sandyspencebabies.blogspot.com

Sandy Spence Babies

Madelyn Erin Spence. Born July 5, 2011 at 3:16PM. Died of CDH related complications August 7, 2011 at 9:31PM. This blog follows our family through our pregnancy, her 34 days of life in the NICU and our lives as we learn to go on without her. It is my sincere desire that other families can learn something from us that will save or honor their CDH baby's life. A brief summary of Madelyn's CDH Story. Glossary of CDH Terms. Saturday, August 17, 2013. 6 Create an environment in which your love can be complete...

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Sandy Spence Babies | sandyspencebabies.blogspot.com Reviews

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Madelyn Erin Spence. Born July 5, 2011 at 3:16PM. Died of CDH related complications August 7, 2011 at 9:31PM. This blog follows our family through our pregnancy, her 34 days of life in the NICU and our lives as we learn to go on without her. It is my sincere desire that other families can learn something from us that will save or honor their CDH baby's life. A brief summary of Madelyn's CDH Story. Glossary of CDH Terms. Saturday, August 17, 2013. 6 Create an environment in which your love can be complete...

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Sandy Spence Babies | sandyspencebabies.blogspot.com Reviews

https://sandyspencebabies.blogspot.com

Madelyn Erin Spence. Born July 5, 2011 at 3:16PM. Died of CDH related complications August 7, 2011 at 9:31PM. This blog follows our family through our pregnancy, her 34 days of life in the NICU and our lives as we learn to go on without her. It is my sincere desire that other families can learn something from us that will save or honor their CDH baby's life. A brief summary of Madelyn's CDH Story. Glossary of CDH Terms. Saturday, August 17, 2013. 6 Create an environment in which your love can be complete...

INTERNAL PAGES

sandyspencebabies.blogspot.com

1

Sandy Spence Babies: Giving Up

http://sandyspencebabies.blogspot.com/2013/02/giving-up.html

Madelyn Erin Spence. Born July 5, 2011 at 3:16PM. Died of CDH related complications August 7, 2011 at 9:31PM. This blog follows our family through our pregnancy, her 34 days of life in the NICU and our lives as we learn to go on without her. It is my sincere desire that other families can learn something from us that will save or honor their CDH baby's life. A brief summary of Madelyn's CDH Story. Glossary of CDH Terms. Thursday, February 7, 2013. I imagine that there are people whose child can die in th...

2

Sandy Spence Babies: Maddie's CDH Story

http://sandyspencebabies.blogspot.com/p/maddies-cdh-story.html

Madelyn Erin Spence. Born July 5, 2011 at 3:16PM. Died of CDH related complications August 7, 2011 at 9:31PM. This blog follows our family through our pregnancy, her 34 days of life in the NICU and our lives as we learn to go on without her. It is my sincere desire that other families can learn something from us that will save or honor their CDH baby's life. A brief summary of Madelyn's CDH Story. Glossary of CDH Terms. Over the following months, we learned just how devastating this hernia actually is fo...

3

Sandy Spence Babies: September 2011

http://sandyspencebabies.blogspot.com/2011_09_01_archive.html

Madelyn Erin Spence. Born July 5, 2011 at 3:16PM. Died of CDH related complications August 7, 2011 at 9:31PM. This blog follows our family through our pregnancy, her 34 days of life in the NICU and our lives as we learn to go on without her. It is my sincere desire that other families can learn something from us that will save or honor their CDH baby's life. A brief summary of Madelyn's CDH Story. Glossary of CDH Terms. Wednesday, September 28, 2011. Links to this post. Sunday, September 25, 2011. Please...

4

Sandy Spence Babies: Adapt and Overcome

http://sandyspencebabies.blogspot.com/2013/02/adapt-and-overcome.html

Madelyn Erin Spence. Born July 5, 2011 at 3:16PM. Died of CDH related complications August 7, 2011 at 9:31PM. This blog follows our family through our pregnancy, her 34 days of life in the NICU and our lives as we learn to go on without her. It is my sincere desire that other families can learn something from us that will save or honor their CDH baby's life. A brief summary of Madelyn's CDH Story. Glossary of CDH Terms. Tuesday, February 19, 2013. Although I openly share my fears, my lows and my moments ...

5

Sandy Spence Babies: 30 months

http://sandyspencebabies.blogspot.com/2013/08/30-months.html

Madelyn Erin Spence. Born July 5, 2011 at 3:16PM. Died of CDH related complications August 7, 2011 at 9:31PM. This blog follows our family through our pregnancy, her 34 days of life in the NICU and our lives as we learn to go on without her. It is my sincere desire that other families can learn something from us that will save or honor their CDH baby's life. A brief summary of Madelyn's CDH Story. Glossary of CDH Terms. Saturday, August 17, 2013. 6 Create an environment in which your love can be complete...

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The Journey so far...: September 2012

http://reneedwayne.blogspot.com/2012_09_01_archive.html

The Journey so far. This is a story of our journey. There's no focus as our lives keep being pulled in different directions - its hard to focus when your not in one place long enough to get 'comfortable'. Wednesday, September 12, 2012. Ok, the last few weeks have been a complete whirlwind. This was my Friday night. The next few days saw us saying goodbye to our cousins who visited for the summer and hello to my brother and his wife. She's also gotten better at calling me Mama and pointing at me when she ...

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The Journey so far...: February 2013

http://reneedwayne.blogspot.com/2013_02_01_archive.html

The Journey so far. This is a story of our journey. There's no focus as our lives keep being pulled in different directions - its hard to focus when your not in one place long enough to get 'comfortable'. Wednesday, February 27, 2013. Ok, I’ve had a number of comments about how out of date our blog is. Yes, it is. So I’m making an effort to provide an update on where we are in our lives. As a family, we’re doing great! This winter has been long but fast. Payton continues, health wise, to be doing great.

reneedwayne.blogspot.com

The Journey so far...: July 2013

http://reneedwayne.blogspot.com/2013_07_01_archive.html

The Journey so far. This is a story of our journey. There's no focus as our lives keep being pulled in different directions - its hard to focus when your not in one place long enough to get 'comfortable'. Monday, July 29, 2013. Year 2 Update: Happy Birthday Payton. Yes, its officially here. This is a year I hate to love. I love, love it so much because this. Is the year Payton will become more and more an independent person. For this, I LOVE this age. Yes, at age two I start to fear this. Livy’s wi...

reneedwayne.blogspot.com

The Journey so far...: July 2012

http://reneedwayne.blogspot.com/2012_07_01_archive.html

The Journey so far. This is a story of our journey. There's no focus as our lives keep being pulled in different directions - its hard to focus when your not in one place long enough to get 'comfortable'. Saturday, July 28, 2012. So, a quick Happy Birthday to my Baby Girl. What an amazing year its been. And, what makes it so exciting is how incredibly pleased she is with herself. For the first few days she would walk from point A to B and once she arrived at her destination she would laugh, squeel an...

reneedwayne.blogspot.com

The Journey so far...: August 2013

http://reneedwayne.blogspot.com/2013_08_01_archive.html

The Journey so far. This is a story of our journey. There's no focus as our lives keep being pulled in different directions - its hard to focus when your not in one place long enough to get 'comfortable'. Wednesday, August 14, 2013. On this day not so many years ago, a little angel whispered in my ear:. I'm not telling you its going to be easy, i'm telling you its going to be worth it". Its been so much more than that. Http:/ testofmetal.com/pages/jabr.php. Posted by A Mused. Subscribe to: Posts (Atom).

reneedwayne.blogspot.com

The Journey so far...: A few minor adjustments

http://reneedwayne.blogspot.com/2014/12/a-few-minor-adjustments.html

The Journey so far. This is a story of our journey. There's no focus as our lives keep being pulled in different directions - its hard to focus when your not in one place long enough to get 'comfortable'. Sunday, December 21, 2014. A few minor adjustments. Posted by A Mused. Subscribe to: Post Comments (Atom). A few minor adjustments. Heart Function Team Meeting. My Cardiac Sarcoid - Odds and Sods. Ill Love You Forever. Getting into the swing of things. Other Blogs We Love. CDH Warrior Samuel's Journey.

reneedwayne.blogspot.com

The Journey so far...: My Reality Check

http://reneedwayne.blogspot.com/2014/12/my-reality-check.html

The Journey so far. This is a story of our journey. There's no focus as our lives keep being pulled in different directions - its hard to focus when your not in one place long enough to get 'comfortable'. Saturday, December 13, 2014. My appointment with the cardiologist, as I sat on the cusp of starting prednisone, was whether fluid restrictions were required. He noted that the prednisone would cause me to be thirsty and have cravings, water would help with the cravings and thus he was ok with me not...

reneedwayne.blogspot.com

The Journey so far...: December 2014

http://reneedwayne.blogspot.com/2014_12_01_archive.html

The Journey so far. This is a story of our journey. There's no focus as our lives keep being pulled in different directions - its hard to focus when your not in one place long enough to get 'comfortable'. Monday, December 29, 2014. Just popping in to provide an update as time progresses with the prednisone and other medications. I still get periodic aches and pains and some "not so great sleeps" but nothing like the first few weeks. I'm happy that I'll start weaning in another week and a half. I'...I thi...

finleyanabelle.wordpress.com

Confirmation | Finley Anabelle's Blog

https://finleyanabelle.wordpress.com/2014/06/20/confirmation

For Expecting CDH parents. Finley Anabelle's Blog. Confirmation June 20, 2014. 8212; lizdooley @ 10:55 am. We got the call this morning. The second sample confirmed the findings that Finley has this genetic mutation on the WT1 gene (I believe she said something about Xon10 – will see when she sends me the email). Part of me had been hoping it would come back different. So here we are. A bunch of tests and follow up Doctor appointments, but I must remind myself nothing really has changed. Notify me of new...

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Madelyn Erin Spence. Born July 5, 2011 at 3:16PM. Died of CDH related complications August 7, 2011 at 9:31PM. This blog follows our family through our pregnancy, her 34 days of life in the NICU and our lives as we learn to go on without her. It is my sincere desire that other families can learn something from us that will save or honor their CDH baby's life. A brief summary of Madelyn's CDH Story. Glossary of CDH Terms. Saturday, August 17, 2013. 6 Create an environment in which your love can be complete...

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