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Hypoplastic Left Heart Syndrome (HLHS) HLHS is a severe congenital heart defect in which the left side of the heart is underdeveloped. The heart's left side has the job of pumping oxygenated blood into the aorta, the large artery that carries blood to

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Hypoplastic Left Heart Syndrome (HLHS) HLHS is a severe congenital heart defect in which the left side of the heart is underdeveloped. The heart's left side has the job of pumping oxygenated blood into the aorta, the large artery that carries blood to
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Home Page | Sisters By Heart Website | sistersbyheart.org Reviews

https://sistersbyheart.org

Hypoplastic Left Heart Syndrome (HLHS) HLHS is a severe congenital heart defect in which the left side of the heart is underdeveloped. The heart's left side has the job of pumping oxygenated blood into the aorta, the large artery that carries blood to

INTERNAL PAGES

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1

Blog | Sisters By Heart Website

http://www.sistersbyheart.org/content/blog

On Finding His Tribe. When I was maybe 10 or 11, I read a book about a girl named Dawn, who had cancer. I remember her going to Cancer Camp and how much it meant to her to be around her peers, to feel normal. For some reason, the idea of that camp stuck with me. I just never knew how close it would hit to home with my own family years later. MY tribe has been wonderful. Meeting up with a heart family here or there, or once a year at a Heart Picnic is wonderful. There is a very valuable space for that...

2

Who We Are | Sisters By Heart Website

http://www.sistersbyheart.org/content/who-we-are

Sisters by Heart - Board of Directors. Secretary and Director of External Operations. Director of Internal Operations. Director of Grant Writing. Recent articles and commentary. Sisters By Heart on Social Media. Want some info or have a comment to make? Donate to Sisters By Heart. Our organization is run by volunteers. Help us by making a tax-deductible donation with our secure PayPal link. Or mail your donation to:. El Segundo, CA 90245. Proudly show your support for Sisters By Heart! Sisters by Heart i...

3

Meet Our Kids | Sisters By Heart Website

http://www.sistersbyheart.org/content/meet-our-kids

No two children with HLHS are alike. Each of us experience our own roller coaster of ups and downs. Here are the stories of our current board member's heart warriors. Our blogs and Facebook pages are also listed if you would like to learn more about our individual heart journeys. He is a happy, outgoing child who loves to perform. He loves dancing, singing, and playing outside. Born at Children’s Hospital of Philadelphia in 2010, Kellen was prenatally diagnosed with HLHS. He spent two months in-patie...

4

Resources | Sisters By Heart Website

http://www.sistersbyheart.org/content/resources

Welcome to the Heart Community! Use this page to learn about HLHS. There is a lot of information out there, and we endeavor to keep the links in the pages below up-to-date, with good information from reliable source. Many links to informative and educational sites which will help you understand HLHS from leading medical establishments. Practioners directly involved with HLHS provide their experiences. Brochures designed to be printed. Full length articles for printing. Recent articles and commentary.

5

Donate | Sisters By Heart Website

http://www.sistersbyheart.org/content/donate

Help us spread HOPE. The single easiest way you can support this incredible cause is through a monetary contribution. Sisters by Heart is privately funded and we rely on donations in order to keep providing packages to our families. All donations are tax deductible. For only $50.00. You can ensure that a family somewhere in the United States receives practical items for the arrival of their medically fragile baby . and the incredible gift of. Donations can be sent to:. El Segundo, CA 90245. Our organizat...

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Resources | Help-a-Heart

https://help-a-heart.org/resources

These are the resources that we find valuable. Please click the icons below and you will be directed to their websites. Sharing love by providing emotional and financial support for Iowa families affected by congenital heart disease. Prairie City, IA 50228. Firefighters on scene of Des Moines house firefighters https:/ t.co/Gm7Yvf5MDo. Oct 23, 2016. Thanks to everyone who came out or donated on Monday night to https:/ t.co/N6oZeK3l89. Jun 30, 2016. Walnut Creek Church https:/ t.co/JDceSeYbcM. Jun 29, 2016.

hlhsdad.com hlhsdad.com

congenital heart defect | Half Heart. Whole Life.

https://hlhsdad.com/tag/congenital-heart-defect

Skip to main content. Skip to primary sidebar. Skip to secondary sidebar. Half Heart. Whole Life. An HLHS Dad's Blog. Posted by Chris Perez. I’m sure before you had a child that was born with a critical illness, you knew. Your local Children’s Hospital, but you didn’t really know. It You’ve probably said to yourself, “I’m glad we have it, I just hope we never have to use it.” For you that wish didn’t come true and ushered in a reality that you never expected. With thoughts like: is he going to make it?

hlhsdad.com hlhsdad.com

HLHS | Half Heart. Whole Life.

https://hlhsdad.com/tag/hlhs

Skip to main content. Skip to primary sidebar. Skip to secondary sidebar. Half Heart. Whole Life. An HLHS Dad's Blog. Posted by Chris Perez. I’m sure before you had a child that was born with a critical illness, you knew. Your local Children’s Hospital, but you didn’t really know. It You’ve probably said to yourself, “I’m glad we have it, I just hope we never have to use it.” For you that wish didn’t come true and ushered in a reality that you never expected. With thoughts like: is he going to make it?

mendedlittleheartsofphx.org mendedlittleheartsofphx.org

Resources - Mended Little Hearts of Phoenix

http://www.mendedlittleheartsofphx.org/resources.html

Mended Little Hearts of Phoenix. Mended Little Hearts of Phoenix is continuously looking for resources to help our Congenital Heart Defect families along their journey. Below are some sites we have found to be helpful:. Education / Heart Information. The Emily Center is open to the public and is the largest pediatric consumer health library in the Southwest. The Emily Center provides access to pediatric health information that is accurate, easy to understand and free of charge. Icing Smiles Inc.:. The Mi...

lifescoffeebreak.wordpress.com lifescoffeebreak.wordpress.com

Baby Z, Surgery Story | lifescoffeebreak

https://lifescoffeebreak.wordpress.com/2014/02/05/baby-z-surgery-story

My day to day life. Baby Z, Surgery Story February 5, 2014. Filed under: Baby Z. 8212; Sheena @ 10:29 pm. COA Vanderbilt Childrens hospital. The unknown was killing us. We did not know what to say to each other let alone to our family and friends who were waiting in the hospital day and night with us. How do you act when you don’t even know if your baby was going to live or die? Exhausted, we both crawled into my small hospital bed and we tried to sleep as much as we could. End of day 2. I have never pos...

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National Pediatric Cardiology | Quality Improvement Collaborative

https://npcqic.org/resources/parents-and-families

Skip to main content. Parent and Family Resources. Click a tag on the left to filter. Key Findings: Variability in timing of stage 2 palliation between centers and association with later stage 2 palliation and higher interstage mortality. Key Findings: Variability in timing of stage 2 palliation between centers and association with later stage 2 palliation and higher interstage mortality. Garick Hill, Nancy Rudd, Nancy Ghanayem, David Hehir and Peter Bartz published a study in. Garick Hill, Nancy Rudd, N...

hlhsdad.com hlhsdad.com

CHD | Half Heart. Whole Life.

https://hlhsdad.com/tag/chd

Skip to main content. Skip to primary sidebar. Skip to secondary sidebar. Half Heart. Whole Life. An HLHS Dad's Blog. Posted by Chris Perez. I’m sure before you had a child that was born with a critical illness, you knew. Your local Children’s Hospital, but you didn’t really know. It You’ve probably said to yourself, “I’m glad we have it, I just hope we never have to use it.” For you that wish didn’t come true and ushered in a reality that you never expected. With thoughts like: is he going to make it?

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Plated Life | Plated Life

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College should be less stressful than awake brain surgery, right? Donate your spit for science. I did. Posted by Plated Life. I did my part to help science this week via spitting in this lil container for The International Low-Grade Glioma Registry. Dr Elizabeth B. Claus. Any person over the age of 20 years with an initial diagnosis of LGG can participate. The study asks participants to 1). Provide a pathology report, 2). Complete a 20min online questionnaire and 3). Upload a document. Take the short...

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Home Page | Sisters By Heart Website

HLHS Information Links, Practitioner Posts and More. Care Packages for Newly Diagnosed HLHS Babies. Board Member's Children. Meet Our Kids - Thriving with HLHS! Hypoplastic Left Heart Syndrome (HLHS). HLHS is a severe congenital heart defect in which the left side of the heart is underdeveloped. The heart's left side has the job of pumping oxygenated blood into the aorta, the large artery that carries blood to the body. In a child with HLHS:. The left ventricle (the lower, pumping chamber) is very small.

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