creatineboy.blogspot.com
Creatine Transporter What?: Supplement update
http://creatineboy.blogspot.com/2011/09/supplement-update.html
Ring the bells that still can ring; Forget your perfect offering. There is a crack in everything; That's how the light gets in. Friday, September 16, 2011. The little guy's now THREE and tipping the scales at a whopping 28.5 lbs, here's his daily dose roundup:. Creatine 1.3g x 4/day. Glycine .65g x 3/day. L-arginine 1.75g x 3/day. Is low weight common amongst kids with Creatine Transporter Deficiency? Labels: creatine transporter deficiency. What is Creatine Transporter Deficiency? Ive started telling pe...
creatineboy.blogspot.com
Creatine Transporter What?: Treatment Protocol
http://creatineboy.blogspot.com/2010/06/treatment-protocol.html
Ring the bells that still can ring; Forget your perfect offering. There is a crack in everything; That's how the light gets in. Friday, June 18, 2010. His dosage for his weight (10kg):. L-Arginine 1400mg x 3. Glycine 500mg x 3. Creatine 1g x 4. It will just take a little more time for it to become as automatic as applying sunscreen or putting on mittens. We'll get there. Labels: creatine transporter deficiency. OMG I didnt realize that arginine and glycine needs to be refrigerated. Arginine tastes re...
creatineboy.blogspot.com
Creatine Transporter What?: Put Your Hand in the Hand...
http://creatineboy.blogspot.com/2012/02/put-your-hand-in-hand.html
Ring the bells that still can ring; Forget your perfect offering. There is a crack in everything; That's how the light gets in. Saturday, February 4, 2012. Put Your Hand in the Hand. I can't believe it's been nearly 2 years since my son's diagnosis. In some ways it's been the longest 2 years of my life and in other ways, if feels like it was just yesterday. We're beginning the process of prepping him for school. Real school. The big brick building down the street where hundreds of kids go? Ive started te...
creatineboy.blogspot.com
Creatine Transporter What?: Oh, hey there.
http://creatineboy.blogspot.com/2015/12/oh-hey-there.html
Ring the bells that still can ring; Forget your perfect offering. There is a crack in everything; That's how the light gets in. Tuesday, December 8, 2015. Oh, hey there. I haven't posted in a while. In years. I ought to go back and read all my posts from the beginning but, truthfully, I'm not up for relieving all of that right now. I don't want to feel all the feelings. He had a not-so-bad day today. He was hitting other students. During library he threw books. He had trouble with transitions today.
creatineboy.blogspot.com
Creatine Transporter What?: December 2011
http://creatineboy.blogspot.com/2011_12_01_archive.html
Ring the bells that still can ring; Forget your perfect offering. There is a crack in everything; That's how the light gets in. Thursday, December 29, 2011. At our most recent genetics appointment, we were told about SAMe. I'm not sure how this all fits in with Creatine Transporter Deficiency, my limited scientific knowledge certainly doesn't help me wrap my head around it all. I'll find out more at our next appointment this winter and will keep you posted. In the meantime, check out what awesome things.
creatineboy.blogspot.com
Creatine Transporter What?: Role of Creatine in ASD?
http://creatineboy.blogspot.com/2011/02/role-of-creaitne-in-asd.html
Ring the bells that still can ring; Forget your perfect offering. There is a crack in everything; That's how the light gets in. Friday, February 4, 2011. Role of Creatine in ASD? There are some interesting studies underway that examine the link between creatine deficiency syndromes and autism spectrum disorders. Here's an excerpt of one study (pdf). Prevalence of Creatine Deficiency Syndromes and Genetic Variability in Creatine Metabolism in Children with Autism Spectrum Disorder – A Pilot Study". There ...
creatineboy.blogspot.com
Creatine Transporter What?: Moving on up?
http://creatineboy.blogspot.com/2011/03/moving-on-up.html
Ring the bells that still can ring; Forget your perfect offering. There is a crack in everything; That's how the light gets in. Saturday, March 19, 2011. What a difference a year makes. Almost exactly one year ago, at 19 months of age, my son was given a diagnosis of Creatine Transporter Deficiency (actually,Creatine Transporter Defect. Having a case of the perpetual bitter-boots does not good company make, even for one's self. So, what difference does a year make? A lot if you factor in therapy! In Marc...
creatineboy.blogspot.com
Creatine Transporter What?: SAMe
http://creatineboy.blogspot.com/2011/12/same.html
Ring the bells that still can ring; Forget your perfect offering. There is a crack in everything; That's how the light gets in. Thursday, December 29, 2011. At our most recent genetics appointment, we were told about SAMe. I'm not sure how this all fits in with Creatine Transporter Deficiency, my limited scientific knowledge certainly doesn't help me wrap my head around it all. I'll find out more at our next appointment this winter and will keep you posted. In the meantime, check out what awesome things.
creatineboy.blogspot.com
Creatine Transporter What?: Walking on Sunshine
http://creatineboy.blogspot.com/2010/08/walking-on-sunshine.html
Ring the bells that still can ring; Forget your perfect offering. There is a crack in everything; That's how the light gets in. Monday, August 23, 2010. I have some Big News to report: the little guy took his first independent steps yesterday and took a bunch more this morning! I was wishing and hoping that he'd be walking by his second birthday (less than one week away) so I am simply bursting with pride. OMG, I am so happy for you. I want to say I told you so :) but I wont. Cant stop smiling. What a di...
creatineboy.blogspot.com
Creatine Transporter What?: The absence of normal 'frees us' by Ian Brown
http://creatineboy.blogspot.com/2011/10/absence-of-normal-frees-us-ian-brown.html
Ring the bells that still can ring; Forget your perfect offering. There is a crack in everything; That's how the light gets in. Sunday, October 23, 2011. The absence of normal 'frees us' by Ian Brown. This story originally appeared in BLOOM, Holland Bloorview's magazine on parenting kids with disabilities. Without question the most common reaction people have, when they find out I have a seriously disabled son, is “I don’t know how you do it.”. Then he throws his head back and laughs. I know it’s n...