babytrentwilliams.blogspot.com
Trent Williams: April 2012
http://babytrentwilliams.blogspot.com/2012_04_01_archive.html
My grace is sufficient for you, for my power is made perfect in weakness. Wednesday, April 18, 2012. Long Time.Lots of Updates. It has been a good while since the last update. Trent is doing great. He is growing and developing his little personality. There are many things to write about, so here goes. Links to this post. Subscribe to: Posts (Atom). Wayne and Holly Williams; Braxton and Trent. View my complete profile. Links that are close to our hearts. Heart of Team Murphy. Heart of a Carpenter Boy.
babytrentwilliams.blogspot.com
Trent Williams: March 2014
http://babytrentwilliams.blogspot.com/2014_03_01_archive.html
My grace is sufficient for you, for my power is made perfect in weakness. Saturday, March 29, 2014. Paving the Road to Round Three. Wayne, Holly, Braxton and Trent. Links to this post. Monday, March 24, 2014. Happy 3rd Birthday Trent. Links to this post. Subscribe to: Posts (Atom). Wayne and Holly Williams; Braxton and Trent. View my complete profile. Links that are close to our hearts. Heart of Team Murphy. Heart of a Carpenter Boy. Paving the Road to Round Three. Happy 3rd Birthday Trent.
babytrentwilliams.blogspot.com
Trent Williams: June 2014
http://babytrentwilliams.blogspot.com/2014_06_01_archive.html
My grace is sufficient for you, for my power is made perfect in weakness. Sunday, June 22, 2014. Trent had a pretty tough day on Thursday. Each day he has had some ups and downs, understandable. But Thursday was mostly downs. He had a good bit of pain and laid around just about all day. He continued to have a good deal of drainage. So they kept the tubes in for the day. Links to this post. Wednesday, June 18, 2014. Links to this post. Tuesday, June 17, 2014. The Waiting Game Continues. Links to this post.
zaneleland.wordpress.com
8th International Costello Conference, Orlando, FL 2013 | Mr. Snuggles- Zane Leland Madaus
https://zaneleland.wordpress.com/2013/08/10/8th-international-costello-conference-orlando-fl-2013
Mr Snuggles- Zane Leland Madaus. Costello Syndrome (G12A), History of Neuroblastoma, Enlarged Heart, Laryngo and Tracheomalcia, Severe sleep apnea, severe Reflux/GERD, optic Nerve Hypoplasia (mostly blind). Gtube and Acid Reflux. How You Can Help. Laryngo and Trachea Malacia. What Mayo Clinic Did For Us. 8th International Costello Conference, Orlando, FL 2013. August 10, 2013. In 2013 Costello Conference. Thank you so much to everyone who helped get us to the Costello conference in Florida! Thank you to ...
zaneleland.wordpress.com
Zane is doing soooo well! | Mr. Snuggles- Zane Leland Madaus
https://zaneleland.wordpress.com/2014/04/30/zane-is-doing-soooo-well
Mr Snuggles- Zane Leland Madaus. Costello Syndrome (G12A), History of Neuroblastoma, Enlarged Heart, Laryngo and Tracheomalcia, Severe sleep apnea, severe Reflux/GERD, optic Nerve Hypoplasia (mostly blind). Gtube and Acid Reflux. How You Can Help. Laryngo and Trachea Malacia. What Mayo Clinic Did For Us. Zane is doing soooo well! April 30, 2014. I am so sorry I have not updated Zane’s webpage in a very long time! Then I had issues with my battery cord not working! I thought we would never see the dayR...
zaneleland.wordpress.com
ShannonK | Mr. Snuggles- Zane Leland Madaus
https://zaneleland.wordpress.com/author/zanesmom
Mr Snuggles- Zane Leland Madaus. Costello Syndrome (G12A), History of Neuroblastoma, Enlarged Heart, Laryngo and Tracheomalcia, Severe sleep apnea, severe Reflux/GERD, optic Nerve Hypoplasia (mostly blind). Gtube and Acid Reflux. How You Can Help. Laryngo and Trachea Malacia. What Mayo Clinic Did For Us. OMSLife Foundation Conference in Cinncinati, OH 2015. April 13, 2015. Read Article →. Zane is doing soooo well! April 30, 2014. I am so sorry I have not updated Zane’s webpage in a very long time! These ...
zaneleland.wordpress.com
NICU | Mr. Snuggles- Zane Leland Madaus
https://zaneleland.wordpress.com/nicu
Mr Snuggles- Zane Leland Madaus. Costello Syndrome (G12A), History of Neuroblastoma, Enlarged Heart, Laryngo and Tracheomalcia, Severe sleep apnea, severe Reflux/GERD, optic Nerve Hypoplasia (mostly blind). Gtube and Acid Reflux. How You Can Help. Laryngo and Trachea Malacia. What Mayo Clinic Did For Us. Zane spent his first month of life in St. Joe’s NICU… mostly trying to eat. Then we met Dr. Robey! At that time which is a floppy larynx. Click HERE to read more about Laryngo and Trachea Malacia. We had...
zaneleland.wordpress.com
Dental & Nutrition Workshops- 2013 Orlando FL Costello Conference | Mr. Snuggles- Zane Leland Madaus
https://zaneleland.wordpress.com/2013/08/08/dental-nutrition-workshops-2013-orlando-fl-costello-conference
Mr Snuggles- Zane Leland Madaus. Costello Syndrome (G12A), History of Neuroblastoma, Enlarged Heart, Laryngo and Tracheomalcia, Severe sleep apnea, severe Reflux/GERD, optic Nerve Hypoplasia (mostly blind). Gtube and Acid Reflux. How You Can Help. Laryngo and Trachea Malacia. What Mayo Clinic Did For Us. Dental and Nutrition Workshops- 2013 Orlando FL Costello Conference. August 8, 2013. In 2013 Costello Conference. By Dr Skip Dolt, DDS RASodontis. Challenges to CS teeth:. Tooth enamel dissolves below 5&...
zaneleland.wordpress.com
OMSLife Foundation Conference in Cinncinati, OH 2015 | Mr. Snuggles- Zane Leland Madaus
https://zaneleland.wordpress.com/2015/04/13/omslife-foundation-conference-in-cinncinati-oh-2015
Mr Snuggles- Zane Leland Madaus. Costello Syndrome (G12A), History of Neuroblastoma, Enlarged Heart, Laryngo and Tracheomalcia, Severe sleep apnea, severe Reflux/GERD, optic Nerve Hypoplasia (mostly blind). Gtube and Acid Reflux. How You Can Help. Laryngo and Trachea Malacia. What Mayo Clinic Did For Us. OMSLife Foundation Conference in Cinncinati, OH 2015. April 13, 2015. I don’t know. No one has the answer still. Could it have been OMS/OMA? Thank you Mike and the doctors who came to speak to us! You ar...
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