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The Singing Advocate

Hello :) my name is Sarah Burgess. I'm a full-time singer/songwriter and full time Duchenne advocate. I have dedicated my life to saving my brother, Jacob. He was diagnosed with a fatal muscle disease...

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The Singing Advocate | sarahburgessmusic.tumblr.com Reviews
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Hello :) my name is Sarah Burgess. I'm a full-time singer/songwriter and full time Duchenne advocate. I have dedicated my life to saving my brother, Jacob. He was diagnosed with a fatal muscle disease...
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The Singing Advocate | sarahburgessmusic.tumblr.com Reviews

https://sarahburgessmusic.tumblr.com

Hello :) my name is Sarah Burgess. I'm a full-time singer/songwriter and full time Duchenne advocate. I have dedicated my life to saving my brother, Jacob. He was diagnosed with a fatal muscle disease...

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1

The Singing Advocate — 79 Days of Duchenne - Press Release

http://sarahburgessmusic.tumblr.com/post/91253988179/79-days-of-duchenne-press-release

Hello :) my name is Sarah Burgess. I'm a full-time singer/songwriter and full time Duchenne advocate. I have dedicated my life to saving my brother, Jacob. He was diagnosed with a fatal muscle disease called Duchenne. 79 Days of Duchenne - Press Release.

2

The Singing Advocate — 79 Days of Duchenne - What it is & how you can...

http://sarahburgessmusic.tumblr.com/post/84348310879/79-days-of-duchenne-what-it-is-how-you-can

Hello :) my name is Sarah Burgess. I'm a full-time singer/songwriter and full time Duchenne advocate. I have dedicated my life to saving my brother, Jacob. He was diagnosed with a fatal muscle disease called Duchenne. 79 Days of Duchenne -. What it is and how you can help! The Run Away Project. There are 79 exons in the dystrophin gene; dystrophin is missing in the body of a child with Duchenne. Without dystrophin, muscles can never repair themselves and get stronger. The plan is to start the. Musicians ...

3

The Singing Advocate — Not taking things personally, especially by...

http://sarahburgessmusic.tumblr.com/post/76123603281/not-taking-things-personally-especially-by

Hello :) my name is Sarah Burgess. I'm a full-time singer/songwriter and full time Duchenne advocate. I have dedicated my life to saving my brother, Jacob. He was diagnosed with a fatal muscle disease called Duchenne. Quotes truth #trust #control #courage #hope #olympics #games #strength.

4

The Singing Advocate — Drawing Out Duchenne

http://sarahburgessmusic.tumblr.com/DrawingOutDuchenne

Hello :) my name is Sarah Burgess. I'm a full-time singer/songwriter and full time Duchenne advocate. I have dedicated my life to saving my brother, Jacob. He was diagnosed with a fatal muscle disease called Duchenne.

5

The Singing Advocate — "Run Away" on Q104 Cleveland

http://sarahburgessmusic.tumblr.com/post/87664946668/run-away-on-q104-cleveland

Hello :) my name is Sarah Burgess. I'm a full-time singer/songwriter and full time Duchenne advocate. I have dedicated my life to saving my brother, Jacob. He was diagnosed with a fatal muscle disease called Duchenne. Ldquo;Run Away” on Q104 Cleveland. Thank you to Brian Wolf for setting up an interview at Q104 Cleveland! Q140 - Fee’s Company gave us the prime time spot to play “Run Away” and for the interview! Tune in to Q104 at: http:/ tunein.com/radio/Q104-1041-s22111. 79 Days of Duchenne. Thanks agai...

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THE RUN AWAY PROJECT. Now available in iTunes and other digital retailers. All proceeds from "Run Away" will be donated to:. LEARN MORE ABOUT RUN AWAY. May 31, 2013. Featuring "Just Me" as performed on Eurovision and the single "Thank You (Very Much For Absolutely Nothing)". Today, September 25th marks the last day of The Run Away Projects, 79 Days of Duchenne . I cannot. Today, September 25th marks the last day of The Run Away Projects, 79 Days of Duchenne . I cannot tell everyone how tha.

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The Singing Advocate

Hello :) my name is Sarah Burgess. I'm a full-time singer/songwriter and full time Duchenne advocate. I have dedicated my life to saving my brother, Jacob. He was diagnosed with a fatal muscle disease called Duchenne. Today, September 25th marks the last day of. The Run Away Projects. The Run Away Projec. To view the videos from the “79 Days of Duchenne”, please go to:. To donate please go to. Today marks Day 2 of the “79 Days of Duchenne”, and I want to really thank. S it deteriorates the muscle far to ...

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