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Sheffield Motor Neurone Disease Research Advisory Group

The group's mission is to empower and enable patient and public involvement in motor neurone disorders research. How We Assist Research. Enable patient and carer perspectives to be included in research proposals. Identify and prioritise research topics important to patients and their families. Improve recruitment to research studies. Aid researchers to write clear lay summaries and study information sheets. Help share research findings with a wider audience. Raise awareness of MND research.

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Sheffield Motor Neurone Disease Research Advisory Group | smndrag.group.shef.ac.uk Reviews
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The group's mission is to empower and enable patient and public involvement in motor neurone disorders research. How We Assist Research. Enable patient and carer perspectives to be included in research proposals. Identify and prioritise research topics important to patients and their families. Improve recruitment to research studies. Aid researchers to write clear lay summaries and study information sheets. Help share research findings with a wider audience. Raise awareness of MND research.
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1 about us
2 news
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4 sheffield mnd research
5 getting involved
6 our aims
7 latest news
8 mytube
9 cough augmentation
10 sitran
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Sheffield Motor Neurone Disease Research Advisory Group | smndrag.group.shef.ac.uk Reviews

https://smndrag.group.shef.ac.uk

The group's mission is to empower and enable patient and public involvement in motor neurone disorders research. How We Assist Research. Enable patient and carer perspectives to be included in research proposals. Identify and prioritise research topics important to patients and their families. Improve recruitment to research studies. Aid researchers to write clear lay summaries and study information sheets. Help share research findings with a wider audience. Raise awareness of MND research.

INTERNAL PAGES

smndrag.group.shef.ac.uk smndrag.group.shef.ac.uk
1

Sheffield Motor Neurone Disease Research Advisory Group | Members

http://smndrag.group.shef.ac.uk/members

The group's mission is to empower and enable patient and public involvement in motor neurone disorders research. How We Assist Research. SMND RAG currently has members from a variety of backgrounds, united by the common goal of fighting MND. Alison is the Specialist Neuromuscular Respiratory Physiologist who provides respiratory assessment and ventilatory support for people with MND who are in Respiratory Failure. My husband, Ernst died last year after suffering from MND. I am now a retired Pharmacis...

2

Sheffield Motor Neurone Disease Research Advisory Group | Latest News

http://smndrag.group.shef.ac.uk/news

The group's mission is to empower and enable patient and public involvement in motor neurone disorders research. How We Assist Research. The SMND RAG now have a presence on Facebook. For more information please click here. The ‘Sheffield Motor Neurone Disorders Research Advisory Group’ (SMND RAG) is a committee that brings together patients and carers from the South Yorkshire area who wish to be actively involved in ensuring patient and public involvement in Sheffield MND research. Last year (Feb 2016) N...

3

Sheffield Motor Neurone Disease Research Advisory Group | About Us

http://smndrag.group.shef.ac.uk/about-us

The group's mission is to empower and enable patient and public involvement in motor neurone disorders research. How We Assist Research. SMND RAG was set up in September 2009 to enhance patient and public involvement in motor neurone disorders research. Group members have all been affected by MND including patients, carers and family members. We are passionate about helping researcher’s improve patient care, better understand the disease and ultimately develop new treatments. How we do it. The group hold...

4

Sheffield Motor Neurone Disease Research Advisory Group | Cough Augmentation

http://smndrag.group.shef.ac.uk/2016/10/cough-augmentation

The group's mission is to empower and enable patient and public involvement in motor neurone disorders research. How We Assist Research. The equipment for cough augmentation is now back in production so the MND Care Centre are able to start actively recruiting into this service evaluation. Faculty of Medicine, Dentistry and Health.

5

Sheffield Motor Neurone Disease Research Advisory Group | Getting Involved

http://smndrag.group.shef.ac.uk/getting-involved

The group's mission is to empower and enable patient and public involvement in motor neurone disorders research. How We Assist Research. MND RAG currently has members from a variety of backgrounds, united by the common goal of fighting MND. Full members are invited to attend quarterly face to face meetings and will get monthly updates via email or letter about group activities. There is also the facility to Skype in if the individual is unable to attend the meeting in person. SITraN - 11.00 - 2.00.

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LINKS TO THIS WEBSITE

sitransmissions.blogspot.com sitransmissions.blogspot.com

SITraNsmissions: Interview with Dr Richard Mead: Do We Still Need to Use Animals in Scientific Research?

http://sitransmissions.blogspot.com/2015/07/interview-with-dr-richard-mead-do-we.html

Welcome to our neuroscience research blog! Get an inside view of SITraN, the Sheffield Institute for Translational Neuroscience, and find out about our research into motor neuron disease (MND / ALS) and related neurodegenerative disorders such as spinal muscular atrophy (SMA), Parkinson's, Alzheimer's disease and stroke. Wednesday, 29 July 2015. Interview with Dr Richard Mead: Do We Still Need to Use Animals in Scientific Research? Kenneth Snowman and MND Association Lecturer in Translational Neuroscience.

sitransmissions.blogspot.com sitransmissions.blogspot.com

SITraNsmissions: Brain Hats and Head Lice!

http://sitransmissions.blogspot.com/2015/05/brain-hats-and-head-lice.html

Welcome to our neuroscience research blog! Get an inside view of SITraN, the Sheffield Institute for Translational Neuroscience, and find out about our research into motor neuron disease (MND / ALS) and related neurodegenerative disorders such as spinal muscular atrophy (SMA), Parkinson's, Alzheimer's disease and stroke. Monday, 11 May 2015. Brain Hats and Head Lice! Have you ever wondered what goes on in the mind of the average 6 year old? The SITraN outreach team. Can colour influence your taste? I thi...

sitransmissions.blogspot.com sitransmissions.blogspot.com

SITraNsmissions: Unlocking your body’s fingerprint: the human genome

http://sitransmissions.blogspot.com/2015/07/unlocking-your-bodys-fingerprint-human.html

Welcome to our neuroscience research blog! Get an inside view of SITraN, the Sheffield Institute for Translational Neuroscience, and find out about our research into motor neuron disease (MND / ALS) and related neurodegenerative disorders such as spinal muscular atrophy (SMA), Parkinson's, Alzheimer's disease and stroke. Tuesday, 14 July 2015. Unlocking your body’s fingerprint: the human genome. The DNA double helix. This leads me to the first of many important questions! This availability led to a colla...

sitran.org sitran.org

Patients and Public - SITraN

http://www.sitran.org/patients-and-public

Patients and their families are at the heart of our research. By creating SITraN, Professor Dame Pamela Shaw has brought together world class scientists and clinicians dedicated to finding and developing treatments for neurological disorders and bringing these new treatments to patients. Our focus - Motor Neuron Disease and related neurological disorders. For more information on neurological disorders follow our useful links. Jennifer Trust for SMA. SITraN is a multidisciplinary centre of excellence, whe...

sitransmissions.blogspot.com sitransmissions.blogspot.com

SITraNsmissions: Big Data: Could It Ever Cure Alzheimer's Disease?

http://sitransmissions.blogspot.com/2015/05/big-data-could-it-ever-cure-alzheimers.html

Welcome to our neuroscience research blog! Get an inside view of SITraN, the Sheffield Institute for Translational Neuroscience, and find out about our research into motor neuron disease (MND / ALS) and related neurodegenerative disorders such as spinal muscular atrophy (SMA), Parkinson's, Alzheimer's disease and stroke. Wednesday, 20 May 2015. Big Data: Could It Ever Cure Alzheimer's Disease? I was struck by this article by Masud Husain. Http:/ www.medscape.com/viewarticle/833784. Boast 123,000 samples ...

sitransmissions.blogspot.com sitransmissions.blogspot.com

SITraNsmissions: Little bits of history repeating….

http://sitransmissions.blogspot.com/2015/07/little-bits-of-history-repeating.html

Welcome to our neuroscience research blog! Get an inside view of SITraN, the Sheffield Institute for Translational Neuroscience, and find out about our research into motor neuron disease (MND / ALS) and related neurodegenerative disorders such as spinal muscular atrophy (SMA), Parkinson's, Alzheimer's disease and stroke. Wednesday, 1 July 2015. Little bits of history repeating…. MND researchers are spending a lot of time trying to work out how this repeat causes disease: The options are. 2) The molecular...

sitransmissions.blogspot.com sitransmissions.blogspot.com

SITraNsmissions: June 2015

http://sitransmissions.blogspot.com/2015_06_01_archive.html

Welcome to our neuroscience research blog! Get an inside view of SITraN, the Sheffield Institute for Translational Neuroscience, and find out about our research into motor neuron disease (MND / ALS) and related neurodegenerative disorders such as spinal muscular atrophy (SMA), Parkinson's, Alzheimer's disease and stroke. Wednesday, 24 June 2015. New Models on the Catwalk. Well it was all to find trainers which suited my gait. Luckily for the mice, they get their gait analysed in a darkened room rather th...

sitransmissions.blogspot.com sitransmissions.blogspot.com

SITraNsmissions: July 2015

http://sitransmissions.blogspot.com/2015_07_01_archive.html

Welcome to our neuroscience research blog! Get an inside view of SITraN, the Sheffield Institute for Translational Neuroscience, and find out about our research into motor neuron disease (MND / ALS) and related neurodegenerative disorders such as spinal muscular atrophy (SMA), Parkinson's, Alzheimer's disease and stroke. Wednesday, 29 July 2015. Interview with Dr Richard Mead: Do We Still Need to Use Animals in Scientific Research? Kenneth Snowman and MND Association Lecturer in Translational Neuroscience.

sitransmissions.blogspot.com sitransmissions.blogspot.com

SITraNsmissions: Greetings from Dublin - ENCALS 2015

http://sitransmissions.blogspot.com/2015/06/greetings-from-dublin-encals-2015.html

Welcome to our neuroscience research blog! Get an inside view of SITraN, the Sheffield Institute for Translational Neuroscience, and find out about our research into motor neuron disease (MND / ALS) and related neurodegenerative disorders such as spinal muscular atrophy (SMA), Parkinson's, Alzheimer's disease and stroke. Thursday, 11 June 2015. Greetings from Dublin - ENCALS 2015. This session was followed by a session on cognition, the first of its kind at an ENCALS meeting with an interesting talk by R...

sitransmissions.blogspot.com sitransmissions.blogspot.com

SITraNsmissions: April 2015

http://sitransmissions.blogspot.com/2015_04_01_archive.html

Welcome to our neuroscience research blog! Get an inside view of SITraN, the Sheffield Institute for Translational Neuroscience, and find out about our research into motor neuron disease (MND / ALS) and related neurodegenerative disorders such as spinal muscular atrophy (SMA), Parkinson's, Alzheimer's disease and stroke. Monday, 27 April 2015. Welcome to our first post! What better way to start than with an introduction to SITraN by our Director Professor Dame Pam Shaw who thanks to many generous support...

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Sheffield Motor Neurone Disease Research Advisory Group

The group's mission is to empower and enable patient and public involvement in motor neurone disorders research. How We Assist Research. Enable patient and carer perspectives to be included in research proposals. Identify and prioritise research topics important to patients and their families. Improve recruitment to research studies. Aid researchers to write clear lay summaries and study information sheets. Help share research findings with a wider audience. Raise awareness of MND research.

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