sweetsweetangels.blogspot.com
Angelman Syndrome, Life as an Angel: Minocycline results are out!
http://sweetsweetangels.blogspot.com/2014/12/minocycline-results-are-out.html
Friday, December 12, 2014. Minocycline results are out! Well it's been a while since we posted but we have news! Many of you may remember that, in 2012, Brady took part in a clinical trial for a potential treatment for Angelman Syndrome. The medication was an antibiotic called minocycline. We have been fairly quiet while we anxiously awaited the results to be published.now they have been published and we can speak freely about our experience. His communication is amazing and we have gone from 10 words pr...
luciepetitange.blogspot.com
Lucie et sa famille: août 2008
http://luciepetitange.blogspot.com/2008_08_01_archive.html
Lucie et sa famille. Ou La vraie vie d'une petite fille avec le syndrome d'Angelman. Mardi 26 août 2008. Maman n'est pas très assidue sur le blog.mais elle m'a promis de le mettre à jour cette semaine! Nous avons fini les vacances dimanche! Maman a repris le travail et c'est papa qui nous garde cette semaine car notre super nounou est encore en vacances. Il me tarde de la retrouver! Ils m'aident tellement dans mon quotidien. Voila pour la rentrée. En ce qui concerne les vacances : c. Côté marche, j'ai fa...
luciepetitange.blogspot.com
Lucie et sa famille: avril 2008
http://luciepetitange.blogspot.com/2008_04_01_archive.html
Lucie et sa famille. Ou La vraie vie d'une petite fille avec le syndrome d'Angelman. Dimanche 27 avril 2008. Le jeu du J'aime / Je n'aime pas (mise à jour 30/04/08). Maman a décidé de jouer au jeu du. J’aime / j’aime pas. Et a fait une petite liste non exhaustive des petits plaisirs ou des grands malheurs de ma vie…. Maman mettra régulièrement à jour cette liste! Mâchouiller mon bibi pendant des heures. Partager une pomme avec papa. Jouer dans mon bain. Jouer avec l’eau. Faire des câlins et des bisous.
luciepetitange.blogspot.com
Lucie et sa famille: Un bon moment...
http://luciepetitange.blogspot.com/2011/04/un-bon-moment.html
Lucie et sa famille. Ou La vraie vie d'une petite fille avec le syndrome d'Angelman. Samedi 9 avril 2011. La vidéo de l'étape 2, je vous propose un petit moment de tendresse avec ma petite sœur Romane. Vous reconnaitrez sans problème. Le petit Eléphant aux grandes oreilles. Romane et moi, nous adorons regarder ce DVD! Trop fort lea qui dit oui en fond sonore! 4 mai 2011 à 21:50. Ce commentaire a été supprimé par l'auteur. 10 mai 2011 à 20:57. Et les nouvelles photos? 11 mai 2011 à 14:11. Le club des 5.
luciepetitange.blogspot.com
Lucie et sa famille: décembre 2008
http://luciepetitange.blogspot.com/2008_12_01_archive.html
Lucie et sa famille. Ou La vraie vie d'une petite fille avec le syndrome d'Angelman. Vendredi 19 décembre 2008. D'un continent à l'autre. Maman est revenue enchantée de ses visites au Québec où elle a pu rencontrer 2 merveilleuses familles. Elle m'a dit de venir vous dire qu'elle vous raconterait très vite ses aventures mais que pour l'instant elle était occupée à soigner la grippe de Romane! 11 mois et atteinte par ce méchant virus! Dimanche 7 décembre 2008. A la fin de la semaine. Emma décore le sapin.
angelicemma.blogspot.com
Life with Emma: BIG SIS!
http://angelicemma.blogspot.com/2009/08/big-sis.html
Saturday, August 22, 2009. I became a big sister on August 14th! The rest of the family and I welcomed my baby brother, Jacob Alexander, into the world at 5:49 a little over a week ago. Now I have someone to help while I spread the fun and mayhem! Hmmm, wonder how often I'll be able to let folks know "Jacob did it! Probably won't work too often since my mischievious giggle always gives me away! Look out world I'm ready to take you on now! Here's a brief video of one of my first walk! I am so proud of you!
angelicemma.blogspot.com
Life with Emma: August 2008
http://angelicemma.blogspot.com/2008_08_01_archive.html
Wednesday, August 20, 2008. SCHOOL DAZE and OTHER STUFF. It's been a while since my scribe has added to my page, but it's been pretty quiet here in my little kingdom. Boy oh boy, is that changing! I started kindergarten today.yep, I'm one of the big kids now! Come on, Grandma, how can I flirt with a guy if you're going to give away all of my tricks? My new teacher is named Laurie. She and I got along famously, but then again what else would you expect? And now, here's Grandma. Dear Mr. Stiller,. Emmas Bu...
angelicemma.blogspot.com
Life with Emma: July 2009
http://angelicemma.blogspot.com/2009_07_01_archive.html
Thursday, July 16, 2009. Emma lost a truly special person on July 5th. GGK, Great-grandmother Karayan (her daddy's nana), passed away while at home. GGK had a special place in her heart for Emma. She treasured the time she spent with Emma, always referring to her as "our little angel" even before Emma's diagnosis of Angelman Syndrome. GGK will be missed for her unwavering love for her family, her generous nature, and her positive outlook on life. Soar with the angels.we will meet again. Links to this post.
angelicemma.blogspot.com
Life with Emma: August 2010
http://angelicemma.blogspot.com/2010_08_01_archive.html
Friday, August 20, 2010. Hugs to all. Emma's Grandma. Links to this post. Thursday, August 12, 2010. AND LIFE GOES ON. Jacob turns one on Saturday! Happy birthday, little brother! Who knows, maybe I'll decide to take a short walk like I did last year. Just need to remind everyone that I'm the big sister! Great things planned for the birthday celebration.jolly jump, pinata and lots of family. Bryce, Myles' big brother, came to visit so I was the only girl surrounded by a sea of boys.geez! Grandpa keeps te...
angelicemma.blogspot.com
Life with Emma: COUNTING DOWN
http://angelicemma.blogspot.com/2010/04/counting-down.html
Thursday, April 22, 2010. Jacob and I are anxiously awaiting the arrival of our cousin Myles, but I don't think we're nearly as excited as Aunt Jenny and Uncle Jerry! Although Myles tried making an early escape which was thwarted (thanks to me! It appears he's now decided to stay in his cozy compartment until the very last minute. The family is hoping he has a change of heart and decides to make his appearance this weekend since everyone will be off work, but one never knows with these little kids.