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Welcome to my Web Site! On January 23, 2002 I was diagnosed with Hurler's Syndrome. My Mommy and Daddy have put together this blog to help my family and friends stay up to date on my treatment and recovery. This picture is of me in 2009! Monday, October 26, 2009. October 26, 2009 - about 7 1/2 years post transplant. Hey everyone. Yes, it has been a VERY LONG TIME! She continues on at school with an educational aid, but I am told she could probably pass without one. We keep on helping though to make s...

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Sarah's Page | sarahspage-tbfh.blogspot.com Reviews
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Welcome to my Web Site! On January 23, 2002 I was diagnosed with Hurler's Syndrome. My Mommy and Daddy have put together this blog to help my family and friends stay up to date on my treatment and recovery. This picture is of me in 2009! Monday, October 26, 2009. October 26, 2009 - about 7 1/2 years post transplant. Hey everyone. Yes, it has been a VERY LONG TIME! She continues on at school with an educational aid, but I am told she could probably pass without one. We keep on helping though to make s...
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Sarah's Page | sarahspage-tbfh.blogspot.com Reviews

https://sarahspage-tbfh.blogspot.com

Welcome to my Web Site! On January 23, 2002 I was diagnosed with Hurler's Syndrome. My Mommy and Daddy have put together this blog to help my family and friends stay up to date on my treatment and recovery. This picture is of me in 2009! Monday, October 26, 2009. October 26, 2009 - about 7 1/2 years post transplant. Hey everyone. Yes, it has been a VERY LONG TIME! She continues on at school with an educational aid, but I am told she could probably pass without one. We keep on helping though to make s...

INTERNAL PAGES

sarahspage-tbfh.blogspot.com sarahspage-tbfh.blogspot.com
1

Sarah's Page: July 13, 2002 Day +30

http://sarahspage-tbfh.blogspot.com/2009/10/july-13-2002-day-30.html

Welcome to my Web Site! On January 23, 2002 I was diagnosed with Hurler's Syndrome. My Mommy and Daddy have put together this blog to help my family and friends stay up to date on my treatment and recovery. This picture is of me in 2009! Thursday, October 22, 2009. July 13, 2002 Day 30. I don't think I'll be posting updates as often now we are home (it takes time to care for TWO kids and a house)! He even gave us his own bed when Daniel came to visit. Words can't describe his generosity and we will b...

2

Sarah's Page: July 5, 2002 Day +22

http://sarahspage-tbfh.blogspot.com/2009/10/july-5-2002-day-22.html

Welcome to my Web Site! On January 23, 2002 I was diagnosed with Hurler's Syndrome. My Mommy and Daddy have put together this blog to help my family and friends stay up to date on my treatment and recovery. This picture is of me in 2009! Thursday, October 22, 2009. July 5, 2002 Day 22. In any event, they will send us home probably by the end of next week! Subscribe to: Post Comments (Atom). The UK MPS Society. The American MPS Society. Bone Marrow Donor Registration. Sarah in the News. Playing on the Deck.

3

Sarah's Page: July 19, 2002 Day +36

http://sarahspage-tbfh.blogspot.com/2009/10/july-19-2002-day-36.html

Welcome to my Web Site! On January 23, 2002 I was diagnosed with Hurler's Syndrome. My Mommy and Daddy have put together this blog to help my family and friends stay up to date on my treatment and recovery. This picture is of me in 2009! Thursday, October 22, 2009. July 19, 2002 Day 36. Well, we haven't been absent from our site for bad reasons - it is just that we are busy getting on with living our pseudo-normal lives! Monday morning the nurses came to get Sarah's blood for her weekly tests. As onl...

4

Sarah's Page: July 6, 2002 Day +23

http://sarahspage-tbfh.blogspot.com/2009/10/july-6-2002-day-23.html

Welcome to my Web Site! On January 23, 2002 I was diagnosed with Hurler's Syndrome. My Mommy and Daddy have put together this blog to help my family and friends stay up to date on my treatment and recovery. This picture is of me in 2009! Thursday, October 22, 2009. July 6, 2002 Day 23. Some little girl was tired today! Well that's what happens when you stay up playing till 10:00 pm the night before! After a little snooze, she had a little visit, a little lunch, and a much more pleasant day. July 19, 2002...

5

Sarah's Page: July 9, 2002 Day +26

http://sarahspage-tbfh.blogspot.com/2009/10/july-9-2002-day-26.html

Welcome to my Web Site! On January 23, 2002 I was diagnosed with Hurler's Syndrome. My Mommy and Daddy have put together this blog to help my family and friends stay up to date on my treatment and recovery. This picture is of me in 2009! Thursday, October 22, 2009. July 9, 2002 Day 26. It was good to get into my home. I don't think I have ever been so happy to clean house. Well, barring unforeseen complications, we should be home on Thursday. I am so looking forward to getting Daniel and Sarah home t...

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Sarah's Page

Welcome to my Web Site! On January 23, 2002 I was diagnosed with Hurler's Syndrome. My Mommy and Daddy have put together this blog to help my family and friends stay up to date on my treatment and recovery. This picture is of me in 2009! Monday, October 26, 2009. October 26, 2009 - about 7 1/2 years post transplant. Hey everyone. Yes, it has been a VERY LONG TIME! She continues on at school with an educational aid, but I am told she could probably pass without one. We keep on helping though to make s...

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