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SienaRose | sienarose.blogspot.com Reviews

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1

April 2013 ~ SienaRose

http://sienarose.blogspot.com/2013_04_01_archive.html

Sunday, April 28, 2013. Long time since a post, we found it too difficult to keep up with updating all of her appointments! So, just a quick update on how Siena is doing today. She no longer has her feeding tube, and is able to (with some challenges) eat all of her food by bottle! Her head control is miles better than it was a month ago. We're hopefully going to start planning a local "One Small Step" walk for this year or early next year. Any ideas you have would help us get going on it! The Occupationa...

2

First Early Intervention Visit! ~ SienaRose

http://sienarose.blogspot.com/2012/11/first-early-intervention-visit.html

Tuesday, November 20, 2012. First Early Intervention Visit! Siena had her first appointment with Early Intervention today! Her Occupational Therapist (OT) is wonderful and has years of experience with children that have PWS. This first visit is mainly for Siena's primary evaluation of her motor skills, muscle tone, and social ability. She passed a multitude of tests with flying colors- something we didn't expect! Subscribe to: Post Comments (Atom). May is Prader-Willi Syndrome Awareness Month!

3

Early Intervention Visit ~ SienaRose

http://sienarose.blogspot.com/2012/12/early-intervention-visit.html

Thursday, December 6, 2012. Siena had her third Early Intervention visit today! The Occupational Therapist noticed great improvements in Siena's head control and overall movement. The OT showed us some different exercises to perform: joint compressions and a new way to do "tummy time." She mentioned that another very important thing to do starting at this age is infant massage. She is enlisting the help of a Physical Therapist to start sessions on our next visit to teach us massage techniques. First Earl...

4

What is PWS? ~ SienaRose

http://sienarose.blogspot.com/p/what-is-pws.html

Prader-Willi syndrome (PWS) is the most common known genetic cause of life-threatening obesity in children. Although the cause is complex it results from an abnormality on the 15th chromosome. It occurs in males and females equally and in all races. Prevalence estimates have ranged from 1 in 8,000 to 1 in 25,000 with the most likely figure being 1 in 15,000. Subscribe to: Posts (Atom). May is Prader-Willi Syndrome Awareness Month! May is here (already! And its Prader-Willi Awareness month!

5

May is Prader-Willi Syndrome Awareness Month! ~ SienaRose

http://sienarose.blogspot.com/2013/05/may-is-prader-willi-syndrome-awareness.html

Saturday, May 4, 2013. May is Prader-Willi Syndrome Awareness Month! May is here (already! And it's Prader-Willi Awareness month! We are spreading the word about PWS throughout the month of May and trying to get others to do the same. Foundation for Prader Willi Research (FPWR) has created this event in order to spread awareness in creative ways. Read more about how you can participate here. It's easy and fun! For the month, we'll be giving up WINE, as you know something we can hardly go a day without!

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ourlittlestladybug.blogspot.com ourlittlestladybug.blogspot.com

Our Little Ladybug: October 2006

http://ourlittlestladybug.blogspot.com/2006_10_01_archive.html

Sunday, October 15, 2006. It's hard to believe we are just waiting for the I-797 and then we will be ready to get the show on the road! Well, I know we have a long wait ahead of us, but at least once we are DTC, I will feel like we can take a breather and wait happily. We are now working on photos for our dossier. It's hard to gather up photos with both of us in them! Posted by K. @ 12:32 PM. Tuesday, October 10, 2006. Lots o'stuff going on! Here's the little lady on the window of the car! We have a few ...

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Our Little Ladybug: April 2007

http://ourlittlestladybug.blogspot.com/2007_04_01_archive.html

Sunday, April 29, 2007. Thank You, Winter Blossom April Secret Pal! Thank you to our WONDERFUL Secret Pal, Erica Dick! The books she sent along to us were so special, and none of them are books that we already have! Ken and I sat down together and read all of them! We received the sweetest book entitled Mama, How Long Will You Love Me? The illustrations and the words in it are so beautiful. Next, we received one called A Blessing From Above, and I got misty after reading it! Oh, my goodness! Now in my dr...

ourlittlestladybug.blogspot.com ourlittlestladybug.blogspot.com

Our Little Ladybug: September 2006

http://ourlittlestladybug.blogspot.com/2006_09_01_archive.html

Saturday, September 16, 2006. The home visit is officially over! It went incredibly well and was pretty easy. Our social worker is a really nice man and we felt very comfortable with him. He interviewed us together, then apart for a few minutes, then toured the house. It took about an hour and a half. He said it was the quickest home study he had ever done and I asked, "In a good way? He said, "Yes.". Posted by K. @ 5:52 PM. Sunday, September 10, 2006. Am I ever exhausted! I really miss the summer! I fee...

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for Isabella Blog Designs: Blogs I Have Designed...

http://forisabellablogdesigns.blogspot.com/2008/01/blogs-i-have-designed.html

Our blogs are very personal. They are windows in which we allow others to share in the lives of our children, and our families. Often we invite them in, to sit, and stay a while as we reveal a glimpse into our hopes, our dreams, our hearts, our souls. Our blogs are a reflection of ourselves. At this time I am able to design only a very few blogs due to lack of time. If you are interested in having me design a blog for you please contact me via email- jewelsofmyheart@yahoo.com. Thursday, January 24, 2008.

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for Isabella Blog Designs: January 2008

http://forisabellablogdesigns.blogspot.com/2008_01_01_archive.html

Our blogs are very personal. They are windows in which we allow others to share in the lives of our children, and our families. Often we invite them in, to sit, and stay a while as we reveal a glimpse into our hopes, our dreams, our hearts, our souls. Our blogs are a reflection of ourselves. At this time I am able to design only a very few blogs due to lack of time. If you are interested in having me design a blog for you please contact me via email- jewelsofmyheart@yahoo.com. Thursday, January 24, 2008.

ourlittlestladybug.blogspot.com ourlittlestladybug.blogspot.com

Our Little Ladybug: December 2006

http://ourlittlestladybug.blogspot.com/2006_12_01_archive.html

Thursday, December 28, 2006. Happy Birthday, Dad. I wish you were here. Posted by K. @ 2:14 PM. Wednesday, December 27, 2006. Christmas this year was relaxing and lots of fun. My mom and sister came down for our traditional gift opening on the Saturday before Christmas. They gave us some beautiful gifts, including a hand print kit for the first five years of Jade's life. My sister also gave us Jade's first piece of jewelry- a tiny cross necklace. It's so beautiful! Everyone came to our house on Christmas...

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Our Little Ladybug: November 2006

http://ourlittlestladybug.blogspot.com/2006_11_01_archive.html

Tuesday, November 28, 2006. I Can Breathe a Sigh of Relief. CCAI has received our dossier! Here's to a problem-free critical review! Posted by K. @ 3:18 PM. Monday, November 27, 2006. On Our Way to DTC (We Hope)! We mailed our dossier today to CCAI! We sent it via Express mail, so they should have it by noon tomorrow. I just hope we pass critical review! We put up our Christmas tree yesterday and decorated the house for Christmas. We had two very special ornaments to put on the tree this year:. Then on S...

ourlittlestladybug.blogspot.com ourlittlestladybug.blogspot.com

Our Little Ladybug: August 2006

http://ourlittlestladybug.blogspot.com/2006_08_01_archive.html

Tuesday, August 29, 2006. Here I am again after a whirlwhind of a few weeks. Thank you to those people who were concerned about me and checked up on me. I just haven't been online a lot and I'm sorry I didn't see your messages, but it truly touched my heart to see you were thinking of me. Then we will just be waiting for the I-797 from USCIS and we will have all that we need.well, except the photos. Off I go to do my schoolwork! All the best to all. Posted by K. @ 3:47 PM. Tuesday, August 08, 2006. I cry...

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Our Little Ladybug: February 2007

http://ourlittlestladybug.blogspot.com/2007_02_01_archive.html

Monday, February 26, 2007. Every time I make a different kind of square wish to swap, I can't resist making another for Jade! Square 14- From Mommy, Daddy, Penny and Bailey. One sees clearly only with the heart. Anything essential is invisible to the eyes.". May you always see with your heart-. Mommy, Daddy,. Posted by K. @ 3:12 PM. A Four Squish Day! I am off from school for yet another snow day and was excited to receive FOUR squishes in the mail today! I hope you never look back, but you never forget,.

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Album release rescheduled for May 26th. About a week ago. Request a live show in your town! About a month ago. SIENA ROOT sign with M.I.G. Made In Germany Music. About 2 months ago. Live in Poland for the first time. About 5 months ago. Apr 13, 2017. 8:00pm – 11:00pm. 20:00 – 23:00. Apr 13, 2017. 8:00pm – 11:00pm. 20:00 – 23:00. SE Uppsala, Katalin. Apr 13, 2017. 8:00pm – 11:00pm. 20:00 – 23:00. Apr 13, 2017. 8:00pm – 11:00pm. 20:00 – 23:00. Apr 13, 2017. 8:00pm – 11:00pm. 20:00 – 23:00. Apr 13, 2017.

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SienaRose

Saturday, May 4, 2013. May is Prader-Willi Syndrome Awareness Month! May is here (already! And it's Prader-Willi Awareness month! We are spreading the word about PWS throughout the month of May and trying to get others to do the same. Foundation for Prader Willi Research (FPWR) has created this event in order to spread awareness in creative ways. Read more about how you can participate here. It's easy and fun! For the month, we'll be giving up WINE, as you know something we can hardly go a day without!

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Our Journey with Siena Rose

Our Journey with Siena Rose. Wednesday, April 18, 2012. Wow is it really 2012 already? It is hard to believe that it is 2012 already. When we began our journey with Miss Siena in 2009 she was 2 lbs 5 oz and just being able to dress her was like winning the lottery to us. Milestone after milestone passed, and here we are with our little angel girl, 3 years old already! I finally added some new photos (she has hair now! Siena all grown up, this was taken April 2012, age 3. Thursday, September 30, 2010.

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