smashsma.blogspot.com

SMASH SMA

A blog about the SMASHSMA campaign to raise awareness of Spinal Muscular Atrophy the number one genetic killer of children under 2. In memory of Estella who died in November 2011. Thursday, August 8, 2013. Three things happened during the last week that have occasioned this blog. All of this sounds as though I am ending the SMASHSMA campaign. It's more than a matter of time though. Time wasters - money wasters - life wasters. Shameless. It's called HEROES for a reason. Let's end with an abiding thought o...

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SMASH SMA | smashsma.blogspot.com Reviews

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A blog about the SMASHSMA campaign to raise awareness of Spinal Muscular Atrophy the number one genetic killer of children under 2. In memory of Estella who died in November 2011. Thursday, August 8, 2013. Three things happened during the last week that have occasioned this blog. All of this sounds as though I am ending the SMASHSMA campaign. It's more than a matter of time though. Time wasters - money wasters - life wasters. Shameless. It's called HEROES for a reason. Let's end with an abiding thought o...

<META> KEYWORDS

1 smash sma

2 heroes

3 it's been awhile

4 i'm not

5 estella means star

6 she smashed sma

7 thankyou for listening

8 posted by

9 estella sweetman

10 no comments

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smash sma,heroes,it's been awhile,i'm not,estella means star,she smashed sma,thankyou for listening,posted by,estella sweetman,no comments,email this,blogthis,share to twitter,share to facebook,share to pinterest,yours faithfully,edmund hair,hi there

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SMASH SMA | smashsma.blogspot.com Reviews

https://smashsma.blogspot.com

A blog about the SMASHSMA campaign to raise awareness of Spinal Muscular Atrophy the number one genetic killer of children under 2. In memory of Estella who died in November 2011. Thursday, August 8, 2013. Three things happened during the last week that have occasioned this blog. All of this sounds as though I am ending the SMASHSMA campaign. It's more than a matter of time though. Time wasters - money wasters - life wasters. Shameless. It's called HEROES for a reason. Let's end with an abiding thought o...

INTERNAL PAGES

smashsma.blogspot.com

1

SMASH SMA: July 2013

http://smashsma.blogspot.com/2013_07_01_archive.html

A blog about the SMASHSMA campaign to raise awareness of Spinal Muscular Atrophy the number one genetic killer of children under 2. In memory of Estella who died in November 2011. Monday, July 8, 2013. SMA - THE CONSULTATION. Had the following through from Edd Hair. Assistant Private Secretary, Minister of State for Care and Support. This is the follow through to the meeting we had with The Minister and the Deputy PM last year. I hope that some of you find time to give response to teh consultation. Http:...

2

SMASH SMA: SMA - THE CONSULTATION

http://smashsma.blogspot.com/2013/07/sma-consultation.html

A blog about the SMASHSMA campaign to raise awareness of Spinal Muscular Atrophy the number one genetic killer of children under 2. In memory of Estella who died in November 2011. Monday, July 8, 2013. SMA - THE CONSULTATION. Had the following through from Edd Hair. Assistant Private Secretary, Minister of State for Care and Support. This is the follow through to the meeting we had with The Minister and the Deputy PM last year. I hope that some of you find time to give response to teh consultation. Http:...

3

SMASH SMA: July 2012

http://smashsma.blogspot.com/2012_07_01_archive.html

A blog about the SMASHSMA campaign to raise awareness of Spinal Muscular Atrophy the number one genetic killer of children under 2. In memory of Estella who died in November 2011. Thursday, July 19, 2012. SWEET TWEET FEAT is NEAT. This isn't a post as such it's just an explanation of something that is bothering me. recently I have posted a number of tweets that say something like - " 95 % of Twitter users do not retweet for @estellastar1 - but the 5 % who do are amazing.". I totally understand that.

4

SMASH SMA: CAN WE SAVE THIS LIFE ?

http://smashsma.blogspot.com/2013/06/can-we-save-this-life.html

A blog about the SMASHSMA campaign to raise awareness of Spinal Muscular Atrophy the number one genetic killer of children under 2. In memory of Estella who died in November 2011. Friday, June 7, 2013. CAN WE SAVE THIS LIFE? THERE IS AN 8 MONTH OLD BOY AND HE NEEDS YOU- PLEASE READ. MONTREAL - An infant who's slowly dying of a rare spinal defect has been denied an experimental medical treatment because he's 17 days too old. It's cruel and completely inhuman," Defosses told QMI Agency. Earlier this spring...

5

SMASH SMA: August 2013

http://smashsma.blogspot.com/2013_08_01_archive.html

A blog about the SMASHSMA campaign to raise awareness of Spinal Muscular Atrophy the number one genetic killer of children under 2. In memory of Estella who died in November 2011. Thursday, August 8, 2013. Three things happened during the last week that have occasioned this blog. All of this sounds as though I am ending the SMASHSMA campaign. It's more than a matter of time though. Time wasters - money wasters - life wasters. Shameless. It's called HEROES for a reason. Let's end with an abiding thought o...

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iheartmyaiden.blogspot.com

Heart of Kaos: May 2012

http://iheartmyaiden.blogspot.com/2012_05_01_archive.html

No posts. Show all posts. No posts. Show all posts. Subscribe to: Posts (Atom). I Heart My Aiden. Aiden's Sport Relief Page. Autism Initiatives Sponsored Walk. Estella Star - Twitter. Estella's Blog - Smash SMA. Estella's Star Wall - memorial wall. There was an error in this gadget. Awesome Inc. template. Template images by molotovcoketail.

procrastinatorgeneralsays.blogspot.com

Procrastinator General says...: Lifestyle - School Days

http://procrastinatorgeneralsays.blogspot.com/2014/09/lifestyle-school-days.html

Lifestyle - School Days. I have started my new job and it's going really well. There has been a slow start for us whilst we have got everyone up to speed on what's going on. The new school building is still being built and will hopefully be ready for us to move into in the New Year. Week one at work was taken up with lots of training activities. I have done restraint training, positive discipline, lesson planning, safeguarding and something else that I have forgotten the name of! This could prove interes...

procrastinatorgeneralsays.blogspot.com

Procrastinator General says...: Reading Challenge

http://procrastinatorgeneralsays.blogspot.com/p/reading-challenge.html

I have always been a bookworm, but in recent years things seem to have gotten in my way and I've got out of the habit of regular reading. This year I gave myself a challenge to read a book a month, inspired by the. Series over on Sarah's blog. If you want to see how I've been getting on just click the picture to take you to the relevant post :). A Book a Month Challenge (The List). Subscribe to: Posts (Atom). Lifestyle - School Days. Tilly and the Buttons. Meanwhile, on twitter. Tweets by @p gen says.

procrastinatorgeneralsays.blogspot.com

Procrastinator General says...: January 2014

http://procrastinatorgeneralsays.blogspot.com/2014_01_01_archive.html

Reading Challenge – January Update. First things first, Happy Birthday to this blog! I can't believe it's been up and running for a year already and that I have managed to post over 200 times in the last year! I hope this will continue for a long time to come. And now, on to what you really want to hear about, reading:. I have set about. With the gusto of the newly converted. I have never forgotten the pleasure I have always found in reading but I have rediscovered the thrill of making time for it. But w...

procrastinatorgeneralsays.blogspot.com

Procrastinator General says...: September 2014

http://procrastinatorgeneralsays.blogspot.com/2014_09_01_archive.html

Lifestyle - School Days. I have started my new job and it's going really well. There has been a slow start for us whilst we have got everyone up to speed on what's going on. The new school building is still being built and will hopefully be ready for us to move into in the New Year. Week one at work was taken up with lots of training activities. I have done restraint training, positive discipline, lesson planning, safeguarding and something else that I have forgotten the name of! This could prove interes...

procrastinatorgeneralsays.blogspot.com

Procrastinator General says...: April 2014

http://procrastinatorgeneralsays.blogspot.com/2014_04_01_archive.html

Lifestyle - My Week on Instagram #4. My week looked a bit like this. 1 Madam the teacher. 2 I only ate one blue sweet! 3 Time for ice cream. 4 "Mum, the cat wee'd on the floor! 5 Madam the chimney sweep. 6 Sweets from the Easter bunny :-). 7 Beryl Cook exhibition. Somehow I have managed to jumble the order oof the photos up, but I figured it didn't particularly matter! What have you been up to this week? Links to this post. Lifestyle - An Easter Bunny Trap. For this we used a 100g bar of milk choc and me...

procrastinatorgeneralsays.blogspot.com

Procrastinator General says...: Pearl's Pantry

http://procrastinatorgeneralsays.blogspot.com/p/pearls-pantry.html

This is my kitchen, it is distinctly bijou and rather difficult space-wise, so if I can make fab food in it I hope you'll have the confidence to give it a go! Collected below are all the entries into Pearl's Pantry, just click on the picture to take you to the recipe and photo tutorial. Recipe 2: Cottage Pie. Subscribe to: Posts (Atom). Nice to meet you. I'm Pearl and I write stuff. Have a look around and if you want to ask me something feel free to get in touch. Lifestyle - School Days.

estellaswall.blogspot.com

Estella's Wall: More in the post :)

http://estellaswall.blogspot.com/2012/06/more-in-post.html

I am thankful for many things and one of those is my two healthy children. Whilst browsing Twitter, I came across the story of Estella. Estella died at the age of only eight months of a genetic condition, SMA or Spinal Muscular Atrophy. I hope this blog can help raise awareness of the condition and at the same time, I would like to call for submissions of handmade stars to create a wall for Estella and all the children who use Bluebell Wood Hospice. Sunday, 3 June 2012. More in the post :). A lovely idea...

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A blog about the SMASHSMA campaign to raise awareness of Spinal Muscular Atrophy the number one genetic killer of children under 2. In memory of Estella who died in November 2011. Thursday, August 8, 2013. Three things happened during the last week that have occasioned this blog. All of this sounds as though I am ending the SMASHSMA campaign. It's more than a matter of time though. Time wasters - money wasters - life wasters. Shameless. It's called HEROES for a reason. Let's end with an abiding thought o...

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