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Susan's Recovery Chronicle

Monday, November 5, 2012. 3 YEARS, 5 MONTHS, 4 DAYS: Goin' Pretty Good. Chronic GVHD persists, but MAC is vanquished, meds are beginning their downward adjustment, and Susan feels mostly decent. Most of the time. Susan and Bob actually stayed over in Boston that Sunday night, given a 10:30 start of appointments and a very packed day. These are the ones that have to be kept refrigerated, so some attention to logistics is required, but they really do provide relief. One of the minor impacts among so ma...

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Susan's Recovery Chronicle | sjksupdate.blogspot.com Reviews
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Monday, November 5, 2012. 3 YEARS, 5 MONTHS, 4 DAYS: Goin' Pretty Good. Chronic GVHD persists, but MAC is vanquished, meds are beginning their downward adjustment, and Susan feels mostly decent. Most of the time. Susan and Bob actually stayed over in Boston that Sunday night, given a 10:30 start of appointments and a very packed day. These are the ones that have to be kept refrigerated, so some attention to logistics is required, but they really do provide relief. One of the minor impacts among so ma...
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Susan's Recovery Chronicle | sjksupdate.blogspot.com Reviews

https://sjksupdate.blogspot.com

Monday, November 5, 2012. 3 YEARS, 5 MONTHS, 4 DAYS: Goin' Pretty Good. Chronic GVHD persists, but MAC is vanquished, meds are beginning their downward adjustment, and Susan feels mostly decent. Most of the time. Susan and Bob actually stayed over in Boston that Sunday night, given a 10:30 start of appointments and a very packed day. These are the ones that have to be kept refrigerated, so some attention to logistics is required, but they really do provide relief. One of the minor impacts among so ma...

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1

Susan's Recovery Chronicle: July 2011

http://sjksupdate.blogspot.com/2011_07_01_archive.html

Tuesday, July 19, 2011. TWO YEARS 48 DAYS: about MAC. Top Line: GVHD treatment on autopilot while the docs figure out the MAC attack. Susan an Bob were at Dana Farber yesterday to meet with Dr. Soiffer, her transplant doc and case manager, and with Dr. Francisco Marty, an oncological pulmonologist who is addressing the MAC (mycobacterium avium complex) issue. Return to this blog in 3 weeks for an update on Susan's next DFCI visit. Links to this post. Monday, July 11, 2011. Links to this post. Dana Farber...

2

Susan's Recovery Chronicle: June 2011

http://sjksupdate.blogspot.com/2011_06_01_archive.html

Sunday, June 19, 2011. TWO YEARS 5 DAYS: GVHD - THE ONGOING SAGA. Top Line: the good news - no lymphoma/leukemia detected; the bad news - Graft vs. Host continues unabated. As for the details, it's complicated. Next communique should be in a little over two weeks. Links to this post. Subscribe to: Posts (Atom). For entries on the history of Susan's disease, CLL, and the transplant procedure, scroll/page down past the bottom of the light tan blog postings window. Leukemia and Lymphoma Society-Home. Susan ...

3

Susan's Recovery Chronicle: January 2012

http://sjksupdate.blogspot.com/2012_01_01_archive.html

Sunday, January 15, 2012. TWO YEARS 217 DAYS: Looking Better. Top Line: Susan's docs all feel she is making good progress. The most recent Dana Farber visit took place on Wednesday, January 11th. Susan saw Dr. Soiffer, her transplant case lead, as well as Drs. Marty and Dana for her MAC and eye condition respectively. Links to this post. Subscribe to: Posts (Atom). Leukemia and Lymphoma Society-Home. Dana Farber Cancer Institute - Home. Http:/ www.dana-farber.org/. National Bone Marrow Transplant Link.

4

Susan's Recovery Chronicle: September 2011

http://sjksupdate.blogspot.com/2011_09_01_archive.html

Monday, September 19, 2011. Two Years 105 Days: A Positive Turn. Top Line: Eyes improved, mouth improved (but there’s a but), skin no worse, MAC in check - maybe GVHD is loosening its hold? Links to this post. Subscribe to: Posts (Atom). For entries on the history of Susan's disease, CLL, and the transplant procedure, scroll/page down past the bottom of the light tan blog postings window. Leukemia and Lymphoma Society-Home. Dana Farber Cancer Institute - Home. Http:/ www.dana-farber.org/. Susan's diagnos...

5

Susan's Recovery Chronicle: 3 YEARS, 5 MONTHS, 4 DAYS: Goin' Pretty Good

http://sjksupdate.blogspot.com/2012/11/3-years-5-months-4-days.html

Monday, November 5, 2012. 3 YEARS, 5 MONTHS, 4 DAYS: Goin' Pretty Good. Chronic GVHD persists, but MAC is vanquished, meds are beginning their downward adjustment, and Susan feels mostly decent. Most of the time. Susan and Bob actually stayed over in Boston that Sunday night, given a 10:30 start of appointments and a very packed day. These are the ones that have to be kept refrigerated, so some attention to logistics is required, but they really do provide relief. One of the minor impacts among so ma...

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Susan's Recovery Chronicle

Monday, November 5, 2012. 3 YEARS, 5 MONTHS, 4 DAYS: Goin' Pretty Good. Chronic GVHD persists, but MAC is vanquished, meds are beginning their downward adjustment, and Susan feels mostly decent. Most of the time. Susan and Bob actually stayed over in Boston that Sunday night, given a 10:30 start of appointments and a very packed day. These are the ones that have to be kept refrigerated, so some attention to logistics is required, but they really do provide relief. One of the minor impacts among so ma...

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