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Community localizator | ZBSN
http://zbsn.org/community/community-localizator
Find us on Facebook and add yourself to our map. Get one step close to a cure! Get more info about ZBSN. Zellweger Baby Support Network. Non-profit organizational ID: NS012973. Web design provided by Services for Designers LLC. Design and development by Hello!
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Single-Enzyme | ZBSN
http://zbsn.org/knowledge/single-enzyme
There are at least 10 different disorders in which there is a deficiency of a single peroxisomal enzyme but the structure of the peroxisome is intact. They fall under these catagories: peroxisomal beta-oxidation disorders, disorders of ether-phospholipid biosynthesis, and disorders of fatty-acid alpha-oxidation. In the cerebral form, signs show up at 4-8 years of age and only in males. This disorder involves the build-up of VLCFA due to the lack of peroxisomal oxidation. This disorder is characterized by...
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Zellweger spectrum | ZBSN
http://zbsn.org/knowledge/zellweger-spectrum
Zellweger Syndrome Spectrum (ZSS). There are three disorders considered to be part of the Zellweger spectrum: Zellweger Syndrome (ZS), Neonatal Adrenoluekodystrophy (NALD), and Infantile Refsum Disease (IRD). Each of these three disorders have a similar cause and reflect varying degrees of severity, with ZS being the most severe and IRD the least severe. Molecular genetic testing can be done to determine which gene contains the defect. Defects in twelve different PEX genes have been identified in ZSS.
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December | 2011 | ZBSN
http://zbsn.org/2011/12
Freja, Elin and Jakob Bergner-Tholsby Freja Bergner-Tholsby Diagnosis: NALD Birthday: June 22nd 2007 Love from Sweden, Elin. Meet Olivia Danielle Freeth. Meet Olivia Danielle Freeth Olivia was my angel my saving grace. When I went in to the hospital to have her I never had a worry in my mind that she wouldn’t be perfectly healthy. I had two children … Continue reading →. Gwen Allen on Meet Teagyn Chace Smith. On Meet Teagyn Chace Smith. Allyson N. Odom. On Meet Teagyn Chace Smith. Get more info about ZBSN.
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Need help? | ZBSN
http://zbsn.org/community/need-help
The Zellweger Baby Support Network. Is here to help in any way we can. We offer emotional, spiritual and some financial support, as well as practical advice on how to care for these special children. The Zellweger Baby Support Network has a sister support group called Global Foundation for Peroxisomal Disorders. Together we help raise funds, educate parents and doctors and bring families together so that we can share our stories and learn from each other. Get one step close to a cure!
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Links | ZBSN
http://zbsn.org/knowledge/links
8211; Etiam hendrerit risus et purus tincidunt faucibus. Praesent sollicitudin pulvinar nunc, nec mollis metus tincidunt non. 8211; Praesent eu justo lectus. Curabitur tincidunt dolor at elit sodales sit amet egestas leo aliquam. Praesent eu justo lectus. Curabitur tincidunt dolor. Get one step close to a cure! Get more info about ZBSN. Zellweger Baby Support Network. Non-profit organizational ID: NS012973. Web design provided by Services for Designers LLC. Design and development by Hello!
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How to help | ZBSN
http://zbsn.org/donate/how-to-help
Help us get one step closer to a cure! Of all of our proceeds, 50% goes directly towards helping affected families and 50% goes towards funding research. We are a non-profit organization with the 501c3 tax exempt status recognized by the IRS, so your donations are tax deductible (EIN: 20-3695622)! General donations can be sent to:. Zellweger Baby Support Network. 530 West Jackson Blvd. Spearfish, SD 57783. Like to help the Zellweger Baby Support Network in a big way? You get free membership. These are a ...
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Meetings | ZBSN
http://zbsn.org/community/meetings
We will need some TEXT here. Get one step close to a cure! Get more info about ZBSN. Zellweger Baby Support Network. Non-profit organizational ID: NS012973. Web design provided by Services for Designers LLC. Design and development by Hello!
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Forum | ZBSN
http://zbsn.org/forum
Talki forum will be embedded on this page. If you are having problems, please head to http:/ help.tal.ki/home/support. Get one step close to a cure! Get more info about ZBSN. Zellweger Baby Support Network. Non-profit organizational ID: NS012973. Web design provided by Services for Designers LLC. Design and development by Hello!
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Disclaimer | ZBSN
http://zbsn.org/disclaimer
Disclaimer and Terms of Use:. We reserve the right to ban anyone from this site who fails to follow the terms and conditions for usage (rules), whether listed below or in supplemental notices posted at various points in this site. The Zellweger Baby Support Network Team. Before you send us your story and pictures you need to agree with the Terms and Conditions posted in this site and the Story Submission terms below:. Story Submission terms and conditions:. You grant Zellweger Baby Support Network permis...
