SMSSUPPORTGROUP.CO.UK

SPS Support Group UK and Ireland.

Dr Scott Newsome Explains Stiff Person Syndrome. Liz Blows attends the. Rare Disease Day at the House of Commons. On the 25th February. I attended a reception at the House of Commons. It was held by Rare Disease UK. I was there as a representative of SPS. Fiona Marly was the last speaker. She is the head of Highly Specialised Services for NHS England. She spoke in depth about her role, also talking in detail about genomics England's clinical interpretation partnerships (GECIP). Stiff Person Syndrome UK s...

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SPS Support Group UK and Ireland. | smssupportgroup.co.uk Reviews

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Dr Scott Newsome Explains Stiff Person Syndrome. Liz Blows attends the. Rare Disease Day at the House of Commons. On the 25th February. I attended a reception at the House of Commons. It was held by Rare Disease UK. I was there as a representative of SPS. Fiona Marly was the last speaker. She is the head of Highly Specialised Services for NHS England. She spoke in depth about her role, also talking in detail about genomics England's clinical interpretation partnerships (GECIP). Stiff Person Syndrome UK s...

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3 what is it

4 symptoms

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6 information

7 constitution

8 committee

9 about the site

10 stories

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SPS Support Group UK and Ireland. | smssupportgroup.co.uk Reviews

https://smssupportgroup.co.uk

Dr Scott Newsome Explains Stiff Person Syndrome. Liz Blows attends the. Rare Disease Day at the House of Commons. On the 25th February. I attended a reception at the House of Commons. It was held by Rare Disease UK. I was there as a representative of SPS. Fiona Marly was the last speaker. She is the head of Highly Specialised Services for NHS England. She spoke in depth about her role, also talking in detail about genomics England's clinical interpretation partnerships (GECIP). Stiff Person Syndrome UK s...

INTERNAL PAGES

smssupportgroup.co.uk

1

SPS Support Group UK and Ireland.

http://smssupportgroup.co.uk/Pages/EN/Stories_David.html

My Story: David Napier. During 1988 we moved to Australia to live. In 1989 I had a motor vehicle accident that again exacerbated my back problem. 1995 was when I was given spinal manipulation and fitted with an upper body brace. I completed, very successfully, in 1996 an RPA Pain Management Clinic programme. It was excellent, covering all of the different aspects. In the main, the clinicians were excellent too. Now came 1997 and a Bilateral Facet Block at RPA Hospital. This was a total waste of time.

2

SPS Support Group UK and Ireland.

http://smssupportgroup.co.uk/index.html

Wristbands as per the photo are available for ALL with thanks to Richard Allen. They are black shiny debossed (sunk in) print on white silicone bands made in the UK by a firm in Kingwinsford in the West Midlands. They also supply products to Next, The Household Cavalry, NHS, The National Trust and many more. A pack of 5 bands costs 6.00 which includes p&p. You will need a Visa, MasterCard or Maestro Card:-. All profits made will go to The Stiff Man Syndrome Charity. Liz Blows attends the. The first speak...

3

SPS Support Group UK and Ireland.

http://smssupportgroup.co.uk/Pages/EN/Stories_Tanya.html

My Story: Tanya Jarvis. Living with a disease that does not make you look unwell on the outside. Numerous people with SPS have associated autoimmune diseases, such as Diabetes type 1 and Thyroid conditions. SPS can leave many people feeling very alone and afraid to leave their home (in case of a spasm). Many people I have spoken to have had the same horrid time of being misdiagnosed or not being taken seriously, all the while suffering great pain and confusion. I still sometimes hide how bad some days ar...

4

SPS Support Group UK and Ireland.

http://smssupportgroup.co.uk/Pages/EN/About_What_is_it.html

A Bit More About SMS/SPS. In simple terms, everyone has an immune system that helps ward off infections. We also have an auto-immune system which, when compromised, in effect becomes our enemy. It sees a part of our own bodies as alien and begins to destroy it. Dr Scott Newsome Explains Stiff Person Syndrome =. SPS: What does it mean for me? We always welome donations, no matter how large or small. You can donate on-line or via a donations form. Stiff Man Syndrome (SMS) was the name assigned to the condi...

5

SPS Support Group UK and Ireland.

http://smssupportgroup.co.uk/Pages/EN/Oom.html

SPS-sponsored Order of Merit Golf Tournament. This site is solely for the support of those suffering from Stiff Person Syndrome (SPS). Family and friends of sufferers are also welcome to the same support. The site may be of interest to caregivers, care professionals and researchers, together with advocates for the condition and the general public. We always welome donations, no matter how large or small. You can donate on-line or via a donations form. SPS is an auto-immune neurological condition. It ...

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thetinman.org

Living with SPS

http://www.thetinman.org/livingsps.html

The diagnosis of stiff-person syndrome can be frightening and disorienting. Educating yourself and your loved ones is the first step toward easing that fear. Some patients have loving supportive friends and family, others lack sufficient support systems. Either way, the important thing to remember is that you are your best advocate. By stocking your coping tool kit with the right tools and information, you can maintain control over your life. Learn when, where, and how to ask for help. The risk of memory...

thetinman.org

Get Connected

http://www.thetinman.org/connected.html

GUIDE TO STIFF-PERSON SYNDROME. National Organization for Rare Diseases. Stiff Person Syndrome (Open Group). SPS Matters (Closed Group). SPS UK and Ireland. SPS UK and Ireland Support Group Website. SPS Moersch and Woltman (Closed Group). SPS Support Group Brasil. Stiff Person Syndrome Strong Support Group. Russia HSCT for MS and Autoimmune Diseases. HSCT Chicago (Closed Group). Living Forward with SPS Personal Blog. INSPIRE for rare diseases (Website). Stiff Person Syndrome Network (Website). Stiff-pers...

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SPS Support Group UK and Ireland.

Dr Scott Newsome Explains Stiff Person Syndrome. Liz Blows attends the. Rare Disease Day at the House of Commons. On the 25th February. I attended a reception at the House of Commons. It was held by Rare Disease UK. I was there as a representative of SPS. Fiona Marly was the last speaker. She is the head of Highly Specialised Services for NHS England. She spoke in depth about her role, also talking in detail about genomics England's clinical interpretation partnerships (GECIP). Stiff Person Syndrome UK s...

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