhealthservices.nhs.uk/services/learning-disabilities

Tuesday 23 August 2016. Mental health and emotional wellbeing. Children and young people. Drug and alcohol misuse. Help in a crisis. Recovery and Wellbeing Centre. Infolink Health Resource Directory. Spiritual and pastoral support. Patient experience (complaints and PALS). Centre for Research and Development. Freedom of Information (FOI). Outpatient Appointment Reminder Service. Children and Young People’s Therapy Service Referrals. Mental health and emotional wellbeing. Children and young people. To sup...

seraphinamymiracle.blogspot.com

Seraphina's World: One Word

http://seraphinamymiracle.blogspot.com/2012/02/one-word.html

An ordinary Mum writing about her little girls journey with Rett syndrome and our family journey through life and faith alongside her. Thursday, 16 February 2012. This year I decided to join 'One Word three sixty five' as an alternative to new years resolutions. My one word for this year was - Strength. Since choosing this word I seem to have had many opportunities which require it. Strength of mind, of character, strength in my faith etc neer mind physical strength. Thinking of you Caroline. I cant ...