sophiascure.org
Gallery | Sophia's Cure Foundation
http://www.sophiascure.org/gallery
You are here: Home. Through it all, our beautiful daughter continues to smile everyday and inspire not just us but people all over the world. All professional photos used on our website is courtesy of summerlyn photography. Be Informed. Stay Connected! More Ways to Get Involved. We are dedicated to helping SMA families and strive to further increase SMA awareness.
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Our Mission | Sophia's Cure Foundation
http://www.sophiascure.org/our-mission
You are here: Home. Sophia’s Cure Foundation. Is a non-profit 501(c)3 public charity which was formed shortly after our daughter was diagnosed with Spinal Muscular Atrophy. The foundation was created to assist in funding for clinical research towards finding a cure for SMA and to offer support to families affected by this disease by providing advocacy, awareness, education and support. We believe every child affected by SMA should be given a chance to live a long and normal life. More Ways to Get Involved.
sophiascure.org
About Sophia | Sophia's Cure Foundation
http://www.sophiascure.org/sophia
You are here: Home. Hi my name is Vincent Gaynor. My beautiful wife Catherine and I had tried unsuccessfully a few times to have a child. But finally on Feb. 27 of 2009 all our prayers and dreams had come true. My wife gave birth to the light of our lives, our precious angel Sophia. She was just a perfect baby. She had all her fingers and toes and she was just beautiful. SMA is a degenerative disease that affects 1 in 6000 babies. Approximately 1 in 40 people carry the gene. There is no cure for ...Sophi...
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Filed 990 Forms | Sophia's Cure Foundation
http://www.sophiascure.org/filed-990-forms
You are here: Home. 2011 Sophia’s Cure 2011 Form 990. Be Informed. Stay Connected! More Ways to Get Involved. We are dedicated to helping SMA families and strive to further increase SMA awareness.
ginastreasures.blogspot.com
Gina's Treasures: May 2012
http://ginastreasures.blogspot.com/2012_05_01_archive.html
Things that I LOVE! Wednesday, May 23, 2012. Peanut Blossom Cookies For My Hero! Today was the last day of 5th grade for Colton! I can not tell you how many teachers have stopped me in the halls to tell me how wonderful Colton is. He never frowns or has a bad day and he is like this not only at school but also at home. I knew he was an amazing kiddo the moment he entered this world and I truly feel blessed and proud to be called his mommy! After receiving his "HERO AWARD"! 1 3/4 cups flour. This is one o...
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What is SMA | Sophia's Cure Foundation
http://www.sophiascure.org/what-is-sma
You are here: Home. SMA type I, also known as severe infantile SMA or Werdnig Hoffmann disease, is the most aggressive form, and manifests in the first year of life. It is also the only type which comes with a terminal diagnosis. This type generally onsets quickly and unexpectedly after birth. SMA is the #1 genetic killer of children under the age of 2. SMA is estimated to occur in nearly 1 out of every 6,000 births. 1 in 40 people are carriers for SMA. Be Informed. Stay Connected!
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Press | Sophia's Cure Foundation
http://www.sophiascure.org/category/press
You are here: Home. KASPAR LABS GENE THERAPY FOR SPINAL MUSCULAR ATROPHY IS……. September 20, 2013. September 7, 2012. Read the full article here. … [Read more.]. Wantagh -Seaford Patch supports Sophia’s cure. August 15, 2012. Http:/ wantagh.patch.com/articles/steamfitters-uniting-to-find-cure-for-wantagh-girl-battling-spinal-muscular-atrophy … [Read more.]. Thank you BW Unlimited. September 18, 2011. Your relentless voting everyday paid off and we cannot thank you all enough! September 14, 2011. Please d...
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A Day For Avery……. | Sophia's Cure Foundation
http://www.sophiascure.org/events/a-day-for-avery
You are here: Home. A Day For Avery……. A Day For Avery……. August 11, 2012. Of Opening weekend at Constellation Field, Avery and her family joined us to cross a few more items off of her list. The blog read as follows. Items I Can Scratch Off My Bucket List:. 1 Go to my first baseball game. 2 Throw out the first pitch at a baseball game. 3 Throw a strike…whatever that means. 4 Have thousands of people cheer for me at once. 5 Shake hands with super hot baseball players. 6 Meet some of my SMAns (SMA Fans).
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Golf for a Cure in honor of Nathan Banjany!! | Sophia's Cure Foundation
http://www.sophiascure.org/events/golf-for-a-cure-in-honor-of-nathan-banjany
You are here: Home. Golf for a Cure in honor of Nathan Banjany! Golf for a Cure in honor of Nathan Banjany! July 9, 2012. Hope to see you all there! Mom to beautiful Sophia. SMA Type 1. Speak Your Mind Cancel reply. Be Informed. Stay Connected! More Ways to Get Involved. We are dedicated to helping SMA families and strive to further increase SMA awareness.
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Newly Diagnosed | Sophia's Cure Foundation
http://www.sophiascure.org/newly-diagnosed
You are here: Home. If you are a newly diagnosed parent to a child with SMA we understand that this time can be a scary and confusing for your family. Please know you are not alone. SMA Space is a wonderful resource for SMA Families from all over the country to connect and help eachother. www.smaspace.com. A Family Guide to the Consensus Statement for Standard of Care in Spinal Muscular Atrophy: http:/ www.mda.org/publications/family guide sma standard of care.pdf. Please feel free to contact us.
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