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Bo Blog (the crucible...)

Bo Blog (the crucible.). Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story. Monday, July 6, 2015. Tuesday, April 14, 2015. While it is true that Bo brought me to t...

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Bo Blog (the crucible...) | schnazberry.blogspot.com Reviews

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Bo Blog (the crucible.). Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story. Monday, July 6, 2015. Tuesday, April 14, 2015. While it is true that Bo brought me to t...

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1 line repair serendipity

2 posted by

3 the crucible

4 no comments

5 easter season

6 happy easter

7 bo and family

8 1 comment

9 liebster

10 jane thrive

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Bo Blog (the crucible...) | schnazberry.blogspot.com Reviews

https://schnazberry.blogspot.com

Bo Blog (the crucible.). Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story. Monday, July 6, 2015. Tuesday, April 14, 2015. While it is true that Bo brought me to t...

INTERNAL PAGES

schnazberry.blogspot.com

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Bo Blog (the crucible...): May 28, 2014

http://schnazberry.blogspot.com/2014_05_28_archive.html

Bo Blog (the crucible.). Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story. Wednesday, May 28, 2014. 15 minutes and 3 seconds to spare. Subscribe to: Posts (Atom).

2

Bo Blog (the crucible...): Easter Season

http://schnazberry.blogspot.com/2015/04/easter-season.html

Bo Blog (the crucible.). Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story. Tuesday, April 14, 2015. He understands the longer days due to the motion of the heaven...

3

Bo Blog (the crucible...): 15 minutes and 3 seconds to spare

http://schnazberry.blogspot.com/2014/05/15-minutes-and-3-seconds-to-spare.html

Bo Blog (the crucible.). Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story. Wednesday, May 28, 2014. 15 minutes and 3 seconds to spare. A New Earth by Eckert Tolle.

4

Bo Blog (the crucible...): Jun 18, 2014

http://schnazberry.blogspot.com/2014_06_18_archive.html

Bo Blog (the crucible.). Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story. Wednesday, June 18, 2014. First, I would like to thank. Random Facts About Me. 3 I went...

5

Bo Blog (the crucible...): Line Repair Serendipity

http://schnazberry.blogspot.com/2015/07/line-repair-serendipity.html

Bo Blog (the crucible.). Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story. Monday, July 6, 2015. Subscribe to: Post Comments (Atom). A New Earth by Eckert Tolle.

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survivelovethrive.blogspot.com

Survive, Live, Thrive: Looking up

http://survivelovethrive.blogspot.com/2015/08/looking-up.html

Survive, Live, Thrive. Blended family adventures and loving our new life! While also co-parenting with an ex who used to abuse us.). Tuesday, August 4, 2015. Things are looking up lately—DD1 is all settled into her school year, excited that she’s remained in her reading advanced class and it looks like she was elevated to the math advanced class this year, too. I’m so proud of her! She really worked hard for the math, since she wasn’t in it last year. I can’t believe how fast she’s growing up. I’m ...

survivelovethrive.blogspot.com

Survive, Live, Thrive: April 2015

http://survivelovethrive.blogspot.com/2015_04_01_archive.html

Survive, Live, Thrive. Blended family adventures and loving our new life! While also co-parenting with an ex who used to abuse us.). Wednesday, April 29, 2015. Keeping an Eye Out on Ladybug. So little sister Ladybug is this energizer bunny, loving, hilarious, jumping bean; she is either in a state of motion or fast asleep. Sorry for the digression. We stopped going to gymnastics last month because she was displaying big reluctance (which was weird, because when she started last fall, she loved it. And de...

survivelovethrive.blogspot.com

Survive, Live, Thrive: February 2015

http://survivelovethrive.blogspot.com/2015_02_01_archive.html

Survive, Live, Thrive. Blended family adventures and loving our new life! While also co-parenting with an ex who used to abuse us.). Tuesday, February 24, 2015. Happy birthday party, DD2! I threw DD2’s birthday party at her gymnastics gym. I can’t tell you how happy I was to see her and her little preschool pals bouncing around the floor, balance beam, trampoline, and jumping into “the pit” (aka a bunch of blue squishy blocks built into a pit into the floor). At the end, one pal had a melt down because s...

survivelovethrive.blogspot.com

Survive, Live, Thrive: An anniversary of sorts...

http://survivelovethrive.blogspot.com/2015/08/an-anniversary-of-sorts.html

Survive, Live, Thrive. Blended family adventures and loving our new life! While also co-parenting with an ex who used to abuse us.). Tuesday, August 11, 2015. An anniversary of sorts. A few days ago marks four years since my ex moved out of the house. 8220;Just you wait,” he said, “You’ll miss how much I do around here.”. No swearing in the mornings. No breaking toys or plates or dishes or throwing remote controls or balls at bookshelves. No shoving or kicking or pushing or yelling. The list could go on.

tessavanloosen.blogspot.com

Tessa van Loosen: That's me!!!

http://tessavanloosen.blogspot.com/2011/03/thats-me.html

Donderdag 24 maart 2011. Abonneren op: Reacties plaatsen (Atom). Hoi allemaal, Ik ben Tessa van Loosen, geboren 16 januari 2010. Ik heb een ernstige erfelijke darmziekte: Microvillus Inclusion Disease. Op deze weblog zal ik schrijven hoe het met me gaat! Mijn volledige profiel weergeven. Andere kinderen met MVID. Microvillus Inclusion Disease (wikipedia). Artikel Trouw mei 2010. 2 keer kleur (sieraden,speelkleden,labeldoekjes enz. voor het goede doel). MIDshop (sieraden e.d. voor het goede doel).

tessavanloosen.blogspot.com

Tessa van Loosen: Snelle update!!!

http://tessavanloosen.blogspot.com/2012/05/hallo-lezers-ik-zal-even-een-update.html

Donderdag 24 mei 2012. Ik zal even een update plaatsen, want het is wel heeeeeeeeel erg lang geleden. Ik blik terug vanaf afgelopen zomer 2011. Tessa kwam hierdoor op de Intensive Care terecht in Amsterdam. Daar werd ze in slaap gehouden en lag ze aan de beademing. Gelukkig sloeg de antibiotica aan en konden we uiteindelijk na twee weken weer naar huis! Ik moet zeggen dat zijn heftige dingen die je meemaakt in je leven. Lennart en ik zijn er altijd bij. Fijn dat het kan! We zijn in ieder geval super dank...

tessavanloosen.blogspot.com

Tessa van Loosen: januari 2011

http://tessavanloosen.blogspot.com/2011_01_01_archive.html

Vrijdag 21 januari 2011. T was een top dag! Zaterdag 15 januari 2011. Morgen is het zover! Ik lig nu al lekker op bed en ben gelukkig alweer aardig opgeknapt. Ik had namelijk al twee weken verhoging en ben met mama bloed wezen prikken woensdag. Hieruit bleek dat het niet om een infectie ging, dus waarschijnlijk een virusje (maar ook waren er weer twee tanden door) Gister spoot mijn infuuslijn ineens slechter door, dus moesten we een dagje logen! Gelukkig liep m'n infuus vanmorgen weer beter!

solarwomen.wordpress.com

Demystifying the BILE ACID TEST using Shaili’s results | Ming's Dog Blog

https://solarwomen.wordpress.com/2009/01/17/demystifying-the-bile-acid-test-using-shailis-results

Ming’s Dog Blog. Demystifying the BILE ACID TEST using Shaili’s results. January 17, 2009. Providing the explanation took much longer than expected. I did numerous rewrites, checked my facts, had my sister who is a microbiologist proof it, and read it to various people to see if it was easily understood. I have not done the ALT or bilirubin write-ups yet, but they’re coming. Please note that the BAT is usually one of several tests in a panel of tests for liver disease. Fasting Bile Acid Test (BAT):.

faiths-place-08.blogspot.com

Faith's Place: Late night party :)

http://faiths-place-08.blogspot.com/2013/06/late-night-party.html

God is our merciful Father and the source of all comfort. He comforts us in all our troubles so that we can comfort others. When they are troubled, we will be able to give them the same comfort God has given us. 2 Corinthians 1:3b-4, NLT). Sunday, June 9, 2013. Late night party :). The anesthesiologist called me earlier tonight to see if I had any questions, and told me that because of some new HIPAA thing, they don't release the medical charts to him until the day of! Subscribe to: Post Comments (Atom).

faiths-place-08.blogspot.com

Faith's Place: And away we go!

http://faiths-place-08.blogspot.com/2013/06/and-away-we-go.html

God is our merciful Father and the source of all comfort. He comforts us in all our troubles so that we can comfort others. When they are troubled, we will be able to give them the same comfort God has given us. 2 Corinthians 1:3b-4, NLT). Tuesday, June 11, 2013. And away we go! Her guts are working. And I am signing discharge papers! Happy Birthday to me! Subscribe to: Post Comments (Atom). Welcome to Faith's Place! She learned to eat and drink by mouth, and by 18 months old, she was 100% orally fed!

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Bo Blog (the crucible...)

Bo Blog (the crucible.). Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story. Monday, July 6, 2015. Tuesday, April 14, 2015. While it is true that Bo brought me to t...

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