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Defeat ALS: January 2013
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Friday, January 11, 2013. One of the BEST daily emails I subscribe to is called Peaceful Daily. Thank you Sandy for your daily wisdom, and especially for this story.a reminder to me of all the "shit" that's been shoveled my way. it doesn't have to bury me, it can be a way up and out. How are you shaking off the dirt and stepping into your freedom. It's always a choice! With each shovel of dirt that hit his back, the donkey was doing something amazing. He would shake it off and take a step up. As ...MORAL...
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Defeat ALS: August 2010
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Thursday, August 5, 2010. Hospital Gown Confidence = Oxymoron. With my confidence boosted, I was ready for surgery! At 5:30AM, the pre-op nurses, put a quick and decisive end to my adorable-ness when they handed me a bluish-gray, standard-issue, one-size-fits-none, hospital gown w/unmatched robe, white compression stockings, gray slipper socks with white grippey stuff on the top AND the bottom and an over sized "hat" that most self respecting cafeteria workers would not be caught dead in! It will probabl...
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Defeat ALS: November 2009
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Wednesday, November 18, 2009. Angels Among Us.continued. So…hospice is a little tricky, psychologically. Timing is everything! When you turn to hospice, you are admitting that the end of your physical life is somewhat imminent and that you do not want to take any extraordinary measures to extend it. You are going to die. Soon. And you are ok (more or less) with the next steps. Not a decision to be considered lightly! Chaplains can address spiritual needs. Social workers can bring in community resources.
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Defeat ALS: September 2009
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Saturday, September 19, 2009. ALS patients are not babies. I've become a fan of Carla Zilbersmith. Which actually kind of sucks for me because I didn't know her before ALS and would have really liked to. My loss. My only consolation is that I am able to read her blog, admire her joie d'vivre and truly appreciate the tremendous effort that goes into each of her narratives. Her recent post,. Would you trust and allow your spouse, child, parent to be your caregiver? How would you negotiate the boundaries an...
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Defeat ALS: Anniversary #2
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Wednesday, January 2, 2013. June 18th of 2012 marked the 2nd anniversary of my mastectomy surgery. The day passed by pretty quietly! It seems so long ago and yet almost like yesterday. Time is funny! Daily, I'm reminded of my surgery as I inspect my surgical scars. As scars go, I think they're quite beautiful! Is truly an artist! Subscribe to: Post Comments (Atom). Dedicated to the ones we love. This BLOG is dedicated to my late husband Bill Lichtig, who lost his battle with familial ALS on Aug. 10, ...
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Defeat ALS: Grieving is funny business
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Saturday, January 5, 2013. Grieving is funny business. Dec 1981. L-R Back: Dad, Auntie Shirl, Mom. Middle: Nam and Mac. Front: Grampy and Grammy. Over the years, I've worked through the loss of people I dearly love; my dad, 25 years ago; all of my grandparents; a couple of friends from my youth; and Bill, a little over 7 years ago. I know definitively that I am resliant. I don't stay sad for too long. I always bounce back from loss. Way before 'authentic' found its way into our vocabulary. These qual...
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Defeat ALS: January 2010
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Wednesday, January 20, 2010. ALS claims tireless California ALS Advocate Steve Hall. I met Steve Hall. On Thursday, January 28th, a floor session is scheduled in the California Senate. Senate President pro Tem Darrell Steinberg. Will speak about Steve’s life, his battle with ALS, and adjourn the California Senate in his memory. It is with a heavy heart, that I share with you news I received this evening that Steve Hall passed away this afternoon due to the ravages of ALS (Lou Gehrig's Disease). I am bles...
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Defeat ALS: June 2009
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Thursday, June 25, 2009. Aftermarket add-ons for your wheelchair – Safety and Style. A while back, I wrote about the horn Bill and his brother rigged up for his motorized wheelchair. If you missed it, read "Aftermarket add-ons for your wheelchair - The Horn". Here is the story of a few OTHER additions made to the chair. About two and a half hours later he returned with a buzzcut and a “mad-on”. Dear Lord…he wasn’t gone that long, what could possibly have happened? We started to draw a small crowd! Silk d...
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Defeat ALS: June 2008
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Sunday, June 22, 2008. Do not wait as long as I did! Ask for help / receive offers for help graciously. We are not programmed to receive help. How often is it beat into our heads (from childhood! 8220;it is better to give than to receive”? Well, the truth is, somebody forgot to close the loop on this little axiom. If nobody receives, it makes it damn HARD to give! You have something different to talk about besides ALS! I always had a backpack stocked (think diaper bag! And several friends learned how to ...
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Defeat ALS: Happy New Year 2013!!
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Tuesday, January 1, 2013. Happy New Year 2013! I've been writing in a notebook for about a year, capturing random thoughts around ALS, Bill's life, our adventures with ALS and a little about my post-ALS journey. One of my resolutions for the new year is to write regularly. My intent is to have this resolution last longer than most! May 2013 support your resolutions and bring all that you hope for! Subscribe to: Post Comments (Atom). Dedicated to the ones we love. Grieving is funny business. Click the pho...
