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Jennifer's story | arteriovenous malformation, hydrocephalus, cerebral palsy, blind, epilepsy and a great big heart!

This blog follows the life of Jennifer and her family, written soley by her father. Due to a rare vein malformation (arteriovenous malformation) that bled late in her fetal development she endured massive brain injuries. Due to the massive brain injuries, Jennifer has developed spastic deplegia cerebral palsy, epilepsy and she is cortically blind amongst other things. The blog started as a…

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This blog follows the life of Jennifer and her family, written soley by her father. Due to a rare vein malformation (arteriovenous malformation) that bled late in her fetal development she endured massive brain injuries. Due to the massive brain injuries, Jennifer has developed spastic deplegia cerebral palsy, epilepsy and she is cortically blind amongst other things. The blog started as a…
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Jennifer's story | arteriovenous malformation, hydrocephalus, cerebral palsy, blind, epilepsy and a great big heart! | ryanakajoey.com Reviews

https://ryanakajoey.com

This blog follows the life of Jennifer and her family, written soley by her father. Due to a rare vein malformation (arteriovenous malformation) that bled late in her fetal development she endured massive brain injuries. Due to the massive brain injuries, Jennifer has developed spastic deplegia cerebral palsy, epilepsy and she is cortically blind amongst other things. The blog started as a…

INTERNAL PAGES

ryanakajoey.com ryanakajoey.com
1

The pain and the fear – Jennifer's story

http://ryanakajoey.com/2014/04/18/the-pain-and-the-fear

Arteriovenous malformation, hydrocephalus, cerebral palsy, blind, epilepsy and a great big heart! The pain and the fear. April 18, 2014. April 20, 2014. Like it or not, pain and fear goes hand in hand with cerebral palsy. Jennifer recovered fairly quickly from her operations, she was checked out on a Thursday and by Sunday was pretty much back to her normal self. Or so we thought. …. For her to have discomfort around her operation sores was a given. On the contrary, she hasn’t a chance of understan...

2

The operations (part 2) – Jennifer's story

http://ryanakajoey.com/2014/09/09/the-operations-part-2

Arteriovenous malformation, hydrocephalus, cerebral palsy, blind, epilepsy and a great big heart! The operations (part 2). September 9, 2014. September 9, 2014. The second post about Jennifers operations, the follow up and the results. I read a few blogs about cerebral palsy, and often people comment that there is no information of the results. Well, here they go. We’ll start with the good news…. Jennifer’s body is being taken over by spasticity, and spasticity needs energy, energy burns calories. She&#8...

3

Respite care part2. – Jennifer's story

http://ryanakajoey.com/2013/11/09/respite-care-part2

Arteriovenous malformation, hydrocephalus, cerebral palsy, blind, epilepsy and a great big heart! November 9, 2013. November 11, 2013. Jennifer left on her first trip to her respite care home last weekend. It’s something that’s brings about a mix of emotions. Jennifer’s never spent 1 night without Odrun or I since she was born. Not that sending our child away for a night is a problem, but it suddenly dawned on me why we were doing this…. This wasn’t forced on us, we had a choice. It dawned on me just how...

4

The third year – Jennifer's story

http://ryanakajoey.com/2014/11/22/the-third-year

Arteriovenous malformation, hydrocephalus, cerebral palsy, blind, epilepsy and a great big heart! November 22, 2014. December 6, 2014. Where exactly has this year gone? Feels like yesterday we were getting ready for Jennifer’s operations, or getting ready to take the kids back home to Perth…. If I could sum up this year in one word it’d be progress. Socially, cognitively, some what motorical, her language and last but not least her weight gain. Jennifer will never be fat, get used to it. That feeling of ...

5

The only child – Jennifer's story

http://ryanakajoey.com/2015/01/28/the-only-child

Arteriovenous malformation, hydrocephalus, cerebral palsy, blind, epilepsy and a great big heart! January 28, 2015. January 28, 2015. We may have to two children but I sometimes refer to Emma as an only child. Sometimes that gets me in trouble, sometimes I get ignored and sometimes I get an utter look of disgust…. Just because I refer to my child in any such way, doesn’t mean I love or respect them any less. An independence untoward, you’ll read this one day Emma, you’ll know what I mean. The thing about...

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Jennifer's story | arteriovenous malformation, hydrocephalus, cerebral palsy, blind, epilepsy and a great big heart!

Arteriovenous malformation, hydrocephalus, cerebral palsy, blind, epilepsy and a great big heart! This blog follows the life of Jennifer and her family, written soley by her father. Due to a rare vein malformation (arteriovenous malformation) that bled late in her fetal development she endured massive brain injuries. Due to the massive brain injuries, Jennifer has developed spastic deplegia cerebral palsy, epilepsy and she is cortically blind amongst other things. You can download the initial story here.

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