tillys-house.blogspot.com
Chez Tilly: September 2010
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This is all about Tilly and her family. Tilly has Spinal Muscular Atrophy, a genetic condition which means all her muscles are very weak. Friday, 24 September 2010. The Special Matters’ Support Group was especially welcome this month as we were treated to a visit by members of the Moorlands Therapists. This group volunteers their therapeutic skills to those living with disability, once a month, at a local ‘drop-in’ centre. How inspired is that? Saturday, 18 September 2010. The Power of Love. The girls we...
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Chez Tilly: December 2010
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This is all about Tilly and her family. Tilly has Spinal Muscular Atrophy, a genetic condition which means all her muscles are very weak. Thursday, 9 December 2010. WHEN THE SAINTS COME SKATING IN. I have been hopelessly snowed under and unable to make a visit to Blogsville. I have felt like Bambi on ice, struggling to keep upright on such a slippery surface. Rudyard Sailability cruised into Ipstones Evening Christmas market, an annual fundraising event and highlight of the seasonal calendar. Our val...
tillys-house.blogspot.com
Chez Tilly: May 2011
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This is all about Tilly and her family. Tilly has Spinal Muscular Atrophy, a genetic condition which means all her muscles are very weak. Monday, 23 May 2011. Flicking through the pages of the diary I can't really put my finger on the reason why I've not found the time to visit Blogsville recently- but suffice to say that I've missed it. We were very lucky as we were invited to Treetops for the Royal Wedding - what could be better? Candice and I had lots of special time together on this visit as Tilly ha...
tillys-house.blogspot.com
Chez Tilly: August 2014
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This is all about Tilly and her family. Tilly has Spinal Muscular Atrophy, a genetic condition which means all her muscles are very weak. Tuesday, 5 August 2014. Chip off the old Blog! I have now taken my leave of Bloggsville and am handing over the baton to the ever capable and fabulous Tilly. Please follow her adventures on http:/ www.tillygriffiths.blogspot.co.uk. Subscribe to: Posts (Atom). View my complete profile. Chip off the old Blog! Tilly's Story - on the BBC'. Tilly's Story - on the BBC'.
tillys-house.blogspot.com
Chez Tilly: January 2012
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This is all about Tilly and her family. Tilly has Spinal Muscular Atrophy, a genetic condition which means all her muscles are very weak. Sunday, 1 January 2012. It's the Dog or the Blog! 65279;. 65279;. Lexi's arrival has meant, however, that I have not found a spare moment to visit Blogsville, so I am attempting to do a quick resume with a selection of photos, with a New Year's Resolution that I will try and keep up to date. Paddling on the beach under St. Michael's Mount. Lexi really makes the...
tillys-house.blogspot.com
Chez Tilly: June 2010
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This is all about Tilly and her family. Tilly has Spinal Muscular Atrophy, a genetic condition which means all her muscles are very weak. Wednesday, 23 June 2010. Nothing Worth Having Comes Easy. We had a super time with a group from the “Aiming High” project at the week-end and then Tuesday was non-stop with different groups all day. It was then it was pure joy to see Tilly out sailing after school again teaching Laura, her PA, how to sail. Just another little challenge to add to the pile! Treetops are ...
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Chez Tilly: A Glance back at 2012
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This is all about Tilly and her family. Tilly has Spinal Muscular Atrophy, a genetic condition which means all her muscles are very weak. Wednesday, 9 January 2013. A Glance back at 2012. It seems like a golden opportunity to take a visit to Blogsville and look back at some of the many highlights of 2012. Https:/ www.raysofsunshine.org.uk/. Rays of Sunshine made my dream come true! Meeting Alex in 2011 at Caudwell Children's Butterfly Banquet. Http:/ goape.co.uk/. It was quite terrifying, but also banal ...
tillys-house.blogspot.com
Chez Tilly: March 2011
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This is all about Tilly and her family. Tilly has Spinal Muscular Atrophy, a genetic condition which means all her muscles are very weak. Sunday, 20 March 2011. Two Steps Forward . Suits You, Mi'Lady! 65279; Tilly had her birthday treat over the week-end which started with a girlie lunch and a whirl around the shops with her best friend, Becky. In one particular shop I was struck by their howls and shrieks of devilish delight, which could only mean one thing – they were trying on the posh hats! The girls...
tillys-house.blogspot.com
Chez Tilly: August 2010
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This is all about Tilly and her family. Tilly has Spinal Muscular Atrophy, a genetic condition which means all her muscles are very weak. Tuesday, 24 August 2010. The summer holidays are hurtling by and have been jam-packed with a myriad of activities and events, peppered with the odd days when the girls could chillax and enjoy ‘breakfast in pyjamas, in front of the box’. (I remember it well)! On the second day we all met up at the Lake and we were thrilled to see our new friends on the Lake onboard the ...
tillys-house.blogspot.com
Chez Tilly: July 2010
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This is all about Tilly and her family. Tilly has Spinal Muscular Atrophy, a genetic condition which means all her muscles are very weak. Monday, 26 July 2010. THE CHERRY ON THE TOP! It took no more than a week to dry out after our amazing experience with the Guides paddling on Rudyard Lake in a deluge! The feedback from the soggy Guides has been unanimous – “wicked! 8221; Tilly is obviously a chip off the old block! Time will tell. I also learnt that there is a manual transfer sling available for th...
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