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Savannah's Heart

We want to thank you for taking an interest in Savannah’s story. If you’d like to learn more about Miss Savannah and what heterotaxy syndrome is, check out our About page. This site was not setup as a way to beg or seek pity, but rather to share Savannah’s story and share the very real needs facing our family. For those that can and want to help, we hope this site can help you do just that through our How To Help page. Ryan and Lori Hensler. Help Savannah’s Heart. Life in the CICU.

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Savannah's Heart | savannahsheart.com Reviews
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We want to thank you for taking an interest in Savannah’s story. If you’d like to learn more about Miss Savannah and what heterotaxy syndrome is, check out our About page. This site was not setup as a way to beg or seek pity, but rather to share Savannah’s story and share the very real needs facing our family. For those that can and want to help, we hope this site can help you do just that through our How To Help page. Ryan and Lori Hensler. Help Savannah’s Heart. Life in the CICU.
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Savannah's Heart | savannahsheart.com Reviews

https://savannahsheart.com

We want to thank you for taking an interest in Savannah’s story. If you’d like to learn more about Miss Savannah and what heterotaxy syndrome is, check out our About page. This site was not setup as a way to beg or seek pity, but rather to share Savannah’s story and share the very real needs facing our family. For those that can and want to help, we hope this site can help you do just that through our How To Help page. Ryan and Lori Hensler. Help Savannah’s Heart. Life in the CICU.

INTERNAL PAGES

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1

Dad | Savannah's Heart

http://www.savannahsheart.com/category/dad

October 6, 2015. Ever since Savannah’s bivent surgery in May, she just hasn’t been herself. We knew that there were continued issues within her heart, in particular with her AV valves. This led us to Cincinnati several times for chest x-rays to check fluid. Continue reading →. July 26, 2015. Life in the CICU. May 24, 2015. May 19, 2015. In short, Savannah’s surgery was a success. She has a four chamber heart! This is Ridiculously Hard. May 17, 2015. This is so very hard. The heaviness and reality of ...

2

Life in the CICU | Savannah's Heart

http://www.savannahsheart.com/life-in-the-cicu

Life in the CICU. May 24, 2015. Otherwise, Savannah is now slowing waking up from sedation. This is being done very slowly, over the course of several days. She is still on a ventilator, but we hope she can get off that tomorrow, Monday, May 25. We are also waiting for her GI tract to wake up, so we’re anxiously anticipating the all important bowel movement. This entry was posted in Dad. Our Journey Home →. Leave a Reply Cancel reply. Help Savannah’s Heart. Life in the CICU. This is Ridiculously Hard.

3

Prayer Wall | Savannah's Heart

http://www.savannahsheart.com/prayer-wall

In the book of Luke, Jesus does many miracles by healing the sick. In reading the Apostle Paul’s letter to the church in Philippi, we’re reminded of God’s promise to us regarding prayer. Do not be anxious about anything, but in every situation, by prayer and petition, with thanksgiving, present your requests to God. And the peace of God, which transcends all understanding, will guard your hearts and your minds in Christ Jesus. Philippians 4:6-7 (NIV). August 21, 2013 at 11:42 AM. But most of all God, let...

4

Our Journey Home | Savannah's Heart

http://www.savannahsheart.com/our-journey-home

July 26, 2015. About 15 minutes into the flight, Savannah started to get cranky. She started crying. It quickly reached inconsolable levels. She then proceeded to vomit. I think she ended up vomiting like 3 times during the flight. After about 20 or 30 minutes, x-rays were taken, the vascular access team had an IV in her, and we were set for admission. So we went from leaving Boston on Friday, and by Sunday she was readmitted to Cincinnati Children’s. This entry was posted in Dad. Life in the CICU.

5

This is Ridiculously Hard | Savannah's Heart

http://www.savannahsheart.com/this-is-ridiculously-hard

This is Ridiculously Hard. May 17, 2015. On some level, there’s a feeling of responsibility for my child’s “birth defects.” It’s as if in some way it’s my fault she was born this way. After all, I did play a role in conceiving her. But all in all, no one knows why babies are born with heterotaxy. It’s not like Lori or I did something wrong! There’s just that unavoidable parental responsibility that weighs on my conscience – rationally or irrationally. 8221; What if something bad happens? You and your fam...

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Ackerman Antics: Hoppy Easter!

http://ackermanantics.blogspot.com/2015/04/hoppy-easter.html

Tuesday, April 14, 2015. Bean got to eat a cupcake to celebrate April's Birthday! She was loving it! Bean got really attached to Gabbie. She loved playing kitchen with her.). While I was running, I thought about all the years I've been on that track for gym class and activities in school. In that 1 instance of running 4.5 miles, I'm convinced that was the most running I've ever done on that track throughout my entire 13 years at that school (kind of a cool feeling! Girls dyeing the eggs together! We each...

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Ackerman Antics: Indiana Visit & A Really Bad Day

http://ackermanantics.blogspot.com/2015/03/indiana-visit-really-bad-day.html

Saturday, March 28, 2015. Indiana Visit and A Really Bad Day. A couple weekends ago, we headed in to Indiana for the first time since Christmas (which is too long in my book)! We were headed back so that I could judge in the annual piano contest that I've been involved with since I was young. I've been back to be a judge for the past 4-5 years and always have a good time doing it. She loved all the attention! Oliver - 15 months, Emily - 11, Allie - almost 9, Bean - 17 months,. Steve held Bean in the fron...

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Ackerman Antics: March 2015

http://ackermanantics.blogspot.com/2015_03_01_archive.html

Monday, March 30, 2015. Out of the Gate. Who says kids need toys? These milk jugs provided hours of fun. We had been saving them for sap season; however, the winter/spring weather has been to crazy to have a consistent sap season so we called it quits before the tapping happened.). And when the milk jugs are recycled, full Powerade bottles will suffice. These had an extra element of fun - getting them out of the cabinet and carrying them one by one to the steps.). Her toys have recently upgraded to an ol...

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Ackerman Antics: November 2014

http://ackermanantics.blogspot.com/2014_11_01_archive.html

Monday, November 17, 2014. Bean Update - 13 months! 1 year old is a very FUN age! Bean just hit 13 months old yesterday! She seems to have grown a ton this month. I don't have her actual weight and height, but can tell by how her clothes are fitting and picking her up. She currently wears size 18 months, but that's quickly becoming too small! She's ready for the next size - 24 months? How is she this big? She's not walking yet, but she's getting so close! For naps, we've dropped the morning nap. It w...

ackermanantics.blogspot.com ackermanantics.blogspot.com

Ackerman Antics: September 2014

http://ackermanantics.blogspot.com/2014_09_01_archive.html

Monday, September 29, 2014. I am still running! I have consistently ran 3 times a week for the past 8 weeks. For anyone who knows me - that is a HUGE accomplishment. This is by far, the longest I've stuck to some sort of exercise regimen. I can actually say that I. Tolerate running. I don't like thinking about doing it, but when I'm out there doing it, I don't mind it (but boy am I always happy to be done! In the past 2 months I've logged almost 50 miles! I have lost zero weight since I've started this e...

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Savannah's Heart

We want to thank you for taking an interest in Savannah’s story. If you’d like to learn more about Miss Savannah and what heterotaxy syndrome is, check out our About page. This site was not setup as a way to beg or seek pity, but rather to share Savannah’s story and share the very real needs facing our family. For those that can and want to help, we hope this site can help you do just that through our How To Help page. Ryan and Lori Hensler. Help Savannah’s Heart. Life in the CICU.

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