shaymurray.blogspot.com

Shay's Story

Living with Pearson's Syndrome a Mitochondrial disease. Overview - Birth to Pearson's syndrome diagnosis. London, United Kingdom. View my complete profile. Monday, 20 July 2015. Again I start this off saying sorry for not keeping this updated. Since I have last updated this back in January, shay has had lots of appointments, test and he takes everyone of these in his stride. Heart block is one of the main things that we are keeping our eyes open for as this is the next main thing that will effect his life.

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Living with Pearson's Syndrome a Mitochondrial disease. Overview - Birth to Pearson's syndrome diagnosis. London, United Kingdom. View my complete profile. Monday, 20 July 2015. Again I start this off saying sorry for not keeping this updated. Since I have last updated this back in January, shay has had lots of appointments, test and he takes everyone of these in his stride. Heart block is one of the main things that we are keeping our eyes open for as this is the next main thing that will effect his life.

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2 pages

3 starlight photo's

4 videos of shay

5 photo's of shay

6 about me

7 shay

8 latest update

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Shay's Story | shaymurray.blogspot.com Reviews

https://shaymurray.blogspot.com

Living with Pearson's Syndrome a Mitochondrial disease. Overview - Birth to Pearson's syndrome diagnosis. London, United Kingdom. View my complete profile. Monday, 20 July 2015. Again I start this off saying sorry for not keeping this updated. Since I have last updated this back in January, shay has had lots of appointments, test and he takes everyone of these in his stride. Heart block is one of the main things that we are keeping our eyes open for as this is the next main thing that will effect his life.

INTERNAL PAGES

shaymurray.blogspot.com

1

Shay's Story: Update

http://shaymurray.blogspot.com/2014/05/update.html

Living with Pearson's Syndrome a Mitochondrial disease. Overview - Birth to Pearson's syndrome diagnosis. London, United Kingdom. View my complete profile. Sunday, 18 May 2014. Since January Shay has had a couple hospital visits re his bones / joints/ muscles. He has been unable to put pressure on his foot due to pain in his ankle, x-rays are clear so not sure what is happening. Shay has managed to do his First Holy Communion, something which I never thought would see. Subscribe to: Post Comments (Atom).

2

Shay's Story: January 2015

http://shaymurray.blogspot.com/2015_01_01_archive.html

Living with Pearson's Syndrome a Mitochondrial disease. Overview - Birth to Pearson's syndrome diagnosis. London, United Kingdom. View my complete profile. Monday, 12 January 2015. Always waiting for more results. I am sorry in the delay, I do keep check on this site and please fell free to leave messages etc for shay. I will always try to answer any questions. The appointment was a surprise but opened up more questions. His scan showed that it had not got worse than the year before, but this did not...

3

Shay's Story: May 2014

http://shaymurray.blogspot.com/2014_05_01_archive.html

Living with Pearson's Syndrome a Mitochondrial disease. Overview - Birth to Pearson's syndrome diagnosis. London, United Kingdom. View my complete profile. Sunday, 18 May 2014. Since January Shay has had a couple hospital visits re his bones / joints/ muscles. He has been unable to put pressure on his foot due to pain in his ankle, x-rays are clear so not sure what is happening. Shay has managed to do his First Holy Communion, something which I never thought would see. Subscribe to: Posts (Atom).

4

Shay's Story: Shay meets Harry (From McFly)

http://shaymurray.blogspot.com/2014/01/shay-meets-harry-from-mcfly.html

Living with Pearson's Syndrome a Mitochondrial disease. Overview - Birth to Pearson's syndrome diagnosis. London, United Kingdom. View my complete profile. Sunday, 26 January 2014. Shay meets Harry (From McFly). Shay had a fantastic day yesterday, he met another rock star, Harry from 'McFly'. Shay asked me several times if I had said thank you to Harry for meeting him. I did, but shay never fails to amaze me, he always thinks of other people. My little rock star. Thu May 01, 11:02:00 pm 2014.

5

Shay's Story: Photo's of Shay

http://shaymurray.blogspot.com/p/photos-of-shay.html

Living with Pearson's Syndrome a Mitochondrial disease. Overview - Birth to Pearson's syndrome diagnosis. London, United Kingdom. View my complete profile. Subscribe to: Posts (Atom). The Rare Mitochondrial Disease Service - NHS. United Mitochondrial Disease Foundation. Becoming a bone marrow donor. Growing up with attitude! Is licensed under a Creative Commons Attribution-Non-Commercial-No Derivative Works 2.0 UK: England and Wales License.

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shaymurray.blogspot.com

Shay's Story

Living with Pearson's Syndrome a Mitochondrial disease. Overview - Birth to Pearson's syndrome diagnosis. London, United Kingdom. View my complete profile. Monday, 20 July 2015. Again I start this off saying sorry for not keeping this updated. Since I have last updated this back in January, shay has had lots of appointments, test and he takes everyone of these in his stride. Heart block is one of the main things that we are keeping our eyes open for as this is the next main thing that will effect his life.

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