toms.page.us
Medical | My Unfinished Story
http://toms.page.us/category/medical
Views from a Somewhat Not so Ordinary Life. Archive for the ‘Medical’ Category. June 30th, 2010 No Comments. Back in April I responded to a posting on the DMD Pioneers mailing list titled “What the Heck is Glossopharyngeal Breathing? 8221; stating that it was a technique also called “frog breathing” and I have been using it for years. The next day I was contacted to write an article for “Ventilator Assisted Living“. When I […]. 1, 2, 3… Yank! March 27th, 2009 1 Comment. The ‘Manny’ Event. Middot; Design ...
bostongimp.blogspot.com
Living With DMD - Not The End: February 2011
http://bostongimp.blogspot.com/2011_02_01_archive.html
Living With DMD - Not The End. Put simply, this blog is a chronicle of living with Duchenne Muscular Dystrophy (DMD). Sunday, February 20, 2011. 43 Years Of Kicking DMD's Arse! After getting positioned in my wheelchair, one of the RNs came in and put a cardboard crown on my head. It was similar to the one you used to get at Burger King. I'm not sure if they still have them. Anyhow, the banner on my portable ventilator soon became my sash. I was king for a day minus the power one wields. I've spent a good...
bostongimp.blogspot.com
Living With DMD - Not The End: A Very Special Visit
http://bostongimp.blogspot.com/2011/08/very-special-visit.html
Living With DMD - Not The End. Put simply, this blog is a chronicle of living with Duchenne Muscular Dystrophy (DMD). Wednesday, August 17, 2011. A Very Special Visit. This past Sunday August 14th was a special day for me. Why, do you ask? For those of you who don't know who Matt Barlow is, he was the vocalist for Iced Earth from (1995-2003 and 2007-2011). He officially retired from Iced Earth on August 6th after the band's awesome performance at the Wacken Open Air Festival in Germany. In March 28th I s...
bostongimp.blogspot.com
Living With DMD - Not The End: March 2011
http://bostongimp.blogspot.com/2011_03_01_archive.html
Living With DMD - Not The End. Put simply, this blog is a chronicle of living with Duchenne Muscular Dystrophy (DMD). Tuesday, March 8, 2011. Subscribe to: Posts (Atom). I'm 45 and have Duchenne Muscular Dystrophy (DMD) and I'm ventilator dependent. I have lived in a rehab hospital since August, 14 1990. View my complete profile. The word from Old Scituate Light. A Big January Tide. How To Heal Your Gut and Get Back Into Shape. Part 2: Nepal and the Muscular Dystrophy Foundation Pictures.
nodakwheeler.blogspot.com
Mark in Montana: March 2010
http://nodakwheeler.blogspot.com/2010_03_01_archive.html
Sunday, March 28, 2010. I've been awaiting a response on my journalism school application and last Wednesday I received a long white envelope in the mail from the university. My heart was racing as my nurse opened the envelope and began reading. She started saying something about congratulations and I let out a yell. I sat stunned in my van while learning I'll be an official journalism student this fall! I can't thank you enough. Saturday, March 13, 2010. A couple weeks ago we were given probably the har...
nodakwheeler.blogspot.com
Mark in Montana: September 2009
http://nodakwheeler.blogspot.com/2009_09_01_archive.html
Thursday, September 10, 2009. I’m happy to report that I independently took my own pictures on Tuesday. It has taken weeks of planning and research to get to this point but the wait has been worth it. You may be wondering how this is possible. Well here’s my setup. There are a few people I have to thank for making this all possible. Dick at Conceptus Remote Switches. For letting me demo the bite switch. Scott Sands. School has gotten off to a quick start. It’s hard to believe that two weeks are...Student...
nodakwheeler.blogspot.com
Mark in Montana: July 2010
http://nodakwheeler.blogspot.com/2010_07_01_archive.html
Thursday, July 08, 2010. Life here in Missoula has slowed down after summer school wrapped and I've started enjoying summertime. It feels good to have had a successful summer class and there was so much I was able to learn. Hope everyone's summer is going great and hopefully I'll be back with another update real soon. Subscribe to: Posts (Atom). Missoula, Montana, United States. Student journalist, vent user, disability activist, pugaholic. View my complete profile. Adventures of Carter Blaze.
nodakwheeler.blogspot.com
Mark in Montana: August 2009
http://nodakwheeler.blogspot.com/2009_08_01_archive.html
Monday, August 31, 2009. The sip and puff pole was in for repair so I didn't make an attempt. The good news is that Montech is working at getting in a switch operated automatic rod and reel setup. I can't wait to give it a test drive when it comes in. Thanks to the folks at Summit and Montech for their efforts at making this outing possible. Monday, August 24, 2009. The most troubling thing to me about living with a progressive disease is the lack of recreational outlets. For many the desire is there...
