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Microdeletion Syndrome 16p11.2-p12.2

Microdeletion Syndrome 16p11.2-p12.2. We are a small family of three: Mom, dad and our daughter Mollie, who is now 7 years old. We live in a town called Aarhus in Denmark. In novmber 2010, we had confirmation of the fact that Mollie has Microdeletion syndrome 16p11.2-p12.2. We have chosen to create a website, as we want to share our experience, or get in contact with parents, who have a child with the same syndrome. In November 2010, there were only seven children worldwide. Just send us an email. Contac...

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Microdeletion Syndrome 16p11.2-p12.2 | ronberg.be Reviews

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Microdeletion Syndrome 16p11.2-p12.2. We are a small family of three: Mom, dad and our daughter Mollie, who is now 7 years old. We live in a town called Aarhus in Denmark. In novmber 2010, we had confirmation of the fact that Mollie has Microdeletion syndrome 16p11.2-p12.2. We have chosen to create a website, as we want to share our experience, or get in contact with parents, who have a child with the same syndrome. In November 2010, there were only seven children worldwide. Just send us an email. Contac...

<META> KEYWORDS

1 appearance

2 physical disabilities

3 hart failure

4 hearing

5 adhd

6 development

7 motor coordination

8 emotional

9 linguistic

10 social behaviour

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appearance,physical disabilities,hart failure,hearing,adhd,development,motor coordination,emotional,linguistic,social behaviour,learning,kindergarten,school,activities,eating,toilet training,reassurance,parenting,other children,thanks

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Microdeletion Syndrome 16p11.2-p12.2 | ronberg.be Reviews

https://ronberg.be

Microdeletion Syndrome 16p11.2-p12.2. We are a small family of three: Mom, dad and our daughter Mollie, who is now 7 years old. We live in a town called Aarhus in Denmark. In novmber 2010, we had confirmation of the fact that Mollie has Microdeletion syndrome 16p11.2-p12.2. We have chosen to create a website, as we want to share our experience, or get in contact with parents, who have a child with the same syndrome. In November 2010, there were only seven children worldwide. Just send us an email. Contac...

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ronberg.be

1

Microdeletion Syndrome 16p11.2-p12.2

http://www.ronberg.be/Social_behaviour.html

The kindergarten staff do whatever they can to adapt Mollie to the social unwritten rules, and we corporate in trying to improve her language. 7 years of age:. We can only be proud of our little girls’ persistence and personality despite the difficulties she has. Contact : info@ronberg.be.

2

Microdeletion Syndrome 16p11.2-p12.2

http://www.ronberg.be/Hart_failure.html

Mollie has a congenital illness: Extrem Steno Fallot. Mollie has been through several large operations during the first year of her life. Since then, Mollie hasn’t had any major problems with her hart failure. However, she will need to have an operation again. Contact : info@ronberg.be.

3

Microdeletion Syndrome 16p11.2-p12.2

http://www.ronberg.be/Toilet_training.html

Mollie still uses a diaper and has no relation to the toilet. We place Mollie on the toilet every day. We use a timer, so she sits there a bit longer, but this has not had a positive result yet. 5 years of age: Mollie has begun to ask to go to the toilet when she has done a pooh in the diaper. 7 years of age: Mollie has still not leaned to use the toilet. Contact : info@ronberg.be.

4

Microdeletion Syndrome 16p11.2-p12.2

http://www.ronberg.be/Eating.html

It has always been difficult for Mollie to chew and swallow the food. She likes food and is not peaky, but to eat the food can cause coughing or vomiting. This happens because she doesn’t chew the food enough and often gets it down the wrong hole. Contact : info@ronberg.be.

5

Microdeletion Syndrome 16p11.2-p12.2

http://www.ronberg.be/Reassurance.html

When we are going on a trip or visiting someone, Mollie always asks a lot of questions. She repeats the same questions again and again. She wants to know where we are going and what we are going to do there. She does this because she has a strong need of understanding and overview. Mollie has and extremely good memory, and she is very visual in her understanding. Contact : info@ronberg.be.

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Microdeletion Syndrome 16p11.2-p12.2

Microdeletion Syndrome 16p11.2-p12.2. We are a small family of three: Mom, dad and our daughter Mollie, who is now 7 years old. We live in a town called Aarhus in Denmark. In novmber 2010, we had confirmation of the fact that Mollie has Microdeletion syndrome 16p11.2-p12.2. We have chosen to create a website, as we want to share our experience, or get in contact with parents, who have a child with the same syndrome. In November 2010, there were only seven children worldwide. Just send us an email. Contac...

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