twystedsam.blogspot.com
Twysted Sam: Why I Walk...
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Friday, March 28, 2014. Walk to Defeat ALS 2013. I'm participating in the Walk to Defeat ALS. On April 12th and I would really appreciate your support! Your tax deductible donation can easily be made by clicking on one of the two Walk to Defeat ALS. Links on the right column of this blog today. One of the Walk slogans is "Why do we walk? A year later, having ALS feels like being in a bad horror movie that only gets worse. On the second floor for weekly massages that helped with my muscle pain. Today ...
twystedsam.blogspot.com
Twysted Sam: September 2013
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Wednesday, September 18, 2013. Things I really miss. Not in any particular order):. Conversations and talking clearly. Cooking for my family. Eating 7 layer dip, chips, and salsa. The ability to swim. Having a happy life. Looking forward to the future. Being the wife and mother I was without this disease. Washing my own hair and shaving my own legs. The happiness of those I love most. Being able to scratch an itch on my shoulder or back. Being able to apply makeup of any kind. Being active and social.
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Twysted Sam: Freedom...
http://twystedsam.blogspot.com/2013/03/freedom.html
Sunday, March 10, 2013. There is a powerful moment at the end of the movie Braveheart. Just before the executioner takes his final swing. William Wallace (played by Mel Gibson), spent from the torture he has endured, gathers his last bit of strength to cry out "Freedom! In a voice that you think is going to be weak but comes out as a rebel yell. I liked it, for real, and I am excited to try more new fishy foods next time, which will probably be this week if I know my boys. My first oil painting. I knew i...
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Twysted Sam: June 2013
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Saturday, June 15, 2013. Baseball and ALS Awareness go hand in hand. ALS Awareness Night with the Suns. Last month I was asked if I would throw out the first pitch on ALS Night at our local minor league baseball stadium, home of the Jacksonville Suns. The ball wouldn't make it to the catcher? Lizzie reading Lou Gehrig's speech. Last Thursday, the big event arrived. The stadium, which is really nice, is right on the river in downtown Jacksonville. As it was ALS Awareness Night, they honored Lou Ge...When ...
twystedsam.blogspot.com
Twysted Sam: December 2014
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Sunday, December 28, 2014. In Loving Memory of Chrystine Marie Lose ( Sam ) Dec 15 1969 - Dec 23 2014. Subscribe to: Posts (Atom). Follow me on Facebook. Follow me on Twitter. In Loving Memory of Chrystine Marie Lose ( Sam ) . Graphic depiction of ALS. Waiting for a better tomorrow. Walk to Defeat ALS - April 2014. Sam's Twysted Ride - FL. Sam's Twysted Ride - CA. Learn more about ALS. View my complete profile. 報道 - Take Your Shoes Off, Watch Your Head. Robin's Journey with ALS. Rambling Man of ALS.
twystedsam.blogspot.com
Twysted Sam: Waiting for a better tomorrow...
http://twystedsam.blogspot.com/2013/10/waiting-for-better-tomorrow.html
Thursday, October 10, 2013. Waiting for a better tomorrow. I am not going to lie, these past few months have been really hard both physically and emotionally. I hear from so many people how, to them, I seem "brave" and "inspirational" but I don't feel that in myself. I feel trapped and alone in this body and life that I once loved and depended on but no longer can. Last month, Dan and I went to the outdoor mall to do some shopping. After getting a great parking. Sunglasses that saved my eye. Me in the ER.
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Twysted Sam: It has been a while...
http://twystedsam.blogspot.com/2014/02/it-has-been-while.html
Wednesday, February 12, 2014. It has been a while. In the months since I last wrote here, life has been.difficult and full of new challenges. For example: Sitting at the computer to type is difficult, typing itself has become quite a challenge as I can now only type with the middle finger on my right hand and I have to use my left arm to support my right. I will make the effort to get back here more often to write and share my experiences once again. Thank you for your patience. Follow me on Facebook.
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Twysted Sam: Happy birthday Uncle Bill ...
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Friday, February 28, 2014. Happy birthday Uncle Bill . Uncle Bill in 2008. I've been thinking of my Uncle Bill a lot this month. Today would have been his 62nd birthday and I know he is being remembered by his wife, his family and his many friends with love. A true act of love and heroism in my book! Happy birthday Uncle Bill and thank you! March 1, 2014 at 7:58 AM. Wishing him a Heavenly Happy Birthday. March 2, 2014 at 7:44 PM. Love, Aunt Lynda. Subscribe to: Post Comments (Atom). Follow me on Facebook.
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Twysted Sam: April 2013
http://twystedsam.blogspot.com/2013_04_01_archive.html
Tuesday, April 30, 2013. An anniversary of sorts. Sunday, April 21, 2013. The SLO Walk to Defeat ALS. On April 13th the Walk to Defeat ALS was held in San Luis Obispo, CA and Sam's Twysted Ride-SLO Team. Was there in support of all of us living with ALS! Although I wasn't able to be there personally, I was there in spirit … and as a cardboard cutout (see if you can spot me in the group photo below)! In our goal to find a cure! In addition to the Walk, my mom and her team collected dozens of item donation...
